Discussions By Condition: I cannot get a diagnosis.

I Know I'm not Autistic.

Posted In: I cannot get a diagnosis. 17 Replies
  • Posted By: CatBook
  • February 16, 2008
  • 02:46 AM

Okay. I'm going to be 16 in May, and I'm "Autistic". That's what I was diagnosed with when I was in fifth grade. I know for a fact I'm not Autistic. I believe that I'm Schizophrenic. I get paranoid many, many, MANY tiems a day, I sometiems see things that aren't there at all, I think that my "consience" is talking to me in my mind... except it's not at all in the same "voice"; (but it's not like a person is talking to me and I'm hearing it, as if you came up to me and said, "Hi"; or something). I always think that people know what I'm thinking, and I'm also delusional, as well. I do have a few tics, too. Lastly; I've never had many friends; (and at the moment I have non), and I've never really have been interested in friendships much, eitehr. I've never been 'attracted' to any sex/person, either, nor do I know what it's like to be atrracted to somebody/what it's like to know that somebody is "cute"/"hot", etc. Oh; and I'd rather be around kids that are a few years younger than me, for some reason; so if I had to be around others, I'd ratehr be around, adn interact with kids that are a bit younger than me. (Anywhere from age 3 to thirteen). I'm afraid to tell my parents about my paranoya(Sp?), "Hallucinations", and Delusions, because I fear that they won't take me seriously. I don't know why; because I'm an honest person; (and I think that my parents know that I'm an honest person, too); but I still don't think that they'll take me seriously about this. What do you think? How should I approach then with this, and do you think it's worth doing so? Thank you very much for reading this! =]

Oh, Also: I'm well aware that Schizophrenia is very uncommon under age 12, but it's also uncommon for a child to not be diagnosed with Autism after age 7 or so, either... for the most part. The Paranoya, Delusions, Hallucinations; (along with a few other things), have become more obvious to myself in the past year or so, too.

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17 Replies:

  • Why don't you just ask your folks to schedule you an appointment with a Psychologist? I know Psychologists can't prescribe meds to patients, but that may be less-scary for your parents. If you discuss your concerns with a psychologist and they think you need to be medicated for a condition other than "autism," he/she can refer you to a Psychiatrist. I hope this helps.
    Anonymous 42789 Replies
    • February 16, 2008
    • 03:21 AM
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  • Thank You. =]
    CatBook 3 Replies
    • February 16, 2008
    • 05:03 AM
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  • It is probably a good idea to tell your parents about your delusions and hallucinations. They can help you get to see the right doctor. Hallucinations and delusions fall under the category called psychosis. A lot of things can cause psychosis. Schizophrenia is a common cause, and it often starts out by social withdrawal and apathy. This might be why they are thinking it's autism...One little known, rare, cause of this in people your age is a rare disease called Hashimoto's Encephalopathy- it's a complication of thyroid disease. It can be easily ruled out by asking to have your thyroid antibodies checked, even if your hormones are okay.I hope you find the courage to tell your parents about your symptoms. They must be very scary and are nothing to be ashamed of. But you do need to get help somehow and as a minor, the best place to go is your folks.Best Wishes.
    Anonymous 42789 Replies
    • February 16, 2008
    • 09:41 AM
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  • You need to seek help and finish dealing with this on your own. The best thing to do is tell your parents. I am sure they will want to help you. They didn't bring you up, feed you and provide clothes for you from birth and then not care when something like this comes up. Remember, you have not done anything wrong - you just don't feel well or right. Maybe its not just autism....but you can't work this out on your own. The fact that you have such good insights into your problems and are clearly inteligent are all good signs for the future. Also, you have done something good by contacting the forum. Better now you get this looked into, than wait till you are in your twenties....If you really can't bring yourself to speak to your parents just yet, speak to a relative in confidence (aunty, uncle, grandparent etc). Such independant family members can be very useful at times like this. Please let us know how you are doing via the forum.:)
    kentishman 19 Replies
    • February 16, 2008
    • 10:54 AM
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  • Yes, or cut to the chase and see a psychiatrist. Obviously you have researched this and you know these things are treatable. Your body is going through so many changes right now. It's hard enough when you don't have any thought problems. The teen years can be wonderful and friendships made at this time can last a lifetime. Aren't your parents concerned that you don't have any friends? If your parents don't take you seriously, a counselor at school should help. There is also help in your county for teens in distress. You don't mention whether you are a male or female. Do you feel as if you are maturing like other kids your own age? Are you as tall as others? Maybe a trip to your family doctor would also be a good idea now. You are being flooded with growth and sex hormones now and something might be out of whack there. Show these pages to your parents and tell them how to look up the symptoms you are having. Problems caught early may require less intervention. Do you have any problems such as food disorders like bulemia? Where do you live? They are discovering different forms of autism now, as parents are saying that the broad label and symptoms of autism don't match what's going on with their kids. These kids are highly functional, make eye contact etc. and respond well to socialization training and behavior modification. Maybe you have that sort of autism, and also now have developed a thought processing problem. But medical problems need to be ruled out also. When you go to the doctor, first have your parents wait outside and rationally tell your doc what is going on. Bring your posting. It is very reasonable, but very sad. Then bring you parent in and have a family conference with the doc. Do you have an aunt or uncle who could help convince your parents? Keep in touch with us, and regularly bump your posting up to the first pages by writing anything.
