Discussions By Condition: I cannot get a diagnosis.

I have extreme anxiety. Paranoind about cancer due to possible interstitial cystitis

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: CraigBond
  • November 21, 2008
  • 08:19 AM

Okay, I have a number of things plaguing my mind right now:

*Experiencing symptoms of epididymitis. I have had a discomfort and tenderness in my right testicle for over a year. There isn't any strong pain, but I am left on occasion with an ache in the chest, as if kicked in the groin. Seems like that's possibly psychological, as I only feel that way if I'm aware of any pain. The symptoms seem to come and go, and can last a few weeks or up to a month. I'm told this might have been brought on by a masturbation habit, where I'm excessively touching that particular side. Since I've refrained from doing that, I've noticed an improvement, but it's hard to say if this is a result of my actions or simply the condition temporarily going away. I've been diagnosed with epididymitis before, but no medication/antibiotic has worked in the past. Due to complete lack of competence in my hospital, I've never been able to get a direct referral to a urologist, hence I've never had an ultrasound or any advanced screening. I have been told before by a few doctors that have felt around that so far it appears to be nothing serious. This has been coming and going for well over a year now, but so far since I've changed my "habits", I haven't noticed any actual pain or discomfort worth noting.

*Frequent urination and nocturia. Started happening about 3 weeks ago.

*Radiating discomfort in the penis, pelvis, legs, and other areas below the belt. No severe pain or anything painful, but uncomfortable enough to be considered irregular. This started happening last week.

*Possibly unrelated: Small cyst (what I assume to be a cyst based on the appearance and palpable consistency) on the shaft of the penis. It's very unusual because it is only visible whenever I have an erection, and even then it's not always there. It's almost as if it vanishes and comes back. I'm told this can happen with cysts (confirm/deny?), but it seems really unusual. It isn't painful/uncomfortable, except whenever pressure is applied or it's "moved" around. I've had this for a long time, maybe about a year, but it hasn't seemed noteworthy until everything else came up due to the seemingly harmless nature of the cyst.

So far, interstitial cystitis explains all of the urological symptoms. I've been told by family that it's just anxiety and I'm probably overreacting. It's hard to look at the situation with a cool perspective because I'm a 19 year-old virgin, and the prospect of cancer and/or the amputation of any sexual organ is the most terrifying thing to me, especially since that would mean a life without sex.

I realize I'm probably ranting at this point and I apologize, but everything I'm experiencing right now has me in a constant state of distress. Not because of any outrageous or unbearable pain, but simply the fear of the unknown.

