Discussions By Condition: I cannot get a diagnosis.

I feel like my body is being attacked!

Posted In: I cannot get a diagnosis. 23 Replies
  • Posted By: pnut 26
  • September 21, 2009
  • 03:33 PM

I have had difficulty with my health as long as I can remember however within the last few years things have gotten a lot worse. I have seen many specialists and they are starting to think I am just a nut, but that is not the case. I know when something is wrong with my body, anyone out there does, even an infant who is unable to produce words. I believe my health issue started from age 4, where I experienced horrendous knee pains, so bad I wouldn't sleep at night, my mother would do anything she could but nothing helped, Doctors told her I was experiencing growing pains. I was diagosed with a hypo thyroid, hashimotos disease, and thyroid cancer between the ages of 6-8. Through my younger years infant and up I was always sick anytime a bug was around I was sure to have it, still this way today. Nothing has changed from my younger years except for the worse. Just within the last 4 years I started noticing an array of symtoms which I still struggle with today. My knee pain, doctors threw off as growing pains still disable me, I cannot even make it up a flight of stairs with out almost being in tears, trust me it really is that bad. Yet they still argue it is growing pains but i am 20 years old and have not grown since I was 15! I started getting dizzzy spells and vertigo around the age of 15-16 and again doctors pushed it off and tried telling me I was anorexic, I was roughly 120lbs and ate regulary! I then started noticing numbness and tingling in my elbows down to my wrist, which led thm to belive possible carpal tunnel, but I tested negative. The numbness and tingling then began in my legs, doctors say nothing everytime I bring up the issue. My mother was the one to point out my next symtom which is my hands. They turn gray to almost black at times, most people who see this which is everyone I know will say they look dead and its true they do. The problem is it happens all the time whether im hot, cold, stressed, happy, anytime. I have brought the issue up to doctors and they just stare at me and never even said what it could be or even gave me a sign that its nothing to worry about. I then started getting more joint pains including my wrists elbows, shoulders, hips, ankles, even my fingers, and jaw. I was sent to a rhematoid specialists who ordered a bone scan. EVERY SINGLE PLACE I COMPLAINED ABOUT "lit up" and guess what, again no words from any of my doctors. what does this mean when bones light up anyone know??! I then started having trouble with my nervouse system such as: tremors in hands ( i look like an elderly person with parkinsons disease), constant itching all over my body, electrical shock sensations, and still the numbness and tingling. My muscles are also going haywire, I am not able to stay in a one position for any given time, I cannot keep a fist or sit on a leg or anything because my muscle stiffen to the point it takes all my pain tolerance to move. I cannot sleep at night. I am falling desperately behind in college, I cannot even write papers anymore. My lack of concentration, and this disability I started where I cannot get the words from my brain to process to the paper. I am so affraid to talk to people I do not know and I use to be so outgoing however when i talk I constantly mix my words up sometimes so badly what comes out sounds like jibberish. I have problems with my vision field where i see these dots all day everyday, a doctor told me "youll grow out of it" when i go from being in the sunlight into my house my vision blackens for seconds and comes back. I expeirence blurry, double vision and have trouble focusing on words. I suffer from migraines, and am on medication for them. I also was diagnosed with Irritable Bowel Syndrome, because everytime I eat no matter what i eat my stomache cramps to the point im bent over crying, and then I get diareha. I am constantly bloated i mean huge, the size of a woman who is about 6 months prgnant at least. it is very embarrassing. I also was told I have overactive bladder syndrome and am on a gel for that, but why am I facing these problems what is causing all thi. I am 20 and my doctor a urologist specialist tells me "i have never seen anyone so young with overactive bladder" so why didnt he investigate. I have acid reflux which im also on medicine for and trouble swallowing likely from the acid reflux. I experience the worst abdominal pains they hit suddenly and disapate within minuets. Someone out there please shine some light on me. I have been suffering for so long and doctors just do not have faith in what I am saying nor do I have any faith left for doctors. If you can help or relate please let me know I am a 20 year old female, and I am at the point where I could be told anything is wrong with me and I would not care, so long as I know what it is causing my body to act the way it is. can anyone heelp?!? PLease.

