Discussions By Condition: I cannot get a diagnosis.

I feel like I'm dying!!!!!!!!!!!!!!

Posted In: I cannot get a diagnosis. 12 Replies
  • Posted By: Jenclara26
  • January 20, 2008
  • 00:40 PM

Ok folks, I feel like ***l, and it's been that way for at least 6 mo. I really didn't feel top notch before that, either, but at least I didn't feel like I was gonna die. Here are my symptoms: multi-nodular goiter, both feet are so painful I can barely walk in the morning, hip pain(limped for months) ancle pain, back pain, memory loss ( sometimes I feel like I have amnesea, my long term memory is almost gone) cough lasting at least 6 mo, sleep disturbances, anxiety, depression (feeling like crap doesn't make me all sunshiny) rapid/slow pulse, several small white cysts under my skin on various parts of my body, irregular periods (new to me) acne, tingling hands, ringing ears, occasional nasea resulting in violent vomiting (afterwards, i have 2 black eyes from puking so hard) facial swelling, TMJ like symptoms, baggage for a family of 4 under my eyes, abdominal cramps, loose stool, weight gain (20 lbs, 6 mo) shallow breathing, shortness of breath, sensitivity to cold.
Ok, think I got everything in there, most of it happens so often I just take it as normal everyday life.

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12 Replies:

