Discussions By Condition: I cannot get a diagnosis.

I Can't Breathe...

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Alewife
  • April 8, 2009
  • 03:08 PM

I will keep this short and to the point. I have asthma, I've had it all my life and I am 25 years old. I used to run track and play sports daily. In 2004 I had very bad asthma one day and would use my inhaler multiple times daily since. It began as a tightness in my chest and the inhaler didn't help like it used to.

Fast forward five years later. I have post nasal drip due to my allergies and this triggers asthma (as far as I can tell). I have gone from a complete jock to a complete **m because trying to run always results in an asthma attack and I end up trying to cough up loose "stuff" I feel in my chest. My last attempt at exercise was a 3 minute run around the block. This resulted in me have to use my nebulizer and I had to lay on my floor for about 45 minutes until I felt OK.

I'm on symbicort, claritin, and mucinex at the moment. Nothing is working.

Please help, this has taken a large toll on me both physically and mentally and has caused a lot of problems in my professional life.

Thank you.

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1 Replies:

  • I'm not sure, but it's possible that you have the same disorder I do. It's supposedly rare, but I have to wonder if it's just not under diagnosed.I decided to post this in case you are still struggling with the same problem I had.My breathing problem fell into two categories. Rapid onset: it started about ten minutes after eating and last 45 mins. or Low grade: This type seemed to just linger in the background and I didn't realize it was happening until I tried to climb a set of stairs or something.After a decade of this bs - I got in to see a university doctor (which I recommend). She was a GI doc and she stained a biopsy of my GI tract to find I have "mast cell activation disorder" (close to mastocytosis). I'm now taking tons of allergy meds and Gastrocrom and I feel much better. But even my smart university doc didn't know how exactly to treat me and had me under medicated until I found a group of other pts who helped me.If you want to check this out - do not get a blood test for it as your "tryptase blood serum" isn't accurate because it goes up and down. It's complicated. But I wanted to report back to let you know what it was for me. Good luck. If you really want to communicate with me , you can try muse meg at m s n. Put "i can't breathe" in the subject line.
    Anonymous 42789 Replies
    • August 15, 2011
    • 06:57 PM
    • 0
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