    rad-skw 1605 Replies
    • February 16, 2008
    • 11:29 AM
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  • Sorry, "kentishman". I didn't read your post. Just repeating good advice.
    rad-skw 1605 Replies
    • February 16, 2008
    • 11:34 AM
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  • It's the medical doctors who give out the label "autism", not the psychologists. The doctor who labeled you initially could have made a mistake. What you would need is a psychiatrist, who could properly diagnose your true conditions and prescribe meds if that is what you want...however, I would just get the initial analysis with the psychiatrist and you and your parents can decide if you want meds for your condition or counseling. I would also advise you to see a neurologist for your "tic". You could actually have a tic disorder and aren't autistic. That really needs to be evaluated by a specialist. You should be on a 504 plan at school or special education, which can help you until you are age 22. The 504 plan will help modify your college education and that is what you need to focus on--your future, college, training...your social life will come along in time. It's important to tell the doctor that you prefer younger children,but if you are a boy, you must be cautious with playing with younger girls--although innocent, you could get in touble so it's not a good idea to feed into that activity. I imagine you find freedom there to be who you are, playful, spontaneous, but there are adults who also have those child-like characteristics and other adults can find them charming.
    Monsterlove 2921 Replies
    • February 16, 2008
    • 08:35 PM
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  • HelloHave you had an eeg done?Can you describe in a bit more detail how you would describe the seeing things etc.Are you actually externally seeing something that isnt there-for example aperson or tree or how would you describe it.Are these symptoms there all the time or do they come at certain times.Can you describe more about the voice? you hear-what does it sound like and say etc.Is it a distinct seperate voice or are you just referring to hearing your own voice in your head etc?Thankyou
    Anonymous 42789 Replies
    • February 17, 2008
    • 08:31 AM
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  • The others (except blaze) have all given you great advice. You need to see a doctor about all this and tell him/her what is going on. It wouldnt be nice at all to be living with paranoia (((hug))) and if you have something like schizophrenia... something NEEDS to be done now!, before you get worst and aint capable of seeing that a doctor can help you. Schizophrenia if you have it IS a VERY SERIOUS ILLNESS which needs treatment. You could either seek a doctor out yourself, your school counsellor or show your parents your message here and the replies. But please dont leave this any longer, do something about it.
    taniaaust1 2267 Replies
    • February 17, 2008
    • 11:42 AM
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  • You could also get an evaluation with your medical doctor or another, as far as the autism label...there are specialists, other than psychiatrists, called developemental MDs who diagnose, too.
