Discussions By Condition: I cannot get a diagnosis.

I feel like im dying and cant get answers!

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Anonymous
  • February 16, 2011
  • 05:20 PM

hey everyone. I'm new to this but I figured i'd see what everyone thought and/or can relate.

I'm a normal 27 yr old male, have played hockey all my life and been very active. I've always lead a very healthy happy life. Until one day in late 2009 when i was out shopping. I experienced a weird tunnel vision type event that started my heart racing and feelings like i was going to pass out. I was sweating and dizzy. Typical anxiety attack type stuff I know. I went to the ER had was given a clean bill of health.

The problem is, I know the difference between what feeling normal is like and what going through a severe anxiety attack is like. What i feel on the day to day is terrible, and not a 24 hour anxiety attack. I have tried to explain this to my doctors. I keep getting told its anxiety.

My symptoms are the following- dizziness periodically, a weird heavy feeling in my head, clouded vision with sometimes seeing little floating circles, feelings of passing out ( which are VERY intense sometimes), burning sensations in my hands and feet. Fatugue. Lack of diet. ( Ive lost about 15 pounds the past two months) I'm 5'10 and 140 pounds.
anxiety attacks every so often. Trouble focusing. Neck Pain and feelings of derealization where i feel like i am not in control of my body. In the past two months I have developed a weird thing where after 2 hours of being asleep, I am awoken to my body sweating and feeling like it is on fire. Its SO scary I cant even explain it to you. I know have to take .25 xanax before bed to try and avoid it. It still happens.

I know this is long and I appreciate anyone who has read it and can give me feedback. Since this all started in San diego in sept of 09 I have seen many doctors.

Oto-neurolgist- 2 MRI's of brain with and without contrast
Neurologist- 1 mri of cervical spine
ER- Spinal Tap, CT scan, Blood work
Endocrinologist- Bloodwork
ENT- tried to diagnose me with meineres disease? but was ruled out with no ringing in my ears.
Allergist- nothing out of the normal
Regular MD- bloodwork, lymes, mono- negative


Is there anything I am missing??? I cant take this anymore. I feel worse everyday like my body is slowly deteriorating. Please help and advise if you can-

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5 Replies:

