Discussions By Condition: I cannot get a diagnosis.

I can't walk anymore

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: Anonymous
  • January 19, 2011
  • 03:51 AM

I am a 19 year old female. I am usually pretty active. I used to hacky sack for at least 4 hours every day. I haven't been able to walk for a little over 4 months now. I can stand, but I can't lift my feet up. I have been having to use a wheelchair to get around. I have seen multiple doctors and had all sorts of tests. The diagnosis is conversion disorder, which basically means that my brain is telling my legs not to work without me knowing it. The psychiatrist I spoke with said that conversion disorder doesn't really make sense in my case, since it is caused by severe physical or emotional trauma, which I have not had. One of the really strange things is that I can usually walk in the morning right after I get up until I sit down. Last month, I had a scary experience where I was unable to talk or write for 14 hours. I had a less severe episode last summer where I was saying something to my mom, but what was coming out of my mouth didn't make any sense with what I was trying to say. That only lasted for about a minute. Have you or someone you know experienced anything like this?

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8 Replies:

  • Strongly recommend you are seen by a neurologist. Movement and speech are controlled by two different parts of the brain (major areas). Your additional symptom of aphasia (speech issue) points to a second area in the brain.Also I presume you have had a head CT and MRI? Also to rule in/out MS as a potential condition.Also to rule in or out the conversion disorder you should be seen by a psychiatrist. He/She can also do tests to determine which areas of your brain are affected and can help focus the diagnosis.Lastly, do not give up. These are extremely worrisome symptoms that you should make sure you get a second opinion given the potential risk and impacts to life.
    Anonymous 42789 Replies
    • January 20, 2011
    • 05:50 PM
    • 0
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  • Sounds like you might want to see a neurologist. It may be something affecting the brain.
    Anonymous 42789 Replies
    • January 25, 2011
    • 09:06 AM
    • 0
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  • Strongly recommend you are seen by a neurologist. Movement and speech are controlled by two different parts of the brain (major areas). Your additional symptom of aphasia (speech issue) points to a second area in the brain.Also I presume you have had a head CT and MRI? Also to rule in/out MS as a potential condition.Also to rule in or out the conversion disorder you should be seen by a psychiatrist. He/She can also do tests to determine which areas of your brain are affected and can help focus the diagnosis.Lastly, do not give up. These are extremely worrisome symptoms that you should make sure you get a second opinion given the potential risk and impacts to life.I've seen two different neurologists, both of whom have done a variety of tests. They have ruled out stroke, MS, cancer, tumor, clot, and pinched nerve. I've had multiple CT scans and MRIs, all of which came back normal. I've seen a psychiatrist and they ruled out conversion disorder. I am currently in physical therapy and relearning to walk. They have determined that my muscles are co-contracting and that my brain is firing about 2 million neurons to try to lift my foot instead of what would be normal, which is about 2 neurons. Because of this, I am tired all of the time and often fall asleep in class. They still don't know what is causing it.
    Anonymous 2 Replies Flag this Response
  • wat meds have they given u ? cos if u r doctor`s diagnosis is correct , ur condition has to improve by PHENYTOIN /PHENOBARBITAL/ DIAZEPAM .. these drugs control the activity of signal discharge from neurons !!
    arjun4mb 80 Replies Flag this Response
  • wat meds have they given u ? cos if u r doctor`s diagnosis is correct , ur condition has to improve by PHENYTOIN /PHENOBARBITAL/ DIAZEPAM .. these drugs control the activity of signal discharge from neurons !!They haven't given me any drugs at all.
    Anonymous 2 Replies Flag this Response
  • how stupid is tat ? y dint they start the treatment even after d diagnosis ?
    arjun4mb 80 Replies Flag this Response
  • Have they done any testing for epilepsy yet?
    gregtfish 67 Replies Flag this Response
  • My memory has gotten so bad that I forgot I even posted this. During that time I was unable to walk for 9 months with no official diagnosis and then I started being able to walk normally again but having seizures every day. They tested for epilepsy but I didn't have it. In 2013 I was diagnosed with celiac disease. Since that diagnosis I have had no problems walking until last week, when I accidentally ingested gluten, and now I can't walk again. It feels like my feet have been nailed to the ground and I just can't lift them no matter how hard I try. When I try to lift my feet my calf muscles just shake uncontrollably and get very sore. Hopefully further testing will reveal something new and explain what is going on.
    Anonymous 2 Replies
    • August 14, 2016
    • 05:12 AM
    • 0
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