August 2003 : I had swollen lymph nodes in the neck. Also I had what they thought was a parotid tumor, but it was caused by other swollen lymph nodes. These entire where surgically removed. At that time, I was 25 years old and I was doing mounting bike competition and was training 12 hours a week. I always sleep very well and try to eat the best I can.
August 2003 - April 2004 : I gained an unexplained 30 pounds while training 12 hours a week.
April 2004 : I had the first of many muscle weakness episodes. At this time I was weak from mid april to mid may. The weakness was accompanied with sore throat and a very high thirst. I could drink 1 litter of water per hour without problem.
May 2004 - August 2004. I can do some bike again without any symptoms (beside my weight gain which is still the case today).
August 2004 - November 2004. I had the same symptoms as in april - may 2004.
These episodes are easier and easier to obtain. For example, in early march of this year, I had to stand up 10 minutes and I was weak for 1 week with a severe headache. In the last few weeks other symptoms have come:
- I have knee pain.
- I have dental pain.
- I have back pain.
- I have to always sit. If i do the least effort my muscle will become very weak and if they are weak it is easier to become weaker.
During this time I saw many doctors. I saw two infectiologists. The first tested many diseases and told me I had nothing. The second infectiologists tested more diseases and referred me to a neurologist. The neurologist thinks I have nothing wrong. He now thinks I should see a psychiatric.
However, when doing a muscular biopsy last month a doctor asked me questions which are related to Lyme disease. I now remember an insect sucking my blood in Mount Washington in summer 2002. I removed it with a tap from the other hand. However, the blood test came back negative.
Do you have any idea what I should do ?