  • hey everyone. I'm new to this but I figured i'd see what everyone thought and/or can relate.I'm a normal 27 yr old male, have played hockey all my life and been very active. I've always lead a very healthy happy life. Until one day in late 2009 when i was out shopping. I experienced a weird tunnel vision type event that started my heart racing and feelings like i was going to pass out. I was sweating and dizzy. Typical anxiety attack type stuff I know. I went to the ER had was given a clean bill of health.The problem is, I know the difference between what feeling normal is like and what going through a severe anxiety attack is like. What i feel on the day to day is terrible, and not a 24 hour anxiety attack. I have tried to explain this to my doctors. I keep getting told its anxiety.My symptoms are the following- dizziness periodically, a weird heavy feeling in my head, clouded vision with sometimes seeing little floating circles, feelings of passing out ( which are VERY intense sometimes), burning sensations in my hands and feet. Fatugue. Lack of diet. ( Ive lost about 15 pounds the past two months) I'm 5'10 and 140 pounds.anxiety attacks every so often. Trouble focusing. Neck Pain and feelings of derealization where i feel like i am not in control of my body. In the past two months I have developed a weird thing where after 2 hours of being asleep, I am awoken to my body sweating and feeling like it is on fire. Its SO scary I cant even explain it to you. I know have to take .25 xanax before bed to try and avoid it. It still happens.I know this is long and I appreciate anyone who has read it and can give me feedback. Since this all started in San diego in sept of 09 I have seen many doctors.Oto-neurolgist- 2 MRI's of brain with and without contrastNeurologist- 1 mri of cervical spineER- Spinal Tap, CT scan, Blood workEndocrinologist- BloodworkENT- tried to diagnose me with meineres disease? but was ruled out with no ringing in my ears.Allergist- nothing out of the normalRegular MD- bloodwork, lymes, mono- negativeIs there anything I am missing??? I cant take this anymore. I feel worse everyday like my body is slowly deteriorating. Please help and advise if you can-Have you been tested for HLA-B27? Do you know if you are Rh Negative or come from an Rh Negative Family?
    thefarrellfam 46 Replies
    • February 26, 2011
    • 06:14 AM
    • 0
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  • I feel exactly like you. I feel like I'm dying every day! I was told I have anxiety about two months ago after smoking spice(it is horrible I will never touch it again!) Anyway things have gone downhill I constantly feel like my head is burning and my heart skips beats or beats hard and I've had 4 full blown panic attacks where I can't breathe and my heart races and I start shaking uncontrollably. I thought I started to get it under control for a cpl weeks cuz I would feel fine all day long but come evening time I would get the whales and impending doom and pressure all through my head I feel like I'm getting ready to have a stroke or seizure! I started zoloft and quit after my 3rd day cuz I was getting worse with brain zaps and feeling like my brain is shaking blurred visions feeling lightheaded and off balance. My ears ache so bad and loud noises hurt my ears. I getting muscle weakness in my entire body but worse in my arms and legs shortness of breath and palpitations that I have no control over. My head almost always feels like its going to explode and there is always pressure and tightness in my head and I get shooting pains all through my head and burning sensations all through my body especially the back of my head and arms and hands and shoulders. This has been going on still and I stopped the zoloft after only 3 days on the lowest dose cut in half which was 12.5mg. I take. 5mg of ativan at night cuz I get way worse when it comes time for bed and I can't sleep cuz I feel like my brain is gonna explode or I'm having a seizure or stroke. My bloodwork is all normal and had a CT scan that was normal. I'm going to the Dr on Thursday to get an MRI. I hope I can make it til then. Its so horrible I just want my life back! I want to be happy again cuz I have 3 kids to take care of and I feel like I can't function. My ears and head are the worst! I really believe I'm going to die and I don't want to die! Somebody help does anybody else go thru this? Nobody seems to believe me no matter what I tell them they can't see it on the outside of course but I'm feeling it all the inside! Its horrible I don't want to have to rely on ativan every night! I don't know what to do!!!
    Anonymous 42789 Replies Flag this Response
  • Have you been tested for HLA-B27? Do you know if you are Rh Negative or come from an Rh Negative Family?I hav eno idea what this means? what is it?
    Anonymous 42789 Replies Flag this Response
  • I feel exactly like you. I feel like I'm dying every day! I was told I have anxiety about two months ago after smoking spice(it is horrible I will never touch it again!) Anyway things have gone downhill I constantly feel like my head is burning and my heart skips beats or beats hard and I've had 4 full blown panic attacks where I can't breathe and my heart races and I start shaking uncontrollably. I thought I started to get it under control for a cpl weeks cuz I would feel fine all day long but come evening time I would get the whales and impending doom and pressure all through my head I feel like I'm getting ready to have a stroke or seizure! I started zoloft and quit after my 3rd day cuz I was getting worse with brain zaps and feeling like my brain is shaking blurred visions feeling lightheaded and off balance. My ears ache so bad and loud noises hurt my ears. I getting muscle weakness in my entire body but worse in my arms and legs shortness of breath and palpitations that I have no control over. My head almost always feels like its going to explode and there is always pressure and tightness in my head and I get shooting pains all through my head and burning sensations all through my body especially the back of my head and arms and hands and shoulders. This has been going on still and I stopped the zoloft after only 3 days on the lowest dose cut in half which was 12.5mg. I take. 5mg of ativan at night cuz I get way worse when it comes time for bed and I can't sleep cuz I feel like my brain is gonna explode or I'm having a seizure or stroke. My bloodwork is all normal and had a CT scan that was normal. I'm going to the Dr on Thursday to get an MRI. I hope I can make it til then. Its so horrible I just want my life back! I want to be happy again cuz I have 3 kids to take care of and I feel like I can't function. My ears and head are the worst! I really believe I'm going to die and I don't want to die! Somebody help does anybody else go thru this? Nobody seems to believe me no matter what I tell them they can't see it on the outside of course but I'm feeling it all the inside! Its horrible I don't want to have to rely on ativan every night! I don't know what to do!!!I think I feel close to the same way you do. I feel like I'm am going to die any second and the anxiety that comes along with it is overwhelming. I've been getting headaches that come and go. I feel like everything that is going on is almost "dream like". My mind is always clouded and I can't seem to think anymore. My eyesight and memory seem to be getting worse. Please let me know if you've found any help!!!!
    Anonymous 42789 Replies Flag this Response
  • I have exactly the same symptoms as you both have described. I also have had the bloods, ct's & mri's and have been given a clean bill of health however more & more frequently I'm getting panic attacks & thinking I'm going to die. It's just awful & its getting out of control. My symptoms of late are can't sleep properly, nausea, a constant fear of death or something bad happening, dizziness, clammy hands & sweaty feet, sometime things don't seem 'real' to me, butterflies in my stomach. I know this is all anxiety related & I know I need to trust in what the doctors are telling me but when the fear takes over & rationality goes out the window! I too have 3 kids & I absolutely can't let this control my life & up until the last couple of months, I had it completely under control without medication, just exercise & cognitive therapy but all the hard work seems to be out the window as I'm fully gripped by fear of this. I too feel like I'm going to have a stroke or a seizure but it's apparently all systematic to panic attacks & anxiety. The trouble with this is that you find it so hard to believe that there's nothing wrong it just can't be anxiety & your mind starts to over think things & then the fear comes in. There are forums like panic away that are really helpful as you read stories of others going thru the exact same thing, which helped me understand the fear - still in saying that, it's definitely back & with the symptoms, is very hard to control.
    Anonymous 42789 Replies Flag this Response
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