Discussions By Condition: I cannot get a diagnosis.

I Just Want an Answer

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Vonnrayy
  • May 27, 2013
  • 10:45 PM

About five years ago my right elbow started to have pain and weakness. Began to move to left elbow. In June of 2010 I had my Gallbladder removed because it stopped working. After that I began to lose weight (kinda not complaining). Increase of pain, mostly in my bones. No one would listen. Diagnosed with GERD. Had a lumbar puncture, and nothing. Went through physical therapy, had many knots in my muscles that are extremely weak. I am still so easily fatigued. From October 2011 to July 2012 I lost 100 pounds without trying. I had no desire to eat, however knew I needed to so every couple of hours I would have something small. My husband is a diabetic so we do know how to eat well with fruits, veges, and proteins. In July 2012 I had a hystorectomy in which my right ovary was 5.8 cm and my uterus was filled with fibroids. Since then I have been told that I have thrombocytosis, Leukocytosis, and high inflamation. My rib bones always hurt to the point that just to touch my breast bone can bring me to tears at times. I often have breast pain, in which I have stabbing pains in different spots at different times. There is one particular area in which stays warm to the touch as well. This seems odd to me, but does not to the doctors I have seen. I suffer from headaches, sometimes to the point that I just want to cry. There are times that I am so tired that it is too dangerous that I drive, almost like I could fall asleep standing up. The pain in my face, it is like someone hit me with a shovel, the bones are often tender. Sometimes I do have bloody noses in the morning. Last year I developed allergies to animals. Just had my Vitamin D level checked and I guess it was too low, my doctor put me on 50,000 iu twice a week. I am so tired of hearing different ideas and being passed from one doctor to another. It almost makes me afraid to report any other symptoms. Yesterday my lower back started to hurt. If anyone has an idea of questions I should ask my doctor or something I should research please please let me know, it would be very much appreciated.

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2 Replies:

  • I'm sorry I don't really have any answers you probably haven't looked into but I thought I should reply at least to let you know someone cares, I have been looking into chronic fatigue for myself, some of your symptoms sound like that. Also vitamin deficiencies can have some pretty strange side effects sometimes I recently found out, see if the calcium helps you in the meantime. Also I just got put on nuerotin (there is a generic) to help me with odd sensations and fatigue, though it only treats symptoms it has helped me greatly and now I feel like I can go on when I felt hopeless before. See if your doctor thinks it may benefit you. Good luck, I hope you will feel better sometime very soon.
    amanda88 16 Replies Flag this Response
  • I have a few suggestions. The combination of joint and bone pain + high inflammation + chronic fatigue means that there's a good chance an autoimmune disease is the culprit. I would ask the doctor about getting an ANA test, and other more specific tests for conditions like lupus, Sjorgen's Syndrome, systemic sclerosis (scleroderma), and the like. Some of these conditions can be tough to detect, so you might want to ask for a referral to a rheumatologist or immunologist. The headaches that you're having could be either migraines or trigeminal neuralgia/some other kind of neuropathy, which would also fit with autoimmune conditions. I would get tested for Celiac disease too, since you have these symptoms in conjunction with at least one vitamin deficiency. The other thing that comes to mind is hyperparathyroidism; it's a form of endocrinopathy associated with vitamin D deficiency. Ask your doctor to have your ionized calcium levels checked - if it comes back high, it could be this condition. Might want to ask about multiple myeloma and other types of cancer too.I am not a doctor btw so take my advice with the usual grain of salt. Good luck with getting answers, let us know if you get diagnosed or feel better ok?
    Aaron-o 27 Replies Flag this Response
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