Discussions By Condition: I cannot get a diagnosis.

I feel like I am dying....please help!!

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: tbrauer25
  • May 14, 2008
  • 07:17 PM

Hi I am a 30yr old female 5'11 158lbs. I was diagnosed with PCOD 6 years ago and Primary Fibromyalgia 3 years ago. I was also told I was anemic and put on iron therapy 2 times a day. I am also a type 2 diabetic.
I have never believed that Fibromyalgia is what I have so please keep that in mind. I suffer from EXTREME fatigue(to the point getting out of bed is a challenge),bowel problems(pick a day sometimes constipated or diarrhea), Muscle and joint pain, Muscle spasms in feet, legs, hands, & arms(VERY PAINFUL!), constant headache, extremely dry mouth, dry eyes, dry skin(patches mostly on arms), VERY pale skin, and most recently that put me in the hospital…… chest pain radiating down my arm and trouble breathing. I am constantly cold even on HOT days.
I recently went to see a cardiologist for the chest pain, trouble breathing and fatigue. They did a EKG, Echo Cardio, MUGA Scan, Nuclear Stress Test, and CBC. I was called 2 days later and told that I needed to go to the hospital to have a blood transfusion. I was diagnosed with having Aorta valve sclerosis and 2 leaky valves. I was told nothing needed to be done about this, but was told I needed to attend to my blood. My CBC revealed that my hematacrit was 19 and my hemoglobin was 5.2 and my RBC was 2.2 and WBC 1.7. I was admitted to the hospital after seeing a Hematologist/Oncologist that diagnosed me as having SEVIER Iron Deficiency Anemia. I was given 3.5 liters of blood and 75ML of Iron. (this was a month ago) I also had a CT scan done of my abdomen and chest to reveal “nodules” on my spleen and a “granuloma mass” in my right lung. This led to an ultrasound of my spleen and a PET Scan of my entire body. I was told today that those tests “looked benign”, but we would retest in 6 months to make sure nothing has changed. CBC today Hematacrit was 27(still low), Hemoglobin 7.8 (still low), WBC 3.1, RBC 4. I was told to continue iron therapy and I should get a B-12 shot once a month. That this was probably due from a “heavy menstrual cycle”…….C’MON……I STILL FEEL LIKE CRAP AND I JUST DON’T THINK THIS IS IRON DEFICIENT ANEMIA……….ANY HELP IS APPRECIATED!!!!!!!

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1 Replies:

  • I don't understand why you are not being given weekly injections of Procrit (Epogen Alfa) to raise your hemoglobin and hematocrit level? Is it because your health insurance company won't pay the $500 per injection that it costs? Ask your doctor!
    Anonymous 42,789 Replies Flag this Response
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