When I was 11 years old, my hands started changing color from red to blue and back, and they had growths on them. I also discovered that I was unable to straighten my fingers and had very limited movement in my hand. I was diagnosed with Raynaud's and lupus pernio (but not lupus) and sent on my way. Over time, I developed severe fatigue, dizziness, and joint pain, especially in my fingers. I had multiple blood tests done, and all of them were negative. The raynaud's and pernio were still acting up at this point. When I turned 15, I suddenly got eczema, which I had never had before. I know this is normal, but it was so severe that it covered me from head to toe and huge parts of my skin were peeling off. It got this bad in a matter of weeks. I was asked many times if I had been a burn victim. I felt like I had the flu and my joints ached. I eventually was unable to go to school. I was put on prednizone (sp?) and was given many steroid shots, which helped, but I still have to put steroids on 3x a day. I later developed severe eye infections (it was swollen shut) for no apparent reason This happened more than once. My joints (and bones, when i apply the slightest pressure) still hurt, I am still tired, and now I develop red pin ****k rashes that look like bug bites. Also, my hands still don't bend correctly and I get dizzy and have what feels like panic attacks frequently. Sometimes, if I am standing, these will cause me to shake and then pass out, However, after all of this, and seemingly every blood test on the planet, I am still unable to receive a diagnosis. It is frustrating because I still have every symptom on and off and I never know when another will emerge. Any ideas? Has anyone else experienced this?Reply Follow This Thread Stop Following This Thread Flag this Discussion
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