Discussions By Condition: I cannot get a diagnosis.

i can't get a diagnosis

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: conazo19
  • October 17, 2006
  • 02:26 AM

I AM a 34 year old. Since may of 2006, i been having my left leg from my hip down to my feet numb also only my right feet whith sharp pain in my left hip.Pain in the lower back. MRI SHOW ONLY SMALL HERNIA IN THE DISC AND EMG TEST NEGATIVE.In june i started having dizziness on and off that can last up to 1min.,that unable me to control movement of my body.Already visited three neurologist and neither one can't get a dianosis, they say my simptoms don't match the complaint.

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  • I AM a 34 year old. Since may of 2006, i been having my left leg from my hip down to my feet numb also only my right feet whith sharp pain in my left hip.Pain in the lower back. MRI SHOW ONLY SMALL HERNIA IN THE DISC AND EMG TEST NEGATIVE.In june i started having dizziness on and off that can last up to 1min.,that unable me to control movement of my body.Already visited three neurologist and neither one can't get a dianosis, they say my simptoms don't match the complaint.I wuld suggest you to have an X-ray of neck collum to see there is any servical neck herniation. then probably CT head to rule out any abnormality.
    Anonymous 42789 Replies
    • October 17, 2006
    • 06:18 AM
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  • Wait, next the Neuroligists will tell you it is anxiety. They love that one!!! I think all neuroligists should be required to have a undiagnosable condition and let them be told it is anxiety. Hang in there and keep searching for an answer. You may ultimatately find someone who will give you one, or at least reasure you it is nothing life threatening, and in time it will probably go away. "Time", is usually 1-2 years. I'm 1.5 years into mine - still no real diagnosis. I am improving...but very slowly. I have had similar symptoms, so I can relate. I agree with the other post, go get an MRI/MRA of your cervicle spine (neck), perhaps brain as well.
    Anonymous 42789 Replies
    • October 20, 2006
    • 09:03 PM
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  • I AM a 34 year old. Since may of 2006, i been having my left leg from my hip down to my feet numb also only my right feet whith sharp pain in my left hip.Pain in the lower back. MRI SHOW ONLY SMALL HERNIA IN THE DISC AND EMG TEST NEGATIVE.In june i started having dizziness on and off that can last up to 1min.,that unable me to control movement of my body.Already visited three neurologist and neither one can't get a dianosis, they say my simptoms don't match the complaint. I hope that my experience can help you figure out how to deal with your symptoms. I also experienced what you are talking about and the crazy symptoms kept getting more radical and made no sense ...but made my life ***l and healthy people think you're crazy. Soft Tissue damage is not shown in tests unless maybe a few as those that test for protein type irregularities in the blood. The symptoms I describe started out like yours and then began to change and come in stages. Sometimes I would have so many symptoms that together none of them made sense. So all the doctors I saw thought I just wanted drugs ( or was taking them!) Until I saw a fantastic arthritis doctor here near OKC. In 1992, my 18yr old son was exposed to some friend's siblings who had chickenpox....he was stressed out since he was going into the Navy, he developed shingles while waiting to catch his flight to boot camp. I was exposed to his shingles. Then after separating from my 1st husband (my son's father) in 1993. Later that year, (a week after I met my to be (now) husband I was exposed to husband's son's pink eye and a week later I developed it myself. About a year later, I and my (future & now) husband developed shingles. I myself suffered from 'hives' off and on throughout the years. Then in June of 1995, my husband got very, very ill from 'tick' fever....he was diagnosed and treated at the hospital. :confused: Do you have some history of illness like this? Arthritis is one of the names given to autoimmune disease...due to the physical complaint. But this arthritis doc who last treated me knew that the meds he used for arthritis and some cancers would bring my autoimmune symptoms under control. I think that you may be experiencing some over active immune system symptoms. :eek: The numbness is due to damage done to the nerve endings in your body. Sometimes our immune system will confuse different cells of our body with enemy invader cells, viruses...etc. The best information that I can offer you is what I found to be my cause of the numbness.....I had it in one leg and arm (same side) then it would sometimes move to the other side. Then soles of my feet (about 5 yrs later) felt like they were burning off....stiff