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23 Replies:

  • The tingling, numbness, black hands, weakness, fatigue, frequent urination, vision problems are signs of Diabetes, you should get tested if you haven't. Having Diabetes also puts you at a greater risk for bone and joint disorders.
    kesaiserris 35 Replies
    • September 21, 2009
    • 09:27 PM
    • 0
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  • thanks for your concern! i have already been tested for diabetes however and tested negative.
    pnut 26 7 Replies
    • September 21, 2009
    • 09:31 PM
    • 0
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  • thanks for your concern! i have already been tested for diabetes however and tested negative.they did your fasting glucose too? Do you maybe have some type of blockage? Poor circulation generally? Do you have sores or ulcers that don't heal?
    kesaiserris 35 Replies
    • September 22, 2009
    • 10:19 AM
    • 0
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  • Yes to the fasting glucose. However, I am unware of any blockage or circulation issues. I have had an echo. done before and showed no blockage there. Circulation my parents and I discussed, but nothing was said by the doctor. Thank you so much for your help.
    pnut 26 7 Replies
    • September 22, 2009
    • 01:59 PM
    • 0
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  • Please for your own good visit cpnhelp.org. I am 30 and I started have the same problems when I was 27. This website will explain everything. These docters today are useless. There are very few docters that will take the time and patience to really investigate whats going on. Its a scary thing but take charge of your body and you will get better. My name is Lee and you can email me on cpnhelp.org if you have any questions.
    Anonymous 42789 Replies
    • September 22, 2009
    • 02:09 PM
    • 0
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  • Yes to the fasting glucose. However, I am unware of any blockage or circulation issues. I have had an echo. done before and showed no blockage there. Circulation my parents and I discussed, but nothing was said by the doctor. Thank you so much for your help.Sorry I can't be more help this page has a few things that cause the hands to turn colors don't know if anything here sounds like youhttp://www.nlm.nih.gov/medlineplus/ency/article/003249.htmI also saw before Hyperviscosity Syndrome which is associated most often with Waldenström macroglobulinemia (which almost always occurs in old men so that seemed unlikely for you) and in multiple myeloma (particularly IgA and IgG3). High cell counts are seen in conditions such as polycythemia (raised red blood cells) or leukemia (more white blood cells, especially in acute leukemic blast crises).It seems like you've been through the ringer so I would think lots of blood tests have been taken to check platelets, rbcs, wbcs so I think this seems unlikely to be missed but hey just encase.
    kesaiserris 35 Replies
    • September 22, 2009
    • 02:14 PM
    • 0
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  • I am definitley going to check out everything you metioned. again thank you so much for all the information and time! it really means a lot to me. :)
    pnut 26 7 Replies
    • September 23, 2009
    • 03:40 AM
    • 0
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  • Hi Lee thank you for you insight I will be sure to check this site out. I agree 100% with you the doctors today are just horrifying, and things are only going to get worse! I am doing everything I possibly can to find out what is going on with my body, one big thing i noticed these doctors are doing is treating patients symptoms seperately when all the symptoms could be linked! Again thank you every reply I get through here gives me even more hope.
