Discussions By Condition: I cannot get a diagnosis.

I cannot be diagnosed,Please help me.

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: atamborra
  • January 19, 2007
  • 02:40 AM

I'm a Lupus/SLE patient and recently I been urinating the color of "cola or grape juice." They found blood and my urine and thought it was a kidney stone. But all the test(CAT Scan, x-rays & a camera in my bladder) my urologist put me through confirmed that it's not kidney stones. He again wants to put a camera in my bladder again to see if he missed something. He stated he needs to see which kidney is bleeding. Something doesn't sound right. To be honest, I think he has no clue. This is very frustrating. I think this has to do with the chemo(Rituxan) I did in Nov.2006. This started 1 week after my last infusion. This coloration happens about every two weeks and last about 5 days. Please, can someone help me find out what's going on.

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4 Replies:

  • I am not a doctor, but have you looked up glomerulonephritis. Not sure if you have it or not or if the doctors have done the right tests or not to see if you have it.Just an idea.
    Anonymous 42,789 Replies
    • January 19, 2007
    • 11:20 PM
    • 0
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  • Dear Atamborra, I am not a doctor either but have you thought about being tested for Porpheria? One of it's symptoms is red coloured pee. Best of luck in getting to the end of your troubles.
    Anonymous 42,789 Replies
    • January 19, 2007
    • 11:44 PM
    • 0
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  • Hi there I looked up the drug: Rituxan and urine issues or dscoloration is not the issue... do you take any antibiotics of any kind? I would also maybe suggest a second opinion with another urologist if you are not completely comfortable with the answers or his knowledge. I too have Lupus and I must say its an odd disease.... many complications. I wish you the very best
    Anonymous 42,789 Replies Flag this Response
  • Old post i guess the poster knows what is wrong by now but anyway "Porphyria The term derives from the Greek πορφύρα, porphyra, meaning "purple pigment". The name is likely to have been a reference to the purple discolouration of feces and urine in patients during an attack. Although original descriptions are attributed to Hippocrates, the disease was first explained biochemically by Dr Felix Hoppe-Seyler in 1874, and acute porphyrias were described by the Dutch physician Prof B.J. Stokvis in 1889. " SOUNDS LIKE THAT PERSON HAD PORPHYRIA..
    taniaaust1 2,267 Replies Flag this Response
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