Reply Flag this Discussion

7 Replies:

  • Okay, I have a number of things plaguing my mind right now:*Experiencing symptoms of epididymitis. I have had a discomfort and tenderness in my right testicle for over a year. There isn't any strong pain, but I am left on occasion with an ache in the chest, as if kicked in the groin. Seems like that's possibly psychological, as I only feel that way if I'm aware of any pain. The symptoms seem to come and go, and can last a few weeks or up to a month. I'm told this might have been brought on by a masturbation habit, where I'm excessively touching that particular side. Since I've refrained from doing that, I've noticed an improvement, but it's hard to say if this is a result of my actions or simply the condition temporarily going away. I've been diagnosed with epididymitis before, but no medication/antibiotic has worked in the past. Due to complete lack of competence in my hospital, I've never been able to get a direct referral to a urologist, hence I've never had an ultrasound or any advanced screening. I have been told before by a few doctors that have felt around that so far it appears to be nothing serious. This has been coming and going for well over a year now, but so far since I've changed my "habits", I haven't noticed any actual pain or discomfort worth noting.*Frequent urination and nocturia. Started happening about 3 weeks ago.*Radiating discomfort in the penis, pelvis, legs, and other areas below the belt. No severe pain or anything painful, but uncomfortable enough to be considered irregular. This started happening last week.*Possibly unrelated: Small cyst (what I assume to be a cyst based on the appearance and palpable consistency) on the shaft of the penis. It's very unusual because it is only visible whenever I have an erection, and even then it's not always there. It's almost as if it vanishes and comes back. I'm told this can happen with cysts (confirm/deny?), but it seems really unusual. It isn't painful/uncomfortable, except whenever pressure is applied or it's "moved" around. I've had this for a long time, maybe about a year, but it hasn't seemed noteworthy until everything else came up due to the seemingly harmless nature of the cyst.So far, interstitial cystitis explains all of the urological symptoms. I've been told by family that it's just anxiety and I'm probably overreacting. It's hard to look at the situation with a cool perspective because I'm a 19 year-old virgin, and the prospect of cancer and/or the amputation of any sexual organ is the most terrifying thing to me, especially since that would mean a life without sex.I realize I'm probably ranting at this point and I apologize, but everything I'm experiencing right now has me in a constant state of distress. Not because of any outrageous or unbearable pain, but simply the fear of the unknown.please help me
    Anonymous 42789 Replies
    • November 21, 2008
    • 10:05 AM
    • 0
    Flag this Response
  • Anxiety can cause frequent urination, but does not cause bladder pain!!! And you are NOT overreacting. You are having symptoms that are causing you concern and you are looking for answers. It is normal to be anxious when you think there is something wrong with you. I wish I had been so proactive when I was your age. I have interstitial cystitis. I began having symptoms that came and went as a child and the doctors who treated me told my parents that basically it was all in my head or that I had an anxious bladder. I accepted my symptoms for years because they were annoying and intermittent, but not painful. I finally got help when I started experiencing pain last year,and within a few months had the symptoms under control. Now I am virtually symptom free - as long as I follow dietary restrictions and stay on my medications and supplements. Many of your symptoms DO fit, but you need to get an accurate diagnosis by a urologist. Symptoms may fluctuate in intensity or duration and you may experience symptom free periods. For many IC is a manageable condition with dietary and lifestyle changes, supplements and the right medications. To my knowledge, IC does not increase one's chances of bladder cancer. However, untreated, symptoms can increase and the bladder can sustain damage. These are good websites to visit: http://www.ic-network.com/http://www.ichelp.org/ Good luck. And don't quit searching until you find answers to explain your symptoms and treatment to alleviate them. There is no reason to suffer!!!
    jenmar 6 Replies
    • November 21, 2008
    • 04:35 PM
    • 0
    Flag this Response
  • Anxiety can cause frequent urination, but does not cause bladder pain!!! And you are NOT overreacting. You are having symptoms that are causing you concern and you are looking for answers. It is normal to be anxious when you think there is something wrong with you. I wish I had been so proactive when I was your age. I have interstitial cystitis. I began having symptoms that came and went as a child and the doctors who treated me told my parents that basically it was all in my head or that I had an anxious bladder. I accepted my symptoms for years because they were annoying and intermittent, but not painful. I finally got help when I started experiencing pain last year,and within a few months had the symptoms under control. Now I am virtually symptom free - as long as I follow dietary restrictions and stay on my medications and supplements. Many of your symptoms DO fit, but you need to get an accurate diagnosis by a urologist. Symptoms may fluctuate in intensity or duration and you may experience symptom free periods. For many IC is a manageable condition with dietary and lifestyle changes, supplements and the right medications. To my knowledge, IC does not increase one's chances of bladder cancer. However, untreated, symptoms can increase and the bladder can sustain damage. These are good websites to visit: http://www.ic-network.com/http://www.ichelp.org/ Good luck. And don't quit searching until you find answers to explain your symptoms and treatment to alleviate them. There is no reason to suffer!!!
    jenmar 6 Replies
    • November 21, 2008
    • 04:55 PM
    • 0
    Flag this Response
  • Try here: http://www.wrongdiagnosis.com/e/epididymitis/symptoms.htm Get someone to take a photo of your "cyst" & go to your doctor with it. Make an appointment right away-- just to make sure nothing serious is happening. It will ease your mind.
    aquila 1263 Replies
    • November 21, 2008
    • 05:35 PM
    • 0
    Flag this Response
  • Thank you for your responses. Just having people read and reply alone gives some solace.Currently, I've been trying to see urologists, but there are a lot of complications in getting referrals and merely being seen by specialists. I will have to be very firm with the doctors it seems.The more I read about IC, the more apparent it seems that I might have it. I have experienced nearly every symptom at some point. I've already prepared for such a diagnosis, and to be honest, it doesn't bother me. As long as I can live and my life is not at risk, I'm ready to endure.
    CraigBond 2 Replies
    • November 22, 2008
    • 04:15 AM
    • 0
    Flag this Response
  • Thanks for the help. I really appreciate the responses.About the cyst, it seems to leave and come back. Sometimes it's there, sometimes it's not. Is this normal? Or is it something worth worrying about?
    CraigBond 2 Replies
    • November 22, 2008
    • 08:23 AM
    • 0
    Flag this Response
  • Be very firm with your doctors. Tell them how your symptoms are painful and interfering with your quality of life and you want to know exactly what is wrong so it can be treated appropriately. You deserve that. Best of luck to you!
    jenmar 6 Replies
    • November 23, 2008
    • 03:19 AM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.