    Monsterlove 2921 Replies
    • February 17, 2008
    • 07:48 PM
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  • Wow, a lot of questions. o: mkor4: Nope, I have no clue what that even is. =/ Yep, this one happened at shool. I was walking down the hall, (and classes were in session, so there was nobody in the entire hallway, except for me, and right before I went to turn into the bathroom I was a girl quickly go in, but there wasn't anybody in there. It wasn't just me thinking somebody was there, I actually saw "a person" go into the bathroom. The symptoms I have are always there, but at times they're more 'bothersome", and apprent to me. For example; I'm not constantly seeing things, it's random, but more than twice a day, definatly. I could be sitting here at my computer, and randomly get paranoid over thinking somebody is behind me, or under my bed. I know, I'm pathetic, but I'm serious. The voice I usually hear most often; (and I hear it all through out the day; several times); and it's much different from my voice. This might make you laugh, or something, but back about a year and a half ago, I referred to "it", (whenever I was thinking about "it"); as "God". Yes, I know, very strange. I've based so many decisions; (and I still do); based on what "it' tells me. For example; I could be browsing a website, and there could be three links, and I only visit two, for whatever reason it may be, and "it" will tell me to click on it anyay, I'll regret it if I don't. The scariest time was when it was first starting to become an "issue", (about two years ago, I think); was when "it" was telling me to attempt to hang myself, but I never did, so don't worry. I have that same day written all about in my notebook/Journal taht's I've kept ever since the beginning of 2005; (I don't write in it very often, tohugh). Sorry about talking so much. =X blaze: I never label myself as a Schizophrenic, I just think my diagnosis may be wrong, and I could possibly have Schizophrenia, but I'm not sure. Haha, I don't have a cell phone, I don't have anybody to call. =] Monstelove: How did you know? I am on a 504 plan at school. (Which I hope can be "removed", because I'm doing okay in all subjects; (thus, I have to add in that gym is 'torture'. xP); but I don't know; I'll probably have to stay "on" it until I graduate. x_X rad-skw, kentishman, and elke: I'm a Female. =] I've always been smaller thasn everybody else my age. I'm going to be 16 in May, and at the moment my height is 5 Feet, and my weight is 85 pounds. (Since I last found out, which was about two months ago). It's funny you mentioned hormones; because in the middle of January I had to leave school and go to the Emergency Room because of chest pain, nausea, and tremors. They did a bunch of tests, and one of them had to do with my thyroid, (I think that has something to do with hormones), and everything came back negative. For the friendships part; my parents are concerned that I get teased a lot, and that I have no friends; but honestly, I could care less. I mean, you go to school to learn. Yea, socialization is a big part of it; (especially high school), but I'm not really interested in having friendships, really. Many people think I'm "wierd". Isn't everybody? ;P Anyway. I live in the United Sates, in New York. The school counselor; that, -unfortunatly-, bothers me atleast two times a week, and it's VERY annoying; especially when she tried taking me out of my study hall on the week before Mid-Term/regents Week. Eh. Yes, I refused. I ended up staying in study hall, becasue I had to study for three tests for teh following week. XD taniaaust1: Good idea, I will show them this. =] In the beginning of tenth grade; (which is my current grade level); I tried to tell teh school counsellor that I think it's a possibility that I could have Schizophrenia, and not Autism. She told me that, that didn't really make sense, because I already had a diagnosis. (Which was my point, lol). XD I never told her about the hallucinations or anything, because any type of appointment, (especially doctors, shrinks, counsellors(Sp?), etc.); make my anxiety "level" go up really, really high, to the point where that's always on my mind, along with a few others things. I "categorize" the school counselor in with that. I mena, I know as soon as I tell what's really going on with me, and as I leave her "office-room", she's going to call my mother; and next thing you know my parents are mad at me. (Long story., I'll make it short. XD I don't get along with either of my parents; it has nothing to do with me being adopted, though. It's just that when they get something "in their head", they're basically "stubborn" and don't want changes made. There's otehr stuff, but it has nothing at all to do with this. XD). Anyway. I said that, because as soon as my "parents" find out what's really "going on", they';re going to be mad at me for "correcting them" about "my diagnosis". D= I hate people who correct others, haha. I'm only "meaning" to try to find out what's going on with me. xD Thank You everybody for helping me out, it helped a lot! =D
    CatBook 3 Replies
    • February 19, 2008
    • 02:54 AM
    • 0
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  • OK. It's simple, read the bible ( only what ****s said ) once you have read what he said ( it may take a few months ) but do it with no preconceived ideas and do it with an open heart. **s you read about him you will soon understand he was yours and my saviour. Once you truely believe in him ask him to help you and your suffering will end, Guaranteed. All the other advice you had was well intentioned but none of them led you to the truth. The truth ( ***********t ) and his words will set you free and will remove your pain. Trust me.Now read.
