Discussions By Condition: I cannot get a diagnosis.

I feel hopeless, can't get help

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: burninghead
  • September 7, 2007
  • 05:19 PM

Hi I was wondering if anyone out there is having my symptoms if they can respond.

A long story short been feeling fatique for about 4 years, sometimes severe. I feel as though I have the flu every day

Here are my symptoms

Extreme scalp pain - like inflammed itchy, stinging like I stuck my head in a bee hive, pins and needles and prickly feeling

Diffuse hair loss about 40% - hair stylist first noticed it
Body hair shedding - no bald spots, it regenerates but lashes nose hair etc shed out, yet not void of any hairs
Extreme fatique
flu feeling
Achy muscles
Strange upper lip rash small bumps and it tingles
Blue feet, not just toes but whole foot when cold - not classic raynauds
Odd hump on thumb nails
Odd hump on large toe nail
Sick often get all my kids illnesses
headaches
blurry vision on and off
Odd occular migraine (twice) lost visual center field large white hole followed by terrible headache
anxiety and panic
strange pain on sole of foot
Strong amonia smell on occasion just in nostrils
Back pain
Chest pain
shortness of breath
feelings of tingle in face and a burn at times

I have had numerous ANA tests for lupus, Rheumatoid arthritis, thyroid and blood counts and metabolic panels all normal.

I do feel as though I am dying at times, scalp pain can be so violent I have to lay down.

I have seen over 9 doctors the last derm told me to see a shrink. I was devistated. I know my body, and I am not a needy or sickly person, I went downhill after the birth of my third child and currently am unable to do much as I feel very sick. I am taking an antidepressant called elavil for the pain, it only kncks me out it does not help my pain. I have a very healthy life at home and am very fufilled - this is not psychological. At times I hpe something bad shows so at least I know what I am dealing with.

Anyone else?

I know anxiety can do alot, but there is NO way one can loose almost half the hair on their head from stress and have it continue to bald after almsot two years, no way one can feel this bad - its a shame we all have to come here because so many of us have odd symptoms with no answer.

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5 Replies:

