Discussions By Condition: I cannot get a diagnosis.

I know something is wrong!!!!!!!!!!

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: nzayhowski
  • August 17, 2009
  • 06:02 AM

I was diagnosed with migraines at age 4. I am now 27, and my experiences have went up, and down. The weird thing is, especially during my adolecence, I experienced some extremely scary symptoms during a few episodes which lead me to believe there is something more serious that is being overlooked!:confused: At random times, during my auras, I would begin to experience a weird tingeling sensation beginning in one finger, traveling to the others, then to my leg, arm, and eventually my mouth and even my tounge leaving me stumbeling over my words. A few times I was taken by ambulance, and couldn't even answer simple questions to the medics, because my speech was so slurred together. But when I would arrive at the hospital everything would be normal and they would send me home, saying that it was just symptoms of a migraine. ?????? I have been to several neurologists, had bubble tests, MRI's, sleep studies, and they say everything is normal. I'm waiting for the day I topple over and they really take me seriousally. I wonder if anyone has heard of this, or this has happened to them or someone they know, because I have searched for answers and I still have the same unsettleing feeling I had the day this started happening. I feel like I belong on that show mystery diagnosis, because this just doesn't add up, and I know that there has got to be something more going on in my body. I take topamax daily to prevent my migraines now, and manage to prevent migraines by avoiding my triggers as best I can. It seems I have outgrown the pain, (thank God) but I am completley out of it for at least 45 minutes and unable to move, at the onset while the aura lasts. I feel I have a lot more control of my condition, I just wish someone could explain to me why this happened, or tell me what else is wrong with me. PLEASE ANY SUGGESTIONS or IDEAS are GREATLEY APPRECIATED I AM LOST!

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