    pnut 26 7 Replies
    • September 23, 2009
    • 03:45 AM
    • 0
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  • Hi Lee thank you for you insight I will be sure to check this site out. I agree 100% with you the doctors today are just horrifying, and things are only going to get worse! I am doing everything I possibly can to find out what is going on with my body, one big thing i noticed these doctors are doing is treating patients symptoms seperately when all the symptoms could be linked! Again thank you every reply I get through here gives me even more hope.Goodluck, let us know if you find out anything :)
    kesaiserris 35 Replies
    • September 23, 2009
    • 05:52 AM
    • 0
    Flag this Response
  • i have had difficulty with my health as long as i can remember however within the last few years things have gotten a lot worse. I have seen many specialists and they are starting to think i am just a nut, but that is not the case. I know when something is wrong with my body, anyone out there does, even an infant who is unable to produce words. I believe my health issue started from age 4, where i experienced horrendous knee pains, so bad i wouldn't sleep at night, my mother would do anything she could but nothing helped, doctors told her i was experiencing growing pains. I was diagosed with a hypo thyroid, hashimotos disease, and thyroid cancer between the ages of 6-8. Through my younger years infant and up i was always sick anytime a bug was around i was sure to have it, still this way today. Nothing has changed from my younger years except for the worse. Just within the last 4 years i started noticing an array of symtoms which i still struggle with today. My knee pain, doctors threw off as growing pains still disable me, i cannot even make it up a flight of stairs with out almost being in tears, trust me it really is that bad. Yet they still argue it is growing pains but i am 20 years old and have not grown since i was 15! I started getting dizzzy spells and vertigo around the age of 15-16 and again doctors pushed it off and tried telling me i was anorexic, i was roughly 120lbs and ate regulary! I then started noticing numbness and tingling in my elbows down to my wrist, which led thm to belive possible carpal tunnel, but i tested negative. The numbness and tingling then began in my legs, doctors say nothing everytime i bring up the issue. My mother was the one to point out my next symtom which is my hands. They turn gray to almost black at times, most people who see this which is everyone i know will say they look dead and its true they do. The problem is it happens all the time whether im hot, cold, stressed, happy, anytime. I have brought the issue up to doctors and they just stare at me and never even said what it could be or even gave me a sign that its nothing to worry about. I then started getting more joint pains including my wrists elbows, shoulders, hips, ankles, even my fingers, and jaw. I was sent to a rhematoid specialists who ordered a bone scan. Every single place i complained about "lit up" and guess what, again no words from any of my doctors. What does this mean when bones light up anyone know??! I then started having trouble with my nervouse system such as: Tremors in hands ( i look like an elderly person with parkinsons disease), constant itching all over my body, electrical shock sensations, and still the numbness and tingling. My muscles are also going haywire, i am not able to stay in a one position for any given time, i cannot keep a fist or sit on a leg or anything because my muscle stiffen to the point it takes all my pain tolerance to move. I cannot sleep at night. I am falling desperately behind in college, i cannot even write papers anymore. My lack of concentration, and this disability i started where i cannot get the words from my brain to process to the paper. I am so affraid to talk to people i do not know and i use to be so outgoing however when i talk i constantly mix my words up sometimes so badly what comes out sounds like jibberish. I have problems with my vision field where i see these dots all day everyday, a doctor told me "youll grow out of it" when i go from being in the sunlight into my house my vision blackens for seconds and comes back. I expeirence blurry, double vision and have trouble focusing on words. I suffer from migraines, and am on medication for them. I also was diagnosed with irritable bowel syndrome, because everytime i eat no matter what i eat my stomache cramps to the point im bent over crying, and then i get diareha. I am constantly bloated i mean huge, the size of a woman who is about 6 months prgnant at least. It is very embarrassing. I also was told i have overactive bladder syndrome and am on a gel for that, but why am i facing these problems what is causing all thi. I am 20 and my doctor a urologist specialist tells me "i have never seen anyone so young with overactive bladder" so why didnt he investigate. I have acid reflux which im also on medicine for and trouble swallowing likely from the acid reflux. I experience the worst abdominal pains they hit suddenly and disapate within minuets. Someone out there please shine some light on me. I have been suffering for so long and doctors just do not have faith in what i am saying nor do i have any faith left for doctors. If you can help or relate please let me know i am a 20 year old female, and i am at the point where i could be told anything is wrong with me and i would not care, so long as i know what it is causing my body to act the way it is. Can anyone heelp?!? Please.check out dr. Stephen lewis at the aim program!!!!