  • This definitely sounds like a thyroid/hormonal problem, particuarly hypothyroidism. Have your TSH levels checked, and ask your doctor about checking the antibodies also. Hope you start to feel better.
    ReneeS14 4 Replies
    • January 20, 2008
    • 11:24 PM
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  • your symptoms sound very serious; I suggest that you get to your Dr. right away and if you alrealdy have been then you need to find a new Dr.
    rachel125 112 Replies
    • January 21, 2008
    • 00:07 AM
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  • I'm sorry you are not feeling well.Have you seen a doctor yet?If so, I was wondering if they have they checked your thyroid antibodies at all, even if your TSH was okay?Some of your symptoms sound like thye might be from low thyroid, or perhaps even from a rare complication of autoimmune thyroiditis called Hashimoto's Encephalopathy.Other things you might also want to look into are getting checked for celiac disease, which can cause a lot of symptoms besides your GI ones. Also, it could be something else rheumatological like lupus.I hope you feel better and get answers soon.Best Wishes!
    Anonymous 42789 Replies
    • January 21, 2008
    • 03:54 AM
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  • Thank you so much for replying. I have done some research online, and have all of the symptoms of hashimoto's thyroiditis, plus more. However, the symptoms of the encephalopathy don't match mine. I had all of the normal thyroid tests done within the last 6 mo, which all came back in the "normal" range. (Whatever that means) I went back to the Dr. and asked for a thyroid anti-body test, and she said that I should instead be checked for arthritis, so she ordered an arthritis blood test. It came back that my "inflamation" was in a normal range. I could have told her that without being stuck by a needle. I am in severe pain in my hip, ankle, foot, etc, but they are not swollen or red. I have now lost my health insurance, and am afraid that I will not be able to return to work (laid off seasonally) due to the fact that I can barely walk, breath, think or do much else. In a mixed blessing, I look very young and healthy. (people always think I'm 18 - even had to get a new ID to get into a bar - I'm 32) which translates into people not taking me seriously. Any suggestions on how to get these tests done without having to sell my first born?
    Jenclara26 2 Replies
    • January 21, 2008
    • 02:04 PM
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  • Ok folks, I feel like ***l, and it's been that way for at least 6 mo. I really didn't feel top notch before that, either, but at least I didn't feel like I was gonna die. Here are my symptoms: multi-nodular goiter, both feet are so painful I can barely walk in the morning, hip pain(limped for months) ancle pain, back pain, memory loss ( sometimes I feel like I have amnesea, my long term memory is almost gone) cough lasting at least 6 mo, sleep disturbances, anxiety, depression (feeling like crap doesn't make me all sunshiny) rapid/slow pulse, several small white cysts under my skin on various parts of my body, irregular periods (new to me) acne, tingling hands, ringing ears, occasional nasea resulting in violent vomiting (afterwards, i have 2 black eyes from puking so hard) facial swelling, TMJ like symptoms, baggage for a family of 4 under my eyes, abdominal cramps, loose stool, weight gain (20 lbs, 6 mo) shallow breathing, shortness of breath, sensitivity to cold. Ok, think I got everything in there, most of it happens so often I just take it as normal everyday life.Let me say first, I would never tell someone it is all pyschosomatic. I do believe there is something medically going on with you physically but also it sounds like your depression is out of control. Something I have learned thru my medical experiance is, when people say psychosomatic, I think duh! Everything is ran by the brain so if your brain isn't function properly then how can your body. This is where it gets tricky, because physical illnesses for instance, lets just say MS and your thyroid for example. Both diseases can throw your chemicals off in your brain to the point of having depression, memory issues, anxiety and ect. Make sure you see a doctor that listens to you not one that tells you what you are going thru. You are the only one who knows your body. Hopefully this makes a little sense. I wish you well!
    cbalcomgo 38 Replies
    • January 21, 2008
    • 02:23 PM
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  • I am sorry you are having such a tough time with your health. I think the most important thing is to try and get insurance or get into a "safety net" clinic, such as a community health center. You need to be followed by a doctor who can get to the bottom of your problem. This might mean being referred out to various specialists, such as rheumatology or endo.Are there any free or low cost clinics where you live?Does your state offer any help with insurance or have a high risk pool?Another option might be to attend a school for a while, if they include health insurance with tuition.I am sorry you are going through this. I will be thinking of you.
    Anonymous 42789 Replies
    • January 21, 2008
    • 08:44 PM
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  • your bones hurting could be a very serious problem I dont think there is mentally anything wrong with you I have my thoughts on what it could be but im only a medical student and I wouldnt want to give you faulty information on something so serious
    rachel125 112 Replies
    • January 21, 2008
    • 08:55 PM
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  • I was tested for lyme, I live in the Maine woods where ticks THRIVE like Satan's little minions. The test came out inconclusive. I will check out your link, thx! I did work for a few years at a fast food restaurant using a headset. I guess my biggest problem now is that I just cannot afford to go to the Dr. Free clinic anyone?
    Jenclara26 2 Replies
    • January 22, 2008
    • 11:54 AM
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  • I have Lyme! And often have this overwhelming physiological feeling I'm dying! I was just hospitalized for it and they could not drop my pulse or blood pressure without my suggestions. IT IS NOT ANXIETY OR A PANIC ATTACK!!! It can be from toxin overload, exercise, hypoglycemia, adrenal fatigue, or electrolyte imbalance (especially MAGNESIUM) Blood levels don't tell you what your tissue levels are. Only 1% is in your serum (innacurate tests).Anytime I'm over exerted (takes very little) my bowels get backed up and I have a "CRASH".Lyme is spread sexually, through fleas and mosquitos (look uf Dr. Jeff Sutherland/Lyme) and other ways we never thought of. Roughly 80% of the nation is infected. Most peoples immune system keeps it in check, but it will evenyuall surface.If you have ONE band on your Western Blot that's positive, You have it!!!I'll pray for you! E-mail me at kevbolio@yahoo.com for help.Kevin
    Anonymous 42789 Replies
    • January 26, 2009
    • 08:15 AM
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  • This is CLASSIC thyroid. I hope to goodness that you've found some help. You aren't dying, but you are certainly suffering... which can lead to death by way of multiple reasons. Chief among those is chronic depression, which can manifest in a complete HOST of resulting symptoms and conditions. Find a doctor who isn't into drugs - trust me. If he/she rushes to pills as a fix, find a NEW doctor.
    Anonymous 42789 Replies
    • October 21, 2009
    • 03:53 AM
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  • Dr. Justin Merrill here. You have signs of several diseases...dont try to account them to one. You need to go to a physician immediatly!!!!! Some of these symptons are actually signs of an acute kidney disease. Also, could include a possible lymph node issue. My advice, get offline and go to a doctor!!
    Anonymous 42789 Replies Flag this Response
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  • Anti-SM,anti-DNA,anti-peroxidase antibodies and CRP might put you the right path towards diagnosing your illness
    Anonymous 42789 Replies Flag this Response
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