Discussions By Condition: I cannot get a diagnosis.

I have been so sick for so long

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: Anonymous
  • August 11, 2007
  • 01:24 AM

I got sick in Jan of 2006. I was on my way home from work a 50 mile drive, usually about an hour away, it took my about 2 and a half hours that day I had to stop every 4to 5 miles to throw up. It was the worst thing I had ever experienced I could not believe it, what was wrong with me? A few days later I had to call from work for a ride home because I was having double vision, this lasted about 2 weeks, I decided it must be time to see a doctor. He sent me to an eye dr. who said "well yes you do need eye glasses but not for double vision just for near sightedness, the double vision is neurological", I thought you have got to be kidding me. Back to the dr I go! He then sends me to a neurologist who does several tests everything from an MRI to an EEG to a Sleep Study only to tell me that its not neurological. Well of course its not how could it be? By this time the vision has cleared up and I feel ok just a little fatigued (probably from all the crap they have just put me through only to tell me that there is nothing wrong with me). My job transfers me closer to home since I have been so sick, I no sooner get settled in at this location and I start have uncontrollable seizures, (now remember that there was nothing wrong with me), a second neurologist sends me on for an EKG and I have a seizure on their EKG table, they hospitalize me, oh goody, they have to put me into a medication induced coma to get these seizures under controll and life flight me to a hospital where they can do long term monitering to find out if these are epileptic seizures or not. This is getting rediculous. I have numbness and tingling in the right side of my body, I have aches and severe pain in my hips, knees, ankles, hands, and fingers, I have dizziness, fatigue, nausea, vomiting, severe migraines, numbness in my hands, loss of balance, and now am suffering from some sort of memory confusion and behavior changes. Yet after seeing about 13 doctor including 4 different mental health professionals not one single person can figure out what it is that wrong with me. I am not crazy, they have ruled that out.

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6 Replies:

  • Get tested for Lyme disease and if that comes back negative have them do a CT of you brain. Any sign of inflammation could indicate Lyme's. There is, unfortunately, no one definitive diagnostic test for lyme's. It depends on where you are in the infection process. A friend of mine had symptoms similar to yours and he had Lyme's and I saw a case very similar to this about 2 weeks ago on a TV program about mystery diagnoses. He went to a rheumatologist who saved his life. You may not even remember having a tick because they can be as small as the period at the end of this sentence and they drop off when full. You may not have ever known. It may not be this, I'm not a doctor, but it's worth checking out. Good luck.
    KatieRose 29 Replies
    • August 11, 2007
    • 11:43 PM
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  • I have little knowledge of lupus, but you may want to look it up. It can account for most, if not all, of your symptoms. But potential symptoms of lupus are very broad, so consider it with a grain of salt. At the same time, in a time of desparation, it may be worth looking in to. Good luck!
    lsoroosh 51 Replies
    • August 13, 2007
    • 06:28 AM
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  • Dear Original Poster.....Below is a list of symptoms of chronic fatigue syndrome....yours are highlighted in red...hope this helps...Find NAET/Bioset therapy...accupressure. I have CFS and have gone for 6 treatments...my sx are 90% better. It works and there are practicioners all over the world...traditional docs just give you a diagnosis and some meds to "mask" symptoms. I am not the only one in this forum recommending NAET/Bioset.........it works!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Sore throat, chills, sweats, low body temperature, low grade fever, lymphadenopathy, muscle weakness (or paralysis), muscle pain, muscle twitches or spasms,numbness/tingling gelling of the joints, hypoglycaemia, hair loss, nausea, vomiting, vertigo, chest pain, cardiac arrhythmia, resting tachycardia, orthostatic tachycardia, orthostatic fainting or faintness, circulatory problems, opthalmoplegia, eye pain, photophobia, blurred vision, wavy visual field, and other visual and neurological disturbances, hyperacuity, tinnitus, alcohol intolerance, gastrointestinal and digestive disturbances, allergies and sensitivities to many previously well-tolerated foods, drug sensitivities, stroke-like episodes,fatigue, nystagmus, difficulty swallowing, weight changes, paresthesias, polyneuropathy, proprioception difficulties, myoclonus, temporal lobe and other types of seizures, an inability to maintain consciousness for more than short periods at a time, confusion, disorientation, spatial disorientation, disequilibrium, breathing difficulties, emotional lability, sleep disorders; sleep paralysis, fragmented sleep, difficulty initiating sleep, lack of deep-stage sleep and/or a disrupted circadian rhythm. Neurocognitive dysfunction may include cognitive, motor and perceptual disturbances. Cognitive dysfunction may be pronounced and may include; difficulty or an inability to speak (or understand speech), difficulty or an inability to read or write or to do basic mathematics, difficulty with simultaneous processing, poor concentration, difficulty with sequencing and problems with memory including; difficulty making new memories, difficulty recalling formed memories and difficulties with visual and verbal recall (eg. facial agnosia). There is often a marked loss in verbal and performance intelligence quotient (IQ).
    mommy cat 1654 Replies
    • August 13, 2007
    • 06:54 PM
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  • Just to let you know...I had several tests that came back "normal" which was very strange.....there was NOTHING "normal" about how sick I was. I had MRI...CT Scan....EEG...ect....all normal yet I was having "neurological" problems.... Best of luck.....mommy cat
    mommy cat 1654 Replies
    • August 13, 2007
    • 06:57 PM
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  • I was tested for lyme disease, now mind you when I say that the did one test (even I know that, that is not enough to rule this out) and it was ruled out. I was tested for all types of poisons (yes they thought that my husband, my mother, or maybe even my mother in law was poisoning me, we are a very close family) all came back negative. I was tested for MS, I was tested for Lupus, I was given a psychiciatric evaluation (by the way no I am not a crazy person nor am I making up my illness). I do have chronic fatigue but I also have insomnia at some points. I have found that the testing that they have done (other than the poisoning) is inconclusive. You cannot diagnose Lyme disease, lupus, or MS off of one test it takes several tests, all of your medical history, and time to make a correct diagnosis, and yet all of these have been ruled out for me. There are days when I feel like I am loosing my mind and there are days when I feel like my doctors are no smarter than the cute guy in the burger king commercial costumes. I appreciate everyones help I have used all of your information to look up these diseases on the internet and dig up all the information that I could, I am going to compile as much information as I can and take it one at a time to be ruled out for sure by my doctors. Thank you anything else you got will be helpful.
    Anonymous 42789 Replies
    • August 14, 2007
    • 04:38 PM
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  • Have you tested for candida? If your colon is full of junk, then perhaps the bacteria and stuff is causing you chronic fatigue as nutrients cant be absorbed properly. Have you tried colon cleansing before? Candida/overgrowth of yeast can also lead to the problems you're saying.
    Anonymous 42789 Replies
    • August 15, 2007
    • 06:38 AM
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