Discussions By Condition: I cannot get a diagnosis.

I have Splenic Vein Thrombosis, Thrombosis of the Left & Right Portal Vein Branches a

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • November 9, 2009
  • 00:26 PM

I was so happy my friend found this blog. I was happy to find others that are going through similar problem(s). I was diagnosed with Portal Vein Thrombosis in July 2009. As many of you, I was put in the hospital for 8 days and underwent many tests to try and find the reason behind the clots and Heparin. I have no genetic disorder or any other reason for the clots. During the hospital stay, my had an elarged liver (from no blood flow), low grade fever, high platelet count (500,000 - 930,000), pain and nausea. I was sent home on Coumadin and despite my INR level being a 8, the portal vein clot got larger and I developed more clots. I was put back in the hospital and gone more tests, with still no positive results. I was then additionally diagnosed with Splenic Vein Thrombosis, Thrombosis of the Left & Right Portal Vein Branches and Mesenteric Vein Thrombosis. I was then sent home on Lovenox shots twice a day because I am what Dr's consider a Coumadin failure. In the past 5 months, I have had continued pain and complications from the clots. Enlarged liver, enlarged spleen, fluid in my abdomen and digestive pain and issues. After a visit to a vascular surgeon, I was informed that the clots would more then likely be there for the rest of my life, since they had not dissolved on their own in 5 months :( In some cases, medicine can be delivered directly into the clot to dissolve it. This procedure is called thrombolysis, unfortunately, my clots have been there too long so they have become attached. I am planning to go see a Dr at Johns Hopkins Hospital in Baltimore, MD to talk about surgery to remove the clots.

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