Discussions By Condition: I cannot get a diagnosis.

I've Stumped 3 docs, an OS, and PT!!! Please Help!!!

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: painintheknee
  • June 29, 2007
  • 10:43 PM

I am new to the forum. Here is my long and complicated story. I hope that someone here can give me some insight.

I am 15 years old. I have played many, many sports, my best ones being hockey and softball. When I was 8, I was diagnosed with tendinitis. I just kinda shrugged it off and continued with my sports. I moved to Florida when I was 13, and the knee pain started to get worse. When I left Florida, right before my 14 birthday, I was wearing a brace everyday. I then moved to Oregon, where the pain has been unbearable. I went to a doctor, and she did x-rays, which she told me that I had a higher than normal patella. She gave me a prescription for Naprosyn. I was then sent for and MRI. That came back negative for anything. They even said that my patella was not higher than normal. I was still in a lot of pain, so I went to a different doctor. He diagnosed with ITBFS and Generalized Ligament Laxity. He "disproved" the tendinits. He told me to start PT, but never gave me a referral for the place, which my insurance company needs. I was still in amazing amounts of pain, so I again went to a different doctor. I finally filled the Naprosyn. I started taking it and it made my neck so sore, that I wasn't able to turn my head at all. This third doctor, took a look at my knee, and along with the ITBFS and Generalized Ligament Laxity, he diagnosed me with Chondromalacia. He also took a look at my neck. He got behind me, and without permissio or warning, quickly cracked my neck twice. He tried to crack my back, but I refused. He gave me a referral for PT, and gave me a prescription for Lodine, saying that the Naprosyn was too strong for me. My mom and I were very disappointed with his attitude with me, he acted like he needed to be somewhere right then. I tried the Lodine, and it made my heart "flutter." My mom took me to an OS. I was in unbearable amounts of pain by now. He diagnosed me with ITBS and said that PT was my treatment. Before I started PT, I was in his office quite a bit. The pain was just too much for me. I was someone would couldn't be stopped, and now I am someone who can't be moved. I am in pain 24/7. Anyway, there was one time that I came into his office, because my calf and ankle and foot were so swollen, I was scared. My calf was hard, cold, and tender to the touch. He sent me to the hospital for an ultrasound to check for a blood clot. There was no blood clot, but also no explanation for the swelling. After that time, my foot and ankle constantly feel swollen, and my leg is tender to the touch. I started PT, but the only difference was more pain and more flareups. About one hour after each PT session, I would have a very severe flareup, that would last for about 4 hours. I had PT twice a week, with 7 exercises to do at home twice a day. They tried the TENS unit on me, and about one hour after it, I was crying in pain, for about 2 hours, then just the typical flareup. At my fifth visit, my PT contacted my OS and together they decided to quit the PT. My PT said that by the fifth session there should be some sort of change, even the slightest. There was nothing, only worsened pain. I was on crutches for 5 weeks and in pain 24/7. I still am in pain. I can't function normally. I have developed insomnia, and fatigue that I haven't been able to shake off. I slept for 14 hours, and when I woke up, I still was so tired that I felt like I hadn't slept in a couple days. I have 2 or 3 headaches everyday, and did I mention that I was in pain??? pain pain pain pain pain pain pain 24/7. No OTC or Lodine/Naprosyn have touched the pain.
Thanks for listening to me vent and to the long story. I am currently trying to get into a pain management center, where my OS referred me.

Thanks Again,

Reply Flag this Discussion

2 Replies:

  • pauciarticular juvenile rheumatoid arthritis.
    rad-skw 1,605 Replies Flag this Response
  • I had similar pain complaints with my knee and although it may be different. I too was active in sports but it wasnt till I was about 19 my knee became very bad. The orthopedic doctor and the emergency room and my own doctor said it was maybe a minor cartilage tear and after almost 6 months of exams, xrays and so on the OS decided to do arthroscopic surgery to skim the torn cartilage out. But once he did the arthroscopic surgery he found I had an ACL tear that no one saw. The first reply suggests Juvenile Rheumotid arthritis, that could be a great possiblity also.
    Anonymous 42,789 Replies Flag this Response
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