It all started about 6 months ago when we noticed he had hand tremmors. these tremmors are there all the time but do get worse when he does any physical acivity. the next thing we noticed is that he was tired all the time. then one day he was mowing the lawn and he said he felt like he was very weak and his heart felt like it was going to jump out of his chest and his heart was beating very fast. he stood up from the lawn mower to come inside he said his legs colaped from under him and he hit the ground his face was flushed. after this i took him to the dr. and they started running tests but all came out normal.mri, ekg, eco, 24 hour urin and lab work. Then he started forgeting things easy like where he put the remote or would stop in the middle of doing something forgeting what he was doing. when you asked him if he did something like a chore he would say i think i did maybe i didnt i dont know and he would have to go look to see if he had done it. The colapses happened another 5 times then last saturday he has an episode that scared me to death. he came in my room calling me dad and asking me crazy things. he was confused and saying off the wall things and he would put together things that happened that day but they would be mixed up with off the wall things. he was all over the place trying to fix things that were not there he he was cofused and could not balance himself. i helped to the car and drove him to childrens hospital that was almost 2 hours away. the episode happened the whole way there just saying and doing weird things not knowing who was who and he visable very tired and would talk one moment and then be asleep the next. in the er he was still having the episode he was off balance and had a hard time with the nuro exam.he also could not gopee they admited him that night and ran more tests...another mri, ekg,eeg, cat scan, blood work and another 24 hour urin. all tests came back normal. he did finally urinate the next day but had on problems with his musles getting tight upon urination and would to push to start utinating again. no episode on sunday but he did have another on monday that lasted an hour and a half then another on tuesday that lasted an hour and a half. they then desided to hook him up to the eeg all night along with a camera on him to see the episode. he did have one wednesday night that lasted an hour and they did cathch it on eeg but it showed he was not having a seizure. thurday tehy let him go home with no answers to what was going on. all tests were normal is all they could tell us, they say it is something neurological but dodnt knwo what. they say he has alot going on symtom wise and they can tpin point what it is. thursday untill today (monday) he was very tired, forgetful and would have to think about what he said before he said it he said he would have troble getting his words out. during the episodes he had his blood pressure would go up his breathing would be hard and his heart rate was fast. ha had ataxia during the episodes also. i dont know what is going on with him but i am scaed and so is he. he never cries and he has cried in fear after the episodes. i just need some answers so we can treat this, i mean i cant help but tink what is next? what will happen to my son next? if you or a loved one have had the same isues or you know what this might be please respond. and thank you for taking the time to read this.Reply Follow This Thread Stop Following This Thread Flag this Discussion
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