muscles...cluster headaches, was damage done by immune system. It was attacking the nerve endings ( developing shingles AGAIN later....just made everything 1,000 times worse)Being exposed to children's viral infections....you may not think that you will be vulnerable...but you CAN be....you won't know until you get shingles, etc. VACCINATIONS, whether preventative or antibiotic treatments, have been great healers and they have been great destructors of immune systems......it is all a chance that you have to take.Hives are a great indicator of an immune system out of control, if they can't be linked to direct exposure of an irritant. After years of the numbness, headaches, hives, exhaustion, etc., I developed restless leg syndrome. That is a whole new definition in ***l....that made sleeping impossible. These things that I am describing are a culmination of almost ten years of agony. I am doing much better now, I was given (not at the same time) elovil (for hives and restless leg) worked fair for a few weeks, prozac ( to help with stress of illness) helps a lot to diffuse hives trigger, Bextra, and another popular medicine, some I can't remember (because they did'nt work)...but the best I ever had that gave ME no adverse reactions was Methotrexate (usuall used for some cancers, I believe)which has been around forever. I am not taking anything now, due to the loss of health insurance and no money for doctors, tests and meds. But the methotrexate gave me a symptom free existance and I FELT HEALTHY AND NORMAL!!!!!! Even though I have been off it for 10 months now, my immune system is not as aggressive as it was. The numbness in my feet, legs, arms and the head jerks are still gone. I sometimes still have some numbness in my hands, but it's not painful and I can use my hands even though they are stiff. The dizzy spells have come back, sometimes a moment of confusion, and my balance is getting bad again....used to I could'nt go through a door without running into the doorframe (like a drunk person). I could never do the balance test that a traffic officer would demand for proof of sobriety!! My balance is just not good enough. I have some residual balance and nerve ending problems but I think that they are getting bad again due to the resuming aggressiveness of my immune system (again). Mental and physical stress causes adrenal fatigue which also accounts for the being 'out of breath' all the time feeling. :mad: Mental and emotional stress triggers the autoimmune system for fight or flight in most cases and in a everyday stressful environment without time for your body to completely relax and recuperate......the body just 'implodes' from too much adrenal activity. If the immune system is attacking the nerve endings in your body....all kinds of pain, burning sensations and numbness will result. I have had and still have to a lesser degree all of these. Lack of restful sleep is a very dangerous thing for all of us who are experiencing unexplained ailments. If your body is unable to deal with regular exercise, .....Slow, deliberate (reaching) stretches are much better than energetic exercise for those of us who experience muscle pain and numbness. They warm the muscles and make your body feel better, remember to BREATHE while you stretch! They are also more appropriate for very stiff muscles and headaches. If.....you can do energetic exercise such as walking, jogging and running....please do. You cannot buy or find for any price the endorphins (hormones) that these exercises release to your brain and in turn triggers cellular rejuvenation. These endorphins also trigger moods of happiness, and a feeling of mental well being. I don't know why, but they do feel good. The lazy walks out in the 'woods' with my mom just looking at things we've seen many times before always felt 'physically good as well as mentally'. Now that she lives 3 states away....I feel in some way has contributed to both our health problems. We miss each other terribly. My husband is also suffering from no energy, and a very picky appetite..l took it personally until I realized that he is suffering from autoimmune too. He's tried all kinds of antidepressants and they just make him sleepy and tired. Otherwise we are very happy....the only problems that we have are the universal one with everyone else.....not enough money to pay our bills AND have a vacation. We have'nt had a vacation in 9 years. :cool: EVERY CHANCE YOU GET.........FIND A WAY TO RELAX YOU BODY AND YOUR MIND.....ESPECIALLY WHEN YOU SLEEP. GO TO SLEEP BEFORE 10:30 PM BECAUSE 10:30 PM IS THE MAGIC START CYCLE OF THE BODY'S CELLULAR REGENERATION (according to some studies I've read about). I have been able to feel better when I stick to this regimine. I have some more info on what I've been doing to calm down my immune system if you think it would help.:) ) Love and Happiness to YOU, always remember that YOU deserve nothing less!!