    Anonymous 42789 Replies
    • February 19, 2008
    • 11:00 AM
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  • You didn't answer about bulimia. Isn't 85 lbs. kind of thin? You'll listen to some strangers (us) who give you various types of advice, but you don't want anything to do with your school counselor who is obviously trying very hard to find out what is wrong with you? Get a grip. This counselor is NOT the enemy. Cut her some slack and be glad she's worried. SO WHAT IF SHE TELLS YOUR PARENTS! So what if they get mad! You need to be treated NOW. You get anxious when you have to go to the doctor? SO WHAT.You don't sound like a scaredy-cat. Get on a schizophrenia chat board and see how miserable their lives can be. See how many lives have been ruined which could have been treated. Having some "IT" talk to you and guide you? Your mind seems strong enough to resist. Two's a crowd. If you have any symptoms of schizophrenia, seek medical help as soon as possible. Schizophrenia doesn't get better on its own, and in fact, usually worsens without treatment. However, if you're like some people with schizophrenia, you may not recognize that you need help or that you even have symptoms. Family and friends, or people at work or school, may be the ones who initially suggest you seek help. Try to listen to them, as they have your best interests at heart. Getting treatment from a mental health provider with experience in schizophrenia can help you learn ways to manage your symptoms so that you have the best chance to continue on with a productive and happy life. If you're reluctant to seek treatment, try to work up the courage to confide in someone, whether it's a friend or loved one, a health care professional, a faith leader or someone else you trust. They can help you take the first steps to successful treatment.
    rad-skw 1605 Replies
    • February 19, 2008
    • 00:19 PM
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  • I tried to tell teh school counsellor that I think it's a possibility that I could have Schizophrenia, and not Autism. She told me that, that didn't really make sense, because I already had a diagnosis. umm that's not good.. it sounds as if she didnt really listen to you. At that point she should of queried you further on why you think you have schizophrenia rather than autism. So it sounds like there wasnt good communication there. ............. If you have parents who blame you for everything and if you will get into trouble for "causing a scene" or whatever.. for "rocking their little boats".. I completely understand that as not everyone has good or understanding parents. If that is the case.. why dont you yourself go and see a doctor or go down to your local hospital.. and tell them of your situation and ask them what to do. Ask also for support on getting throu to your parents if need be. If schizophrenia.. You do NEED treatment and ASAP as that can really go WAY out of control.
    taniaaust1 2267 Replies
    • February 19, 2008
    • 01:52 PM
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  • umm you also said you have a journal. Maybe you can leave this journal where your parents are going to find it and read it... set it up so they will see the parts about the hallicinations you are having. Parents can be very nosey when it comes to teens journals if left out. best luck
    taniaaust1 2267 Replies
    • February 19, 2008
    • 01:54 PM
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  • Hiya!Listen, there are a lot of nutty people on this board and a lot of helpful people.I am a mental health professional who cares and listens. I have a few things that I would like to say...1. of course you should deal with this with your parents, they are the gatekeepers of your well-being until you are 18, they control medical help, guidance, etc.2. in many towns there are community mental health programs that provide walk-in services to teens confidentially3. in my family, and in the community, I have seen Autism or ASD, go hand in hand with schizophrenia 4. these two seem to go hand in hand under two circumstances, when there is Celiac Disease present or if there is a metal metabolism problem5. look up this info on Celiac Disease http://www.celiac.com/, you could go for testing or you could go completely gluten-free, which you will have to read about, and you may see the schizo lessen, anxiety lessen - and any OCD behaviors lessen, highly intelligent people, like those seen in ASD use obsessive behaviors and rituals to reduce anxiety about nerve issues, social issues, etc.6. metal metabolism is harder to diagnose and analyze - copper can really cause a problem in those who can't secrete it, if you ever have any type of liver problems, make sure doctors look into this area - I just read your post again about the ER with tremors and nausea - it is very rare but they should have looked into Wilson's Disease - Copper Disease, 1 in 90 people carry the gene but only 1 in 30,000 people have it and if you are adopted - you don't have the family history7. you need to put yourself through social rehab, teach yourself social cues -nothing can be more satisfying than being a social person and enjoying others, it is possible! You have the intellect to search out this website and hunt down mysteries. Hunt down the cues you are missing.Sorry to go on and on but there is hope and lots of doctors and counselors don't like to give that away because hope takes its toll on them.Good Luck!
    Anonymous 42789 Replies
    • February 25, 2008
    • 03:12 AM
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  • It is very possible you could be autistic AND have a form of schizophrenia. In fact, those with autism are more likely to develop schizophrenia.Please keep that in mind. Why are you ruling out autism completely?
    Anonymous 42789 Replies
    • January 31, 2009
    • 09:12 PM
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