    Anonymous 42789 Replies
    • September 23, 2009
    • 11:57 AM
    • 0
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  • What medication are you taking,how long have you been taking the medicine and what is the medication for? Need to know this first. Thank You!
    Anonymous 42789 Replies
    • February 14, 2010
    • 05:48 PM
    • 0
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  • You are so right about the doctors, they don't take the time to listen,write down the correct info.,refer when they're not qualified and to really process when they get back all the tests. You need to get a copy of your visit, as soon as possible so you can bring it to their attention if they're any mistakes. Get copies of blood work and x-rays. They don't keep them for ever. This way you can compare!! Very important.. I found out the hard way. The government needs to stay out and let the doctors practice instead of focusing on all the red tape,codes, fighting with insurances ect.
    Anonymous 42789 Replies
    • February 14, 2010
    • 06:03 PM
    • 0
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  • I'm almost certain that this is Borreliosis. It is often mistaken for Lyme Disease, but is not the same thing. Borreliosis is an infectious bacterial disorder that is transmitted by ticks and causes skin rashes joint swelling and other symptoms similar to the flu. Borrelia bacteria have been isolated from insects (such as sand flies and fleas), and from stored semen, milk, urine, other body fluids and faecal matter. However, much more study needs to be done to establish if these are modes of transmission. The symptoms of Borreliosis can be non-specific and they can wax and wane. Clinical infection can resemble other conditions and some patients have been previously misdiagnosed with such conditions as Glandular Fever (Epstein-Barr Virus), Chronic Fatigue Syndrome / ME, Multiple Sclerosis, Motor Neurone Disease / ALS, Alzheimer's and Parkinson's Disease, Lupus and Viral Meningitis. Treatment can often make the patient worse before they get better. This is called a "Jarisch-Herxheimer" reaction. Currently there is no vaccine available and much more study into the nature of Borrelia bacteria needs to be done to allow for the creation of a safe and reliable vaccine for all the strains. The US vaccine LYMErix was used but it was subsequently withdrawn.
    aleasha89 34 Replies
    • February 14, 2010
    • 07:19 PM
    • 0
    Flag this Response
  • I have been on multiple medications, however, none of them were helping. Currently I take synthroid for my thyroid condition its 300mg I have been taking it since - was 6 years old which makes it 14 years now, however, the dose has changed many times.
    pnut 26 7 Replies
    • February 16, 2010
    • 05:18 AM
    • 0
    Flag this Response
  • I am definitley going to look into that disease any advice or suggestions are extrmely helpful thanks you everyone.
    pnut 26 7 Replies
    • February 16, 2010
    • 05:21 AM
    • 0
    Flag this Response
  • I have had difficulty with my health as long as I can remember however within the last few years things have gotten a lot worse. I have seen many specialists and they are starting to think I am just a nut, but that is not the case. I know when something is wrong with my body, anyone out there does, even an infant who is unable to produce words. I believe my health issue started from age 4, where I experienced horrendous knee pains, so bad I wouldn't sleep at night, my mother would do anything she could but nothing helped, Doctors told her I was experiencing growing pains. I was diagosed with a hypo thyroid, hashimotos disease, and thyroid cancer between the ages of 6-8. Through my younger years infant and up I was always sick anytime a bug was around I was sure to have it, still this way today. Nothing has changed from my younger years except for the worse. Just within the last 4 years I started noticing an array of symtoms which I still struggle with today. My knee pain, doctors threw off as growing pains still disable me, I cannot even make it up a flight of stairs with out almost being in tears, trust me it really is that bad. Yet they still argue it is growing pains but i am 20 years old and have not grown since I was 15! I started getting dizzzy spells and vertigo around the age of 15-16 and again doctors pushed it off and tried telling me I was anorexic, I was roughly 120lbs and ate regulary! I then started noticing numbness and tingling in my elbows down to my wrist, which led thm to belive possible carpal tunnel, but I tested negative. The numbness and tingling then began in my legs, doctors say nothing everytime I bring up the issue. My mother was the one to point out my next symtom which is my hands. They turn gray to almost black at times, most people who see this which is everyone I know will say they look dead and its true they do. The problem is it happens all the time whether im hot, cold, stressed, happy, anytime. I have brought the issue up to doctors and they just stare at me and never even said what it could be or even gave me a sign that its nothing to worry about. I then started getting more joint pains including my wrists elbows, shoulders, hips, ankles, even my fingers, and jaw. I was sent to a rhematoid specialists who ordered a bone scan. EVERY SINGLE PLACE I COMPLAINED ABOUT "lit up" and guess what, again no words from any of my doctors. what does this mean when bones light up anyone know??! I then started having trouble with my nervouse system such as: tremors in hands ( i look like an elderly person with parkinsons disease), constant itching all over my body, electrical shock sensations, and still the numbness and tingling. My muscles are also going haywire, I am not able to stay in a one position for any given time, I cannot keep a fist or sit on a leg or anything because my muscle stiffen to the point it takes all my pain tolerance to move. I cannot sleep at night. I am falling desperately behind in college, I cannot even write papers anymore. My lack of concentration, and this disability I started where I cannot get the words from my brain to process to the paper. I am so affraid to talk to people I do not know and I use to be so outgoing however when i talk I constantly mix my words up sometimes so badly what comes out sounds like jibberish. I have problems with my vision field where i see these dots all day everyday, a doctor told me "youll grow out of it" when i go from being in the sunlight into my house my vision blackens for seconds and comes back. I expeirence blurry, double vision and have trouble focusing on words. I suffer from migraines, and am on medication for them. I also was diagnosed with Irritable Bowel Syndrome, because everytime I eat no matter what i eat my stomache cramps to the point im bent over crying, and then I get diareha. I am constantly bloated i mean huge, the size of a woman who is about 6 months prgnant at least. it is very embarrassing. I also was told I have overactive bladder syndrome and am on a gel for that, but why am I facing these problems what is causing all thi. I am 20 and my doctor a urologist specialist tells me "i have never seen anyone so young with overactive bladder" so why didnt he investigate. I have acid reflux which im also on medicine for and trouble swallowing likely from the acid reflux. I experience the worst abdominal pains they hit suddenly and disapate within minuets. Someone out there please shine some light on me. I have been suffering for so long and doctors just do not have faith in what I am saying nor do I have any faith left for doctors. If you can help or relate please let me know I am a 20 year old female, and I am at the point where I could be told anything is wrong with me and I would not care, so long as I know what it is causing my body to act the way it is. can anyone heelp?!? PLease.So.. I'm updating. Everything is getting worse - thought it would get better but its getting worse nd I'm losing hope. Let me explain.. I went to dr.s found out have an immune disorder which is being treated and luckily I am not sick all the time anymore. But everything thing else is worse. My pain has intensified, my hands are always a strange color nd people look at them like I'm a freak. My stomach problems got worse now when I get the pains it puts me into a hysterical cry that I can't control. My heart palipatations cause my eye to go blurry it literally feels as though my eye beats with my heart weird I know. Weird spots in eyes are worse. Consentration level worse. Making school really hard I try to pay attetion nd cannot I try to write pepers but this weird problem started happening where I cannot process the words I am thinking of to the paper they are stuck in my head I forget how to spell the simpleist words even my own name.. It