    flopsiemopsiegirl 4 Replies
    • October 21, 2006
    • 05:40 PM
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  • I AM a 34 year old. Since may of 2006, i been having my left leg from my hip down to my feet numb also only my right feet whith sharp pain in my left hip.Pain in the lower back. MRI SHOW ONLY SMALL HERNIA IN THE DISC AND EMG TEST NEGATIVE.In june i started having dizziness on and off that can last up to 1min.,that unable me to control movement of my body.Already visited three neurologist and neither one can't get a dianosis, they say my simptoms don't match the complaint. :) I rambled so much that I am sure that you could'nt understand what I was trying to say. But the gist of it was that you may have an autoimmune response to stress. This in turn may be causing your immune system to mistakenly attack the nerve endings in various places of your body. This accounts for the pain, muscle ticks, jerking, numbness and even the dizzy spells. I would even sometimes have sensations of water dripping down my legs and they would be dry. Especially at night, I would be in misery with the ends of my toes and soles of my feet....they felt like I was standing barefoot on a hot sidewalk. Very hard to sleep at night with that going on. I would start to fall asleep at night in bed and all at once my whole body would ***k so hard that I would wake my husband and it hurt to ***k that hard! My husband is not fat, but he's a big, tall guy...and I'd almost knock him out of the bed. For several years I experienced the exact same thing as you are now. My MRI showed that I had a small amount of narrowing in the spine near the base of my skull that might some day squeeze my spinal cord....but the specialists all said that the narrowing is insignificant now and should not be causing any problems. I am still having dizzy spells. When you are in a lot of pain, is when a blood test should be done for arthritis.....it's the only way to know for sure if your body is stressed out enough to have an over active immune response. Something in the blood test lets the arthritis doctor know that there is an autoimmune response. Even though my doctor never could tell me what I had, he found a medicine that stopped the symptoms. At one of my visits to the doc, I was in so much pain that my blood pressure reading tipped off the nurse..he said "you're in a lot of pain are'nt you?" I asked "how did you know that?" He told me that my blood pressure was a lot higher than normal. After a year of treatment, my doctor said he still did not have a name for my condition. We agreed that for right now, if the methotrexate was working and I was'nt having any problems....it was enough. I was just satisfied to have relief. The stress could be biological or emotional or both. And you may not even realize how stressed out you really are. I know that this theory does'nt sound right, but when you are searching here on the internet...check out adrenal fatigue, autoimmune disease and check out all the damage nerves can sustain from the immune system. I've lived with the shooting pains, numbness, dizziness, body jerks, my head would ***k suddenly when driving, etc., my shoulderblades, the small of my back and hips would hurt so bad. My neck would get so stiff, I could'nt turn it...and it would cause me to have headaches so bad that I would just lay in the bed and keep the room dark. I went to a lot of chiropractors, for years.Sometimes I have even wondered if I was having some sort of epileptic disorder, but I suppose if I did....there would be lesions on my brain or something to tip off the doctor. Anyway, I never understood the jerking, spasming episodes in different areas of my body. I even took supplements that is supposed to be for muscle spasms, etc. I did'nt see any improvement. When I get enough money, I'm going to resume the med I was last on. The med is'nt expensive, but the tests and dr visits are. The possible side effects are serious, but I did'nt experience a single one. The relief is wonderful! I'm rambling again. Sorry.
    flopsiemopsiegirl 4 Replies
    • October 23, 2006
    • 02:52 AM
    • 0
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  • I AM a 34 year old. Since may of 2006, i been having my left leg from my hip down to my feet numb also only my right feet whith sharp pain in my left hip.Pain in the lower back. MRI SHOW ONLY SMALL HERNIA IN THE DISC AND EMG TEST NEGATIVE.In june i started having dizziness on and off that can last up to 1min.,that unable me to control movement of my body.Already visited three neurologist and neither one can't get a dianosis, they say my simptoms don't match the complaint. :) I rambled so much that I am sure that you could'nt understand what I was trying to say. But the gist of it was that you may have an autoimmune response to stress. This in turn may be causing your immune system to mistakenly attack the nerve endings in various places of your body. This accounts for the pain, muscle ticks, jerking, numbness and even the dizzy spells. I would even sometimes have sensations of water dripping down my legs and they would be dry. Especially at night, I would be in misery with the ends of my toes and soles of my feet....they felt like I was standing barefoot on a hot sidewalk. Very hard to sleep at night with that going on. I would start to fall asleep at night in bed and all at once my whole body would ***k so hard that I would wake my husband and it hurt to ***k that hard! My husband is not fat, but he's a big, tall guy...and I'd almost knock him out of the bed. For several years I experienced the exact same thing as you are now. My MRI showed that I had a small amount of narrowing in the spine near the base of my skull that might some day squeeze my spinal cord....but the specialists all said that the narrowing is insignificant now and should not be causing any problems. I am still having dizzy spells. When you are in a lot of pain, is when a blood test should be done for arthritis.....it's the only way to know for sure if your body is stressed out enough to have an over active immune response. Something in the blood test lets the arthritis doctor know that there is an autoimmune response. Even though my doctor never could tell me what I had, he found a medicine that stopped the symptoms. At one of my visits to the doc, I was in so much pain that my blood pressure reading tipped off the nurse..he said "you're in a lot of pain are'nt you?" I asked "how did you know that?" He told me that my blood pressure was a lot higher than normal. After a year of treatment, my doctor said he still did not have a name for my condition. We agreed that for right now, if the methotrexate was working and I was'nt having any problems....it was enough. I was just satisfied to have relief. The stress could be biological or emotional or both. And you may not even realize how stressed out you really are. I know that this theory does'nt sound right, but when you are searching here on the internet...check out adrenal fatigue, autoimmune disease and check out all the damage nerves can sustain from the immune system. I've lived with the shooting pains, numbness, dizziness, body jerks, my head would ***k suddenly when driving, etc., my shoulderblades, the small of my back and hips would hurt so bad. My neck would get so stiff, I could'nt turn it...and it would cause me to have headaches so bad that I would just lay in the bed and keep the room dark. I went to a lot of chiropractors, for years.Sometimes I have even wondered if I was having some sort of epileptic disorder, but I suppose if I did....there would be lesions on my brain or something to tip off the doctor. Anyway, I never understood the jerking, spasming episodes in different areas of my body. I even took supplements that is supposed to be for muscle spasms, etc. I did'nt see any improvement. When I get enough money, I'm going to resume the med I was last on. The med is'nt expensive, but the tests and dr visits are. The possible side effects are serious, but I did'nt experience a single one. The relief is wonderful! I'm rambling again. Sorry.
    flopsiemopsiegirl 4 Replies
    • October 23, 2006
    • 02:53 AM
    • 0
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  • I AM a 34 year old. Since may of 2006, i been having my left leg from my hip down to my feet numb also only my right feet whith sharp pain in my left hip.Pain in the lower back. MRI SHOW ONLY SMALL HERNIA IN THE DISC AND EMG TEST NEGATIVE.In june i started having dizziness on and off that can last up to 1min.,that unable me to control movement of my body.Already visited three neurologist and neither one can't get a dianosis, they say my simptoms don't match the complaint. Try looking into nerve damage. The reason I'm saying this is my mother currently has 3 ruptured disks and fractured vertebre and can hardy control movements as well as bodily functions until she has surgery. I'm not sure what kind of specialist you will need to see, but ask your doctor for a referral to look into nerve damage. Hope this helps!!;)
    DesireeS 4 Replies
    • October 24, 2006
    • 00:13 AM
    • 0
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