Discussions By Condition: I cannot get a diagnosis.

I cant get a diagnosis for these symptoms, please help!!!!!!!!!!!

Posted In: I cannot get a diagnosis. 22 Replies
  • Posted By: poutchi
  • January 12, 2009
  • 00:53 PM

I cant get a diagnosis for these symptoms, please help .

I am 27 and been suffering from the same symptoms for over 6 years now without any diagnosis. Although I have type 1 diabetes, I was completely healthy. One night while sleeping I woke up feeling extremely nauseous (without vomiting), feeling dizzy (not vertigo) and simply unwell and tired all off sudden. The symptoms got worst and I was taken to hospital. I was in bad state, however they could not find anything wrong and I was discharged. Since that day I haven’t felt well, I had the same symptoms appearing nearly on a daily basis, sometimes in acute episodes where I have to be rushed to hospital, and the rest of the time is the same symptoms on varying levels of acuteness. With time I made a list of the symptoms and they are.
Nausea (usually no vomiting)
Dizziness (No vertigo or room spinning, but more unfocused or feeling of about to loose consciousness without actually loosing it)
Burping (gas, or taking out air)
Feeling unwell (nerves tighten, feeling of flashing in chest area and other symptoms)
Fleering very tired (sometimes even talking making me out of breath)
Dry mouth (Even few minutes after drinking, mouth is dry again)
Onset of depression or feeling worried, afraid, down, with no reason
Sometimes headaches
Problems sleeping (wanting to sleep in day time)
There are other symptoms which are difficult to explain, but the main ones are started above.

I saw many doctors did many tests but all say im 100% healthy in whatever they checked which makes it even worst as I know and feel very unwell. Please if anyone can suggest something let me know.

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22 Replies:

