Discussions By Condition: I cannot get a diagnosis.

I have been intolerant to heat almost my entire life. I am 52. It is getting worse now that I am g

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • July 11, 2015
  • 05:21 PM

I can't get too hot or I break out in hives, turn red, and have fainted in the past. It it worse now that I am in pre-menopause. I can't even control if I get hot now. I am 52 and this started in my teens. Sun heat is the hardest on me. I have read other posts on this subject, gone to a couple doctors and am coming to the sad realization that I will die with this condition without ever having a diagnosis or successful treatment for it. I am a freak of nature. I love gardening, hiking and really have been a prisoner of this condition my whole life. I am a healthy person other than this issue. I am aging pretty well, not overweight, eat right. I just can't enjoy the outdoors when it is even warm out. High 60s is too hot if I am in the sun.

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  • Check for Hep C. That's what caused my reactions to heat. 70% of new cases come from our age group. I was infected 45 years ago and it's coming out now. Good news is that Gilead pharm has new meds that cure it 98% of the time. The meds are expensive but they will give them to you if you are low income / uninsured. A simple test for urine Ammonia will tell you if your liver is failing and hepatitis is the probably culprit. If you volunteer to donate blood they will let you know if you have Hepatitis ...and there are at home test for $8. But I would recommend a 10 panel STD check for $ 200, you don't need a dr just order online and go to LabCorp and they draw your blood. DO NOT waste time... the AVERAGE cost of a liver transplant is $540,000 IF IF IF you can get on the list. They only do 6,000 a year and 3.5 million Americans are infected with Hepatitis.
    Anonymous 1 Replies
    • October 23, 2015
    • 08:48 PM
    • 0
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  • Have a muscle biopsy done ASAP to check for Malignant Hyperthermia - it's a deadly disease that reacts to certain anesthesia. It causes your blood to boil snd subsequently, your organs shut down. MHAUS released a study about 2 years ago connections increased heat stroke with MH. If you don't find out, please be careful if you ever have to have surgery!!
    Anonymous 1 Replies
    • December 21, 2015
    • 08:27 AM
    • 0
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