Discussions By Condition: I cannot get a diagnosis.

I'm too young, please help

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Anonymous
  • January 3, 2010
  • 07:14 PM

Hi I am a young female in my late teens. For the past more than a year now I have been experiencing very painful and chronic symptoms.//
-Pelvic pain (sometimes burning pain, sometimes pressure, sometimes stabbing pain)
-I was having bleeding about 4 times a months so am on a 3month birthcontrol now to regulate it, it was pretty painful every time I would bleed (not a cramps feeling though)
-Incontinence, mostly upon urgency
-Sudden urgency
-Urethral pain only sometimes when I urinate
-Urinating causes lots of pain to my pelvis especially during and afterwards
-It feels like my bladder is sometimes getting contracted inside of me, othertimes like its going to explode from some weird pressure
-Sometimes I urinate 10-20 times a day, sometimes once or twice, and sometimes its average.
-Painful intercourse

All of this pain causes me sometimes to not be able to walk, to be uncomfortable to sit, sometimes I cant leave the house because I'm in so much pain, sometimes I cant leave the house because I need to be by a bathroom for the second I have to pee again.

I have had

Urinalysis- all normal
Blood tests/STD tests- all normal
A cystoscopy (where they look in your bladder) - normal
A colonoscopy- normal
Pap tests- normal
2 pelvic ultrasounds- normal
1 renal (kidneys) ultrasound- normal
I am scheduled for a laproscopy as well

I have seen so many doctors and just keep getting referred to more and they all seem to just want to push me to another one or to give me weird medications that never help anything. All I want is some suggestions as to what this could be, some suggestions as to what to bring up to my doctors that could help them look into something else, or even anyone who has experienced something like this before to comment and let me know how it went. I feel like im getting smothered by it because I can hardly even leave the house anymore and i feel very frustrated because i feel like im so young and cant go out and do or experience anything, please help if you can at all!!!
Thank you!

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7 Replies:

  • Hi I am a young female in my late teens. For the past more than a year now I have been experiencing very painful and chronic symptoms.//-Pelvic pain (sometimes burning pain, sometimes pressure, sometimes stabbing pain)-I was having bleeding about 4 times a months so am on a 3month birthcontrol now to regulate it, it was pretty painful every time I would bleed (not a cramps feeling though)-Incontinence, mostly upon urgency-Sudden urgency-Urethral pain only sometimes when I urinate-Urinating causes lots of pain to my pelvis especially during and afterwards-It feels like my bladder is sometimes getting contracted inside of me, othertimes like its going to explode from some weird pressure-Sometimes I urinate 10-20 times a day, sometimes once or twice, and sometimes its average.-Painful intercourseAll of this pain causes me sometimes to not be able to walk, to be uncomfortable to sit, sometimes I cant leave the house because I'm in so much pain, sometimes I cant leave the house because I need to be by a bathroom for the second I have to pee again. I have hadUrinalysis- all normalBlood tests/STD tests- all normalA cystoscopy (where they look in your bladder) - normalA colonoscopy- normalPap tests- normal2 pelvic ultrasounds- normal1 renal (kidneys) ultrasound- normalI am scheduled for a laproscopy as wellI have seen so many doctors and just keep getting referred to more and they all seem to just want to push me to another one or to give me weird medications that never help anything. All I want is some suggestions as to what this could be, some suggestions as to what to bring up to my doctors that could help them look into something else, or even anyone who has experienced something like this before to comment and let me know how it went. I feel like im getting smothered by it because I can hardly even leave the house anymore and i feel very frustrated because i feel like im so young and cant go out and do or experience anything, please help if you can at all!!! Thank you!Have them test you for Herpes II Antibody. It sounds like you have a urethritis. Ask them to put you on an antibiotic for urethritis, 2 week course. Often on cystoscopy, docs do not look very long at the urethra and your problem sounds like it is coming from your urethra. If you do have Herpes II Antibody, ask for a Zovirax or Valtrex. This is NOT in your head. I doubt laparoscopy will help. Your problem is definitely coming from the urethra and that is where they need to look. gyn doc.
    Anonymous 42789 Replies
    • January 4, 2010
    • 04:20 AM
    • 0
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  • Have them test you for Herpes II Antibody. It sounds like you have a urethritis. Ask them to put you on an antibiotic for urethritis, 2 week course. Often on cystoscopy, docs do not look very long at the urethra and your problem sounds like it is coming from your urethra. If you do have Herpes II Antibody, ask for a Zovirax or Valtrex. This is NOT in your head. I doubