Discussions By Condition: I cannot get a diagnosis.

I can't get a diagnosis, could use help!

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: ElissaT
  • February 13, 2007
  • 08:33 PM

I just came across this site while researching some potential disorders that match my symptoms. It has been a long, and soul searching journey trying to figure out what is happening to my body. I am a 37 year old woman, and my illness/symptoms began in June of 2005. It all started with a minor cold. The cold turned into bronchitus, and fatigue. About a month later the bronchitus and cold went away and the fatigue never stopped. I began to notice a tingling sensation from my elbows to my fingers, and from my knees to my toes. My body felt achy alot of the time. My knees also hurt. In October of that year the tingling sensation spread to my whole body, though more intense in my hands. I also began experience intense pain in my spine. I started pain medication at that time. I have gone to numerous doctors, and had lots of tests, and everything has been normal. I had the nerve conduction study, several MRIs, X-rays, blood tests, sensory motory exam. I have been to the pain clinic, a neurologist, and auto-ammuine specialist, a chiropractor, a physical therapist and a psychologist. I haven't had any major changes in symptoms not related to medication changes. I am still very tired. Occassionally I have had pain spasms. My balance is off, and concentration can be lacking at times. My sleep is questionable, as I do wake up often at night, though until recently, always went back to sleep. I don't have the trigger points associated with fibromyalgia. Any help and/or feedback is most appreciated.
Elissa

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8 Replies:

  • Pain, tingling, balance and concentration issues, poor sleep and fatigue (did I get them all?) can all be signs of a bacterial infection such as borrelia, bartonella, babesia. Tests for these diseases are not reliable (many false negatives) and that is why you need to see a doctor who can clinically diagnose with your symptoms. These bacterial infections are often mistaken for Fibro, Chronic Fatigue, MS.Before you go any further check out the symtpoms of bacterial infections at www.canylme.com. Click on symptoms and you will see a list and you can compare. Lots of good research and info on that site. You can also post your question there and the good people will help you.I wish you health!
    Anonymous 42789 Replies
    • February 14, 2007
    • 02:56 AM
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  • Have you tried going to rheumatologist?
    Anonymous 42789 Replies
    • February 14, 2007
    • 04:35 AM
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  • Please look in to post #2...Heres another site to check www.lymenet.org Hope you feel better soon.
    Anonymous 42789 Replies
    • February 14, 2007
    • 11:10 AM
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  • Do some research on vasculatitius. My husband has Wegener's Granulamatosis. Most doctors have never heard of it. Request a C-Anka test (blood). It is not determinative, butit may start the doctors looking towards a different path that could possibly help you.
    Anonymous 42789 Replies
    • February 14, 2007
    • 10:03 PM
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  • You need your doctor to test you for B12 deficiency. You must get a methylmalonic acid (MMA) test--- which is more sensitive for B12 deficiency. B12 deficiency causes paresthesias, balance problems, fatigue, depression, psychiatric symptoms. Anyone with suspected fibromyalgia should have B12 def. ruled out:Following tests: B12, MMA, and homocysteine.I have been researching B12 deficiency for 20 years (have autoimmune pernicious anemia myself)--- and have recently had a book published regarding this: "Could It Be B12? An Epidemic of Misdiagnoses," Quill Driver Books 2005--- (12 reviews on Amazon.com).B12 deficiency causes demyelination of the nervous system and brain--- and has similar symptoms to MS. B12 deficiency is a good diangosis--- because it has a cure-- where MS does not, but if B12 def. is diangosed late-- you can be permanently injured or crippled. Before taking any B12 --have the above tests done--- or it will screw up the results.
    Anonymous 42789 Replies
    • February 18, 2007
    • 05:38 PM
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  • Do any of these illnesses cause additional symptoms of nausea and transient blurry vision? Thank you
    Anonymous 42789 Replies
    • February 19, 2007
    • 02:02 AM
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  • Yes, B12 deficiency can cause visual disturbances, but so can a lot of other disorders. Again, have your doctor order a methylmalonic acid test to rule out B12 deficiency.
    Anonymous 42789 Replies
    • February 20, 2007
    • 02:58 AM
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  • I think that the b12 is a good idea.And.
    Anonymous 42789 Replies
    • February 20, 2007
    • 04:35 AM
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