has all gotten worse. Even my speech is worse I'm mixing up words more often nd its even more embarrassing especially at work. Dr.s want to test me for add or adhd but I have to wait till may nd by then my insurance will be dropped.. I fall nd can't figure out how it happened all I know is one minuet I'm standing nd the next I'm on the ground. My hearing is even getting worse I can't hear anyone ever nd make them repaet themselves multiple times. I usually feel as if my body is seperate from me like I'm standing watching me not knowing I'm doing what I'm doing. My muscles stiffin so badly if I keep them in a position for too long sleeping is horrible for my stiff muscles keep me up most the night. My tingling nd numbness is worse I can only sit for short periods of time or my legs will get too numb to walk. My skin is always itching I get electrical shock feelings often. My skin gets to tender to touch its like I am bruised but there is no bruise I coould go on. I try talking to my dr but its pointless he just thinks I'm nuts I told him how my hands are gwtting worse nd he tells me don't worry about you are fine. No I'm not fine my hands turn black this is not ok! I have nothing, noone. My family ignores when I complain about any symptoms nd tells me they don't want to hear about it. .y speialists tell me they feel as if something is going on and we need to get to the bottom of it nd to have my family dr examine all possibilities yet my family dr does nothing but call me crazy. I'm lost. I'm at the end of my rope. I just want answers. Why am I 20 living in. A 90 year olds life why do I pee 12 times a day why do I feel sick eveyday nd just feel like throwing up.my performance at work is horrible thank god for an understanding boss. I am constantly dropping stuff knocking things over misunderstanding customers nd forgetting everything, I have worked there for 5 years nd it feels like I just started nd I have always been a hard worker nd I used to be the best there.. I'm sick always nd just want to be better so I can live the life I have always dreamed of there has to be someone out there that can help me..
    pnut 26 7 Replies
    • February 16, 2010
    • 05:55 AM
    • 0
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  • Have you looked into Candida as a cause of your symptoms? It can be an underlying cause for many illnesses, it can be improved but it requires a strict diet of meat and vegetables, no starches or sugars allowed. Do some online research on Candida, also curezone.com is a good resource.I'm dealing with Candida myself after taking too many antibiotics. Best of luck!
    Anonymous 42789 Replies
    • February 25, 2010
    • 01:26 AM
    • 0
    Flag this Response
  • Unfortunatly your symptoms are a mirror of many types of diseases, My first thought immeditatly was a sugar metabolism problem like diabetes or hypoglycemic. I too tested normal and was hypoglycemic which also meant my sugar was going high then low sometimes it was not right after I ate. I have the tingling and numbness, dizzy spells, active bladder, aching joints (though not near to what yours are) I find through diet , excercise and vitmains a large modicum of relief besides stuffing down the pills and meds which are wonderfull chemical poisons what natural things have you tried for your body have you tried an organic vegy cleanse , getting off sugar, gluten, drink lots of water. have you tried any herbals ? The medical field makes billions off us on meds a year they dont want you to heal yourself naturally, I have a friend who takes over 40 pills a day (she has MS) but never once have they told her lose 100 pounds (she weighs about 280) when your hands are black and blue do you try some mild excercise and how is your lung capacity, do you smoke? You may have a heart valve problem or a clot (not to scare you but there are 100 things that can cause poor circulation), why tonight I even read about a person who had a disorder with not being able to metabolize iron and had way too much iron in thier system some of the problems read just like your the aching knees and joints. (it is a true condition that often goes undiagnosed) you cant absorb iron so it builds up and acts like poison in your system...I think finding a doctor who will take you serious and have a whole panel of tests including the cat scan, upper lower GI, thyroid, hormone levels etc. is your mens cycle normal?
