Discussions By Condition: I cannot get a diagnosis.

I just know something is wrong, but what?

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: geenie
  • April 9, 2008
  • 04:01 PM

I was wondering if anyone is experiencing anything similar or would have any idea what is wrong with me.

I'm 26, female. Here are a few facts about me :
- I can't tolerate birth control pills ( I throw them up )
- I used to suffer from sleep apnea
- At 24 y.o. I had a severe tonsil infection and had UPPP surgery
and tests have shown that I don't suffer from sleep apnea since then.

Here's what happening to me :

Started having my period at the age of 12. Had no pms at that time whatsoever. At the age of 14, I'd have severe cramps on the first day of my period. Since then, the list of symptoms kept getting longer and I have now been diagnosed with severe pmdd.
Mostly due to stress and pmdd lasting longer and longer, I have been diagnosed with depression last december. I have been taking Effexor and Wellbutrin since then. My mood is great til I get my period or sometimes during ovulation period, where I can get severe mood swings. (I can even get paranoid or aggressive, which is not at all in my nature)
I have been getting more and more tired and often need to sleep more than 12 hours a day to even function. (Sleep apnea has been ruled out)
I noticed that since a couple of months, I have been losing a lot of hair.
Even though I'm losing hair, I am getting a lot of facial hair, specially in the chin / neck area.
I often have episodes where my legs or sometimes my body feel extremely cold, I start to feel feverish and then start to feel extremely tired and can barely keep my eyes opened.
When I have my period, I sometimes barely bleed. Other times, I bleed so much that It can get through tampons, pads and even clothes in an hour or two.
I had a urinary tract infection in january and hade to take Cipro. About 2 days after starting the antibiotics, I got extremely sleepy. I thought it was the side effects of the medication. I was lethargic for about a week then got a bit better. (I could swear this has happened to me in the past)
I had a small cold 3 weeks ago, barely coughed for a day, then started to be lethargic again. I'm still really tired right now.
I sometimes have some clear, bitter fluid coming out of my breasts. (Both of them, don't think it's bloody)
When I sleep, I often suffer some real bad aches in my hips. It wakes me up.
It feels like it's burning (or almost like a bruise) if anyone presses anywhere on my body where there's a nerve. Specially in my legs, but also in my arms and back.TSH and antibodies are normal ( FT3 and FT4 are to be determined soon). My BMI is around 29 right now. (I gained weight since being on Effexor) And I usually eat healthy. I have to admit I have got a caffeine addiction, and drink a lot of diet pepsi. No alcohol, no drugs, no cigarettes, no other prescription drugs than effexor and wellbutrin.

I'd appreciate any ideas / input. Thank you.

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5 Replies:

  • It so sounds like when I had Graves Disease...antibodies for this thryoid disease were positive....and though you may not have this, it really sounds like something thryoidish...parathyroid? Pituitary with thryoid problems? OR other autoimmune diseases...for thryoid problems and information as well as a great forum where the ladies will have all kinds of ideas for you (even if it is not thyroid) check out Mary Shomon's thryoid site. Also it occured to me that it could be ovarian hormones (again you may have pituitary problems and I wonder if an MRI for the pituitary might be worth it?)...ovarina hormones becasue you talked about the BCP...I am in perimenopause and the doctor prescribe BCP to help regulate stuff....it REALLY did not work...I had horrible time for over two months trying to adjust ...so many side-effects....trying two different types and gave up....if you suspect female hormones may be the casue ,check out this non commercial site called www.power-surge.com....for perimenopause and menopausal women, but in any case you can ask and a lot of nice women will try to help! Joan BIG PS* WOrd of WARNING* If you are not seeing an endocrinologist, I would definitely recommend one...even then, be aware that not all doctors are fully up on the latest research on thryoid issues...thyroids are really so complicated...believe me I know...so for now, do know that a TSH value alone is not enough and anything over 2.5 or 3 is suspect for treatment and anything under 0.8 the same, but of course this needs to be looked at with FR4 and FT3 values and ultra sounds etc...but for best help with these number and values and lab ranges I STRONGLY recommend the great advice from the ladies on Mary's site mentioned above...sometimes thryoid problems can be difficult to diagnose if you don't have a really, good and very up-to -date doctor.....
    Joan5555 316 Replies Flag this Response
  • sounds like thyroid but get diabetes ruled out, too..could be the beginnings of shingles under the skin pain...try acupuncture (about 6 times) for the female problems..get a mammogram....cut out the diet pop--the ingredients can cause a multitude of side effects...moderation on coffee..
    Monsterlove 2,921 Replies Flag this Response
  • Thanks a lot for the information, I will look into that. Diabetes has been ruled out. The next step right now is for me to see a gynecologist. I'll definitely ask to see an endocrinologist.I've tried getting rid of my caffeine addiction a couple of times but the symptoms of caffeine withdrawal interfered so much with my everyday life that I couldn't handle it. I guess I just have to find the right time for that. I am aware it's a real bad habit.Thanks again for the input.
    geenie 39 Replies Flag this Response
  • Polycystic ovarian syndrome, possibly Cushing's disease. Are you short in height? If so, ask about Turner syndrome.
    aquila 1,263 Replies Flag this Response
  • First, I want to thank everyone that's replied. I thought I'd give you all an update on my situation. (It's been a while, I know, but I just moved across the ocean)I saw a gynecologist and had an ultrasound done. The results are as follow :uterus has a bunch of micro-fibroids, the right ovary has a 3cm x 5 cm cyst, the left ovary doesn't have any cyst. The report says : "The ovaries are enlarged, but they are not Polykystic".I am seeing my gynecologist on monday and an endocrinologist the week after that. I will have my hormone levels checked (oestrogen, sdha, progesterone, etc) as soon as I get my next period. I'll try to post the results if anything.
    geenie 39 Replies
    • September 11, 2008
    • 10:23 AM
    • 0
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