  • Hi I was wondering if anyone out there is having my symptoms if they can respond. A long story short been feeling fatique for about 4 years, sometimes severe. I feel as though I have the flu every day Here are my symptoms Extreme scalp pain - like inflammed itchy, stinging like I stuck my head in a bee hive, pins and needles and prickly feeling Diffuse hair loss about 40% - hair stylist first noticed itBody hair shedding - no bald spots, it regenerates but lashes nose hair etc shed out, yet not void of any hairsExtreme fatiqueflu feelingAchy musclesStrange upper lip rash small bumps and it tinglesBlue feet, not just toes but whole foot when cold - not classic raynaudsOdd hump on thumb nailsOdd hump on large toe nailSick often get all my kids illnessesheadachesblurry vision on and offOdd occular migraine (twice) lost visual center field large white hole followed by terrible headacheanxiety and panicstrange pain on sole of footStrong amonia smell on occasion just in nostrilsBack painChest painshortness of breathfeelings of tingle in face and a burn at times I have had numerous ANA tests for lupus, Rheumatoid arthritis, thyroid and blood counts and metabolic panels all normal. I do feel as though I am dying at times, scalp pain can be so violent I have to lay down. I have seen over 9 doctors the last derm told me to see a shrink. I was devistated. I know my body, and I am not a needy or sickly person, I went downhill after the birth of my third child and currently am unable to do much as I feel very sick. I am taking an antidepressant called elavil for the pain, it only kncks me out it does not help my pain. I have a very healthy life at home and am very fufilled - this is not psychological. At times I hpe something bad shows so at least I know what I am dealing with. Anyone else? I know anxiety can do alot, but there is NO way one can loose almost half the hair on their head from stress and have it continue to bald after almsot two years, no way one can feel this bad - its a shame we all have to come here because so many of us have odd symptoms with no answer.Have you had an mri and a heavy metals screen done?You said you went downhill after the birth of your third child-do you think that has any relativity?did something change during this period or did you take somethng different?pills11.com ;))
    Anonymous 42789 Replies
    • September 7, 2007
    • 05:31 PM
    • 0
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  • Hello - I am new to this site, but I feel so bad for you. I have recently switched from taking my children to their regular "doctors" to a Holistic Healer who practices something called Bioset. We have had incredible results with my daughter. The more I talk to the Healer, the more she explains how so many of our health problems, both physical and mental, are related to how we digest, or don't digest our foods and to the toxins and chemicals in our bodies. I cannot recommend BIOSET highly enough. I know that they use it to treat all kinds of food insensitivities, allergies, depression, weight loss, skin conditions, etc. My daughter's healer has changed her life in two short months. We had seen different traditional specialists over the past 3 years and we had gotten NOWHERE! Now, I will only go for BIOSET treatments and nutritional advice. If my Bioset Practicioner cannot heal me - - then, I MIGHT consider traditional medicine. If you have someone close by who practices BIOSET, you really should give it a try! Good Luck and God Bless!Bonnie
    Anonymous 42789 Replies
    • September 7, 2007
    • 06:46 PM
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  • Bonnie thank you I will positively look into itI did a urine heavy metal screen and it came back very high, yet it does not say what heavy metal, and I can't figure out how heavy metals effect the body but will look into it.I have made no changes in my life other then a root canal that had to be repeated about 4 months before this began, actually now I am taking good vitamins I never had to take vitamins before but as a precautionary measure I am doing that. The elavil makes me very tired and still in pain. Im praying for a solution.
    burninghead 37 Replies
    • September 8, 2007
    • 02:54 AM
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  • Hello - I am new to this site, but I feel so bad for you. I have recently switched from taking my children to their regular "doctors" to a Holistic Healer who practices something called Bioset. We have had incredible results with my daughter. The more I talk to the Healer, the more she explains how so many of our health problems, both physical and mental, are related to how we digest, or don't digest our foods and to the toxins and chemicals in our bodies. I cannot recommend BIOSET highly enough. I know that they use it to treat all kinds of food insensitivities, allergies, depression, weight loss, skin conditions, etc. My daughter's healer has changed her life in two short months. We had seen different traditional specialists over the past 3 years and we had gotten NOWHERE! Now, I will only go for BIOSET treatments and nutritional advice. If my Bioset Practicioner cannot heal me - - then, I MIGHT consider traditional medicine. If you have someone close by who practices BIOSET, you really should give it a try! Good Luck and God Bless! Bonnie Bonnie, That is great and I am glad you are getting such good results with Bioset.:) Bioset is an offshoot of NAET and both can be extremely helpful for autoimmune dysfunction and other chronic illnesses. I am on my journey to become a NAET practitioner and have already seen great improvements in my patients! Burninghead, I too had a lot of problems after the birth of my daughter nearly 3 years ago...it was a VERY traumatic labor and delivery. I decided to go to a NAET practitioner about 6 months ago, and after the first treatment I really noticed a difference. I have been going regularly and cannot tell you how much better I feel. As a DOM(Doctor of Oriental Medicine), I have always been involved with "alternative" approaches to health. I am now so pleased to be able to do this new technique and help my patients get their lives back. Please look into both NAET and Bioset. And if the Elavil is not helping, please talk with your doc about slowly discontinuing it. Research Elavil's side effects on www.drugs.com. This drug can have a lot of side effects. Best wishesDOM
    acuann 3080 Replies
    • September 8, 2007
    • 03:34 AM
    • 0
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  • Mercury Toxicity (Amalgam Illness)All heavy metals cause Mees' lines on the nails. These usually begin a few months after significant exposure starts and may be useful in identifying the source of exposure - dental amalgams or some unrecognized source - if you remember when they started. Do you have any old fillings in your teeth?
    rad-skw 1605 Replies
    • September 8, 2007
    • 10:28 AM
    • 0
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