    Anonymous 42789 Replies Flag this Response
  • So.. I'm updating. Everything is getting worse - thought it would get better but its getting worse nd I'm losing hope. Let me explain.. I went to dr.s found out have an immune disorder which is being treated and luckily I am not sick all the time anymore. But everything thing else is worse. My pain has intensified, my hands are always a strange color nd people look at them like I'm a freak. My stomach problems got worse now when I get the pains it puts me into a hysterical cry that I can't control. My heart palipatations cause my eye to go blurry it literally feels as though my eye beats with my heart weird I know. Weird spots in eyes are worse. Consentration level worse. Making school really hard I try to pay attetion nd cannot I try to write pepers but this weird problem started happening where I cannot process the words I am thinking of to the paper they are stuck in my head I forget how to spell the simpleist words even my own name.. It has all gotten worse. Even my speech is worse I'm mixing up words more often nd its even more embarrassing especially at work. Dr.s want to test me for add or adhd but I have to wait till may nd by then my insurance will be dropped.. I fall nd can't figure out how it happened all I know is one minuet I'm standing nd the next I'm on the ground. My hearing is even getting worse I can't hear anyone ever nd make them repaet themselves multiple times. I usually feel as if my body is seperate from me like I'm standing watching me not knowing I'm doing what I'm doing. My muscles stiffin so badly if I keep them in a position for too long sleeping is horrible for my stiff muscles keep me up most the night. My tingling nd numbness is worse I can only sit for short periods of time or my legs will get too numb to walk. My skin is always itching I get electrical shock feelings often. My skin gets to tender to touch its like I am bruised but there is no bruise I coould go on. I try talking to my dr but its pointless he just thinks I'm nuts I told him how my hands are gwtting worse nd he tells me don't worry about you are fine. No I'm not fine my hands turn black this is not ok! I have nothing, noone. My family ignores when I complain about any symptoms nd tells me they don't want to hear about it. .y speialists tell me they feel as if something is going on and we need to get to the bottom of it nd to have my family dr examine all possibilities yet my family dr does nothing but call me crazy. I'm lost. I'm at the end of my rope. I just want answers. Why am I 20 living in. A 90 year olds life why do I pee 12 times a day why do I feel sick eveyday nd just feel like throwing up.my performance at work is horrible thank god for an understanding boss. I am constantly dropping stuff knocking things over misunderstanding customers nd forgetting everything, I have worked there for 5 years nd it feels like I just started nd I have always been a hard worker nd I used to be the best there.. I'm sick always nd just want to be better so I can live the life I have always dreamed of there has to be someone out there that can help me..Hello,There is a condition that precipitates all the symptoms you are presenting with.There are some things you should do:In the morning when you first get out of bed, check your hands and feet, are they normal and warm, or cold.Do you have a dry itchy scalp on your right occiput?Do you have night sweats?Do you have a productive cough which increases with exercise?Do you have post nasal drip?Do you have unusual skin with occasional red spots appearing?Do you develope lumps in your armpits and groin that appear and then go away a day later?Ask your Doctor to test for high levels of Immuniglobin E, oesonophils and neutrophills.If that lab result for IGE is above 5000, you may have a medical condition called Mediastinal mass effect.It is possible that your immune system is attacking the Mediastinal mass and over time your IGE levels will get high enough to produce the associated symptoms you describe.These fatty masses are hard to see unless you have a CT scan of your mediastinum with a contrast dye.The lab test is simple and the result will lead your Dr down the right path.Good luck'
    Anonymous 42789 Replies Flag this Response
  • Omg, I feel like I am reading my own life. I pretty much have every symptom you have. Minus the hands turning colors. Does it feel like somebody punched you really hard even if you jsut scratch your arm or leg. It feels like I have gian t bruises and there is nothing there. I constantly have electrical pulses in my right shoulder and face. And behind my right eye just throbs so badly sometimes. I have difficulty with my eyes and hearing others. I can't focus on anything and I am constantly exhausted. I also have almost all of the symptoms the person who responded listed. I had the flu twice this year and just about every other illness that came down the pike. I am nauses all the time and fall quite often.. I have gained so much weight and can't seem to lose it. I had to have my tailbone removed due to pain which still hurts and I look like a 90 year old when I try to get up. I walk hunched over form being so stiff. I know how you are feeling, people think you are jsut a hypochondriac, but it so real. I am sick of living everyday in pain. I get my bone scan results Monday and I am a nervous wreck. Either it's going to be bad or they will say nothing is wrong with me like so many others have. I am going to suggest the tests that the other person suggested. I hope you feel better soon and we get some answers.
    Anonymous 42789 Replies Flag this Response
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