My names Megan, i'm 18 years old and i am so sick and tired of being passed around from doctor to doctor, going to hospital to hospital, seeing one specialist after another and no direct cause/diagnosis
So far, i had colitis (ulcerous), i ended up with really bad keratitis in both
eyes near the end of summer and am still having problems, i had severe sinusitisbut had sinus surgery in June 2008 for it, i have thyroid problems and a nodule on my thyroid
Ok this is one of the worst- i'm loosing my teeth. they're literally decaying, mainly from the inside out. I've tried really hard to make it stop and 2 dentists i've seen at the university of MD dental school have done everything they can to stop it, but nothings working. So far, i've had to have 2 back teeth pulled out and were seriously infected, while the others are chipping off if i eat and forget to be careful, ect. I don't have a choice but to eventually get teeth implants.
. slight hair loss/ thinning of hair
. eye pupils are continously dilated no matter how light/ dark it is
. random joint swelling/ redness ( mostly in fingers, toes and feet )
. excessive sweating ( on/off sort of randomly )
. numbness in hands and mostly fingertips
. every week i can see another vein appear from under my skin
. occasional periods of insomnia
. constant low grade fever ( usually around 99.5 )
. sudden paleness ( i'm pretty pale anyway, but people have even seen me suddenly go really pale )
. there's been a few days at-a-time with really bad dark circles around my eyes, almost looks like bruising
. noticably worsening of motor skills/ balance
I've been to nearly EVERY specialist doctor there is. I even went to a cardiologist, and was told my heart beat is that of an infant's, but they found no actual heart problems. The cardiologist explained that when something 'bad' is going on in the body, the heart has to work harder- which is what he thinks is going on in my case. It was September when i saw him and my heart rate is getting faster, i can even feel my heart palpitate in unstressful or otherwise unexciting times.
Doctors have tested me for:
- Sjorgens syndrome
- Crohns disease
- Lyme disease ( tested only once )
all have come back negative. i had different ways to test for these diseases done, all negative.
I've pretty much missed my entire senior year because i'm sick. i feel so incredibly fustrated i scream.
if any one can help me or anything else, my email is firstname.lastname@example.org
Recognize the risks associated with Crohn’s disease.
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