Discussions By Condition: I cannot get a diagnosis.

I have symptoms that my doctor said at first was due to Fibromyalgia but the decided I'm to young.

Posted In: I cannot get a diagnosis. 12 Replies
  • Posted By: Anonymous
  • February 19, 2015
  • 03:45 PM

I'm a 20 year old girl just looking for answers. I have numbness and tingling in my hands and feet, knees, back, and head. I also have migraines that range in intensity and duration. It hurts to put my neck all the way down and I feel tension in my neck and shoulders. Vision and memory problems is something I've been experiencing too.

I get pains in my left eye sometimes during a headache and I also see little squiggles(aura?). I have had muscle and joint pain for years as well as scoliosis.I'm constipated a lot and have pains in my stomach and chest sometimes. I wake up and still feel like I haven't slept at all.

I've had a lot of blood work done to check for the different types of arthritis, lupus, and diabetes that came back clear. The only thing that came back with the blood work is that I have low iron. I'm currently taking amitriptyline, naproxen, imitrex, and miralax. They had me on Neurontin but I didn't want to take it.
Please help me. I feel I'm to young for all these problems and I just want to know what's wrong.

Reply Flag this Discussion

12 Replies:

  • Could have iodine deficiency. Can cause symptoms you have. Also check magnesium.
    Anonymous 1 Replies
    • February 20, 2015
    • 06:31 AM
    • 0
    Flag this Response
  • Sorry to hear you are having so many ailments at such a young age....if you are interested in hearing about the Healing qualities of Essential Oils, take a look at this website:

    www.oil-testimonials.com/1091548 (contact me for more info)
    Anonymous 1 Replies
    • February 21, 2015
    • 06:07 AM
    • 0
    Flag this Response
  • Have you been checked for thyroid disorders? If not, please do. Make sure they do Free T3 and Free T4 and Tsh and to also check for the thyroid antibodies. You may also want to find a good holistic doctor. I have found that most endocrinologists are clueless when it comes to the thyroid. They rely solely on labs and what is normal for one person is not always normal for another. Hope this helps!! Good luck!!
    Anonymous 1 Replies
    • February 22, 2015
    • 05:19 PM
    • 0
    Flag this Response
  • ***for information on the healing qualities of essential oils, please take time to check out:
    www.oil-testimonials.com/1091548
    Anonymous 1 Replies
    • February 22, 2015
    • 07:48 PM
    • 0
    Flag this Response
  • Are you the only one in your family with these problems? You sound like me but I'm 35 and have been looking for answers for 22 years. I am trying to get genetic testing to see if we have a specific genetic condition because my whole family is similarly affected. Good luck.
    Anonymous 1 Replies
    • February 25, 2015
    • 08:35 AM
    • 0
    Flag this Response
  • Get your Dr. to do a Lyme disease test thru IGeneX. Don't settle for the standard patch test, it shows about 70% false negatives. My daughter had Lyme for about 5 years (3 patch tests showing negative) before having test done thru IGeneX where it was found she has a severe case of Lyme. Unfortunately she was showing most of the symptoms you are,only worse. If you do have lyme, Contact Dr. Sara Jernigan at Jernigannutraceuticals.com . She is very Lyme literate and has helped my daughter and many people I have recommended her to.
    Best of luck.
    Anonymous 1 Replies
    • February 25, 2015
    • 00:23 PM
    • 0
    Flag this Response
  • Once I had lots of aches and pains and drained of all energy. I thought I was dying. I found that I had parasites. Worms! I started taking 5 blackwall nut capsules (any drugstore or walmart) a day for five days and I was well. That might not be it, but you might want to think about it. No one in USA treats for parasites, but treatment in third world nations is a everyday occurrence. I have cats and dogs, so I treat myself every 6 months. My only concern is if there could be a reaction with all those other mess you are taking.
    Anonymous 1 Replies
    • February 26, 2015
    • 00:33 PM
    • 0
    Flag this Response
  • There is such a thing as juvenile fibromyalgia not all docs are aware of this so there is no too young for fibro.
    Anonymous 1 Replies Flag this Response
  • I had many of the same symptoms at age 20. Doctors offered no help. After eight years of it, I discovered that it had been my birth control pills causing most of the problems. This may not fit in your situation, but I thought it was worth telling you about, just in case. I know what it's like to feel miserable and not be able to find a solution.
    Anonymous 1 Replies Flag this Response
  • Your symptoms also match Chronic Fatigue Syndrome which is now called Systemic Exertional Intolerance Disease. You may be able to find a doctor who a)believes the disease is real and b)will perform the blood and genetic testing to validate the diagnosis. Good luck. If you are interested and have the financial ability I can give you the names of some doctors who diagnose this difficult disease which along with fibromyalgia is often conflated and undiagnosed.
    keenanma 2 Replies Flag this Response
  • You are sadly not to young to be afflicted with fibromyalgia. I was finally diagnosed at the Boston Children's Hospital after many years of nightmare history sounding exactly like yours. I was only 15 when diagnosed. I live one day at a time, but it is manageable. If you have any questions or would like to chat feel free to email me.
    Anonymous 1 Replies Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • i've had the same issues&went to a holistic dr who told me it was related to a vitaminD defieciency.
    Anonymous 0 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.