Discussions By Condition: I cannot get a diagnosis.

I cannot get an acurate diagnoses. HELP!

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: Anonymous
  • May 2, 2013
  • 02:30 PM

I havebeen seeing doctors for about 4 years now for severe body pain, sometimes astabbing pain in different parts of my body. I have been tested and they found that I had Osteoarthritis, andthey also diagnosed Fibromyalgia. I am only 34 years old, and figure they couldn’tfind another cause and just labeled me Fibro. I am now experiencing nausea andvomiting(daily, mostly mornings. I have also had a hysterectomy so I cannot bepregnant), sometimes itchy skin rash, and of course the body pain that radiatesfrom my back to every part of my body. I am currently on the followingmedications: tramadol 50 mg 2 times a day, Celebrex 200 mg 2 times a day, Effexor150 mg 1 time a day, and Abilify 5 mg 1 time a day. The doctor has recently putme on Clonidine 1 time a day as well. At this point I am very discouragedbecause I do not feel as though I have an accurate diagnoses and would likeeveryone’s input or thoughts.

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  • I have been where you are, including the pain and being on most of the drugs you listed. Get another Doctor asap. Each brain drug causes side effects. There are doctors like yours (and my x) that believe that the way to handle this is to prescribe new drugs to deal with the symptoms instead of starting again. I think this can get way out of hand, or at least it did for me. I was on 8 different drugs and maxed out doses before I walked out on that doctor. He always thought he was 3 months away from having me stable but I waisted five years on him. The worst five years of my life. When my new drug czar / doctor saw the drugs I was on he nearly flipped. He said that I should be a drooling, crippled zombie on those drugs/doses. I told him I was. My new drug czar has me down to 1 drug (bupropion) and I am doing great. I still have some chorea (tics and spasms) but not in the same universe as a year ago. The chorea is a side effect that might be with me for the rest of my life. But emotionally I'm good. It isn't easy picking up the different parts of my life but I'm doing it. I can easily do things now that I couldn't even six months ago.But I wouldn't stop taking those drugs without being under the close supervision and plan of a doctor. We are talking some serious permanent consequences. No matter what, do not go cold turkey because that would probably land you in a hospital. I heard one girl who did that describe it as feeling like her neck had been replaced by oysters. It took her four months before she had good enough balance to really walk again.Good luck! I will be sending you strength.
    Brandella 2 Replies Flag this Response
  • I think that it is time to see another doctor as well. There are numerous problems that might actually be wrong with you; fibro is a syndrome, or collection of symptoms, not a real diagnosis as to what is actually causing those symptoms. So you may have pain on your fibro pressure points, but the question is why do you have that pain? that's the thing that needs to be answered I think.So you've already been diagnosed with osteoarthritis - that can be the cause of a lot of pain for sure. But there are many other autoimmune diseases that cause joint and bone pain, and that can have multisystem involvement. Have you been checked for Lupus and Sjorgen's Syndrome? It might be appropriate to get inflammation tests like CRP and ESR and ANA to help see if there are nay signs of those diseases. Skin rash and severe bone pain can be due to different types of cancer. Keep in mind that I'm not a doctor when I say any of this, but I think it is something you need to be realistically concerned about, as it may well be the cause of your trouble. Having had your symptoms for yearrs it might seem unlikely, but especially now that you are throwing up lots, it's time to talk about it with your doctor! There are numerous tests that they will run if they suspect it. One type of cancer in particular called multiple myeloma may be worth looking into. Also, don't rule out bengin brain growths until you get checked out for that definitevely with MRI/CT. The last thing that I can think of are some rare diseases that can cause pain all over, like amyloidosis or sarcoidosis. They are hyper rare, but I think I remember something about rash being assoicaiated with those problems. In any case, it would explain the diffuse pain.Those are just my suggestions. I really hope that you get to the bottom of this, just don't give up and keep researching! Remember that fibromyalgia is a syndrome and not a true diagnosis of a cause of symptoms. Try googling online and checking out diseases that are commonly misdiagnosed as fibro!
    Aaron-o 27 Replies Flag this Response
  • The symptoms that you are posting are very general vague and have a million different causes. That is why most people are undiagnosed and the answer you are seeklng are all over the map in the replies. You need to post your lab results if you want any real concrete answers or help.
    Anonymous 42789 Replies Flag this Response
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