  • Sounds like bad anxiety, which will bring on depression. How is your stress level? Do you have any heart pounding episodes? What is your blood pressure?Pam
    pamelasmc 82 Replies
    • January 12, 2009
    • 02:46 PM
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  • It could be chronic fatigue syndrome.
    richard wayne2b 1232 Replies
    • January 12, 2009
    • 03:01 PM
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  • How well is your diabetes controlled?
    richard wayne2b 1232 Replies
    • January 12, 2009
    • 03:03 PM
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  • I presume that anemia and thyroid problems have been ruled out.
    richard wayne2b 1232 Replies
    • January 12, 2009
    • 03:23 PM
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  • What meds are you currently taking? Are you on bc? DOM
    acuann 3080 Replies
    • January 12, 2009
    • 03:26 PM
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  • Sounds like bad anxiety, which will bring on depression. How is your stress level? Do you have any heart pounding episodes? What is your blood pressure?Pam Thanks for the reply.I am not someone who get stressed easily and im usually easy going. I do have heart palpitations sometimes during the acute episodes. My blood pressure was measured several times during the acute stages and normal/less acute periodes and it was always fine. I didnt see the connection between me being anxious and these episodes especially that non actue ones were going on for 6 years. Although i think deprerssion comes as a result of me being desperate when i feel so unwell and cant find why, rather than it being the cause. Chazz
    poutchi 10 Replies
    • January 12, 2009
    • 05:08 PM
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  • It could be chronic fatigue syndrome. Thank you for the replyAlthough couse be a cause for me being tired, i am not sure if chronic fatigue syndrome would bring out such strong symptoms to the levels i experience.Chazz
    poutchi 10 Replies
    • January 12, 2009
    • 05:10 PM
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  • I presume that anemia and thyroid problems have been ruled out. My diabetes is not badly controled, if anything this problem is affecting my diabetes rather than the other way around. During the acute episodes i always cheked my suger levels and they were times were it was fine , soemtimes slightly higher sometimes slightly low, so there is no relation between the levels of my blood suger and whats going on. And yes i did many blood tests looking for lack of specific nutrients or elements in blood, red blood cell counts , white cell counts , thyroid hormones tests ...ect everything was normal. chazz
    poutchi 10 Replies
    • January 12, 2009
    • 05:13 PM
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  • What meds are you currently taking? Are you on bc? DOM Thank you for the reply I am not taking any medication except for my insulim, which in itself has been cahnged from Humulim M3 to more rapid type for better control , as these problems started years before i made the change and are still continuing after, i cant relate the type of inslim im taking to the problem.Chazz
    poutchi 10 Replies
    • January 12, 2009
    • 05:16 PM
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  • Have you had a HIDA scan?DOM
    acuann 3080 Replies
    • January 12, 2009
    • 05:31 PM
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  • I cant get a diagnosis for these symptoms, please help . I am 27 and been suffering from the same symptoms for over 6 years now without any diagnosis. Although I have type 1 diabetes, I was completely healthy. One night while sleeping I woke up feeling extremely nauseous (without vomiting), feeling dizzy (not vertigo) and simply unwell and tired all off sudden. The symptoms got worst and I was taken to hospital. I was in bad state, however they could not find anything wrong and I was discharged. Since that day I haven’t felt well, I had the same symptoms appearing nearly on a daily basis, sometimes in acute episodes where I have to be rushed to hospital, and the rest of the time is the same symptoms on varying levels of acuteness. With time I made a list of the symptoms and they are. Nausea (usually no vomiting)Dizziness (No vertigo or room spinning, but more unfocused or feeling of about to loose consciousness without actually loosing it)Burping (gas, or taking out air)Feeling unwell (nerves tighten, feeling of flashing in chest area and other symptoms)Fleering very tired (sometimes even talking making me out of breath)Dry mouth (Even few minutes after drinking, mouth is dry again)Onset of depression or feeling worried, afraid, down, with no reasonSometimes headaches Problems sleeping (wanting to sleep in day time)There are other symptoms which are difficult to explain, but the main ones are started above. I saw many doctors did many tests but all say im 100% healthy in whatever they checked which makes it even worst as I know and feel very unwell. Please if anyone can suggest something let me know.Hello....just found this site today and read yours. Your writing sounds much like my 32 yr old daughter. I lost her in April 2007. After a very long wait, it was diagnosed a diabetic coma. She died in her sleep. She suffered from fybromyalgia, depression, diabetes and was bi-polar. Long story short, she had been a 'bad' bunch of drs who had overmedicated her for a very long time. Only within the year she died did she get a "good" group of drs who worked together with her best interest at heart. My suggestion is to look for a "group" of good drs who will work together in your behalf. Don't wait til it's too late...do this. I wish you all the luck.
    bunnymlm 1 Replies
    • January 12, 2009
    • 10:34 PM
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  • Have you had a HIDA scan? DOM Hi, Thanks for your reply DOM. No i did not have this scan, do you think i should ? why would it be significant. As i have to convince my doctor to why i should have it done. ( yes its UK healthsystem..sucks sometimes)Chazz
    poutchi 10 Replies
    • January 12, 2009
    • 11:03 PM
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  • Hi, Thanks for your reply DOM. No i did not have this scan, do you think i should ? why would it be significant. As i have to convince my doctor to why i should have it done. ( yes its UK healthsystem..sucks sometimes)Chazz Nausea, especially chronic nausea, can be indicative of gallbladder disease. A HIDA scan should help rule this out. Do you have any pain at all? Abdominal, epigastric pain? Any GERD symptoms (acid reflux, heartburn)? How are your stools - are they daily/formed? Any history of either diarrhea or constipation? Best wishesDOM
    acuann 3080 Replies
    • January 13, 2009
    • 01:21 AM
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  • My diabetes is not badly controled, if anything this problem is affecting my diabetes rather than the other way around. During the acute episodes i always cheked my suger levels and they were times were it was fine , soemtimes slightly higher sometimes slightly low, so there is no relation between the levels of my blood suger and whats going on. And yes i did many blood tests looking for lack of specific nutrients or elements in blood, red blood cell counts , white cell counts , thyroid hormones tests ...ect everything was normal. chazz You need you post the numbers of the tests. Socalled "normal" results can hide a multitude of sins.
    Freddd 3576 Replies
    • January 13, 2009
    • 01:40 AM
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  • You need you post the numbers of the tests. Socalled "normal" results can hide a multitude of sins. Thanks for the reply Freddd I understand what you are saying, many so called normal test results can hide other stuff. Howevere it is bit difficult to argue against a (Normal) result if there are no other indicators to prove otherwise. I cant remember all the tests i did as i had so many but i can put some on here with normal result ie : a result within the normal range. check for specific viruses or sings of infections Red blood cells countWhite blood cells countZinc, calcium and other tras elements levelsliver and kidney functionsthyroid hormones levels and thyroid antibodies levels.All day adrinaline level I had a gastric fibroscopy (which didnt show anything seriouse)I had a Brain scan ( which also didnt show anything unusual)I had Hearing tests and checks of nose and throughtI had an abdominal ultrasound (also didnt show anything unusual) i think these are what i remember of the tests i did. Chazz
    poutchi 10 Replies
    • January 13, 2009
    • 04:34 AM
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  • Nausea, especially chronic nausea, can be indicative of gallbladder disease. A HIDA scan should help rule this out. Do you have any pain at all? Abdominal, epigastric pain? Any GERD symptoms (acid reflux, heartburn)? How are your stools - are they daily/formed? Any history of either diarrhea or constipation? Best wishesDOM Thank you Dom. Actually gallbladder problems were the first thing i thought of when the whole problem started as i was having some weird bitter taste in my mouth, althought this wasnt often and now i dont really have that but at the begining of the problem i did have it soemtimes. I did not test however for gallbladder disorders. The weird bit is that althought many of the symptoms are digestive ( nausea, burping, gas ) i dont have any pain abdominal or epigastric. A doctor during one of my very acute episodes did check my abdoman and i didnt have any pain. Also i dont have any unusual acid refluxes or heartburns. Stools are i would say normal most of the time, the problem is going on for 6 years so i did have times of diarrehea and constipations but nothing seriouse of chronic. And there is no history of either. I am usually regular once a day,The only thing i notice is during sever or slightly strong episodes i go more often to the loo, with no significant change in stool, but i think its more a case of gases than anything else. But not sureChazz
    poutchi 10 Replies
    • January 13, 2009
    • 04:43 AM
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  • The only thing i notice is during sever or slightly strong episodes i go more often to the loo, with no significant change in stool, but i think its more a case of gases than anything else. But not sure I would definitely ask to have your gallbladder checked. You don't always have to have epigastric pain. Actually, some people report pain in between their shoulder blades along the spine with GB problems. You should also know your B12 level specifically. A "normal" level is between 200-1100 which is a huge range. If you are under 500 you may be "normal" according to the lab work, but still have lots of B12 deficiency symptoms. Not saying it's the cause, but until you know your specific level you will never really know. Can you get copies of your blood work so you can look more closely at it? Docs often miss this. I'd personally push for a HIDA scan. Also, a "bitter taste" is classic sign of Liver/GB dysfunction (according to Traditional Chinese Medicine). Best wishesDOM Best wishesDOM
    acuann 3080 Replies
    • January 13, 2009
    • 05:05 AM
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  • I would definitely ask to have your gallbladder checked. You don't always have to have epigastric pain. Actually, some people report pain in between their shoulder blades along the spine with GB problems. You should also know your B12 level specifically. A "normal" level is between 200-1100 which is a huge range. If you are under 500 you may be "normal" according to the lab work, but still have lots of B12 deficiency symptoms. Not saying it's the cause, but until you know your specific level you will never really know. Can you get copies of your blood work so you can look more closely at it? Docs often miss this. I'd personally push for a HIDA scan. Also, a "bitter taste" is classic sign of Liver/GB dysfunction (according to Traditional Chinese Medicine). Best wishesDOM Best wishesDOM Thanks DOMI wil try to get hold of my blodd test results if i can. Althought i dont have any pain even in between my shoulder blades along the spine, the HIDA scan seems interesting. unfortunatly the Scan is not possible in the UK, its stupid. i did a small search and i cant find anywhere where this scan could be done. I will try to look into it more though. Chazz
    poutchi 10 Replies
    • January 13, 2009
    • 06:14 AM
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  • Thank you for the replyAlthough couse be a cause for me being tired, i am not sure if chronic fatigue syndrome would bring out such strong symptoms to the levels i experience.Chazz chronic fatigue syndrome can be extremely extreme, 25% with it are so sick with it's symptoms eg dizziness (not just due to the tiredness) that we are housebound or bedbound. I have it myself and have ended up having to be ambulanced to hospital due to it on occassions (when ive over done things and hence "crashed" wth it). So dont doubt that is possible. Many of us with this illness do end up in hospital at times. At times i do actually go unconscious due to it (if i trigger it off too badly) Thou you do have symptoms of CFS, i myself arent too sure if this is your issue for various reasons eg You dont mention a "triggering" incident for the illness (most of us with CFS have it triggered off by something eg a virus of some kind, surgery etc) nor mention that when it worsens any triggering factors for it, also most of us have low BP or other signs to help point towards this eg often strange neuro issues etc. The symptoms you mentioned are common very general kind of symptoms of it which feature in so many different things. There are other symptoms which are difficult to explain, but the main ones are started above. can you explain those symptoms.. that will tell me more if i think you fit CFS. Also hows your memory and concentration? (those with CFS, 95%?, usually have memory and concentration problems). These symptoms for many of us can be just as disabiling as the other symptoms. (thou those two are very generalised symptoms too.. and common in heaps of different things) The way you get your eposides too.. it didnt quite sound like CFS. You didnt mention that exertion (physical or mental) triggers off the symptoms more.. which is a normal thing which occurs in CFS. Due to these things.. im not sure if i'd think you have CFS thou you certainly have the CFS general symptoms. Take care as 25% are wrongly diagnosed with having CFS but then it's later found they actually had something else which was missed.it could be. but currently im doubting it without more info which points towards that's the likely case.
    taniaaust1 2267 Replies
    • January 13, 2009
    • 06:45 AM
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  • I'm 24, and I had these same symptoms for a few years...and then when I was 22, I found out I had ulcerative colitis, which can cause all sorts of stuff like that. If you haven't had your colon checked, it might be a good idea. Hope you figure it out!
    Anonymous 42789 Replies
    • January 13, 2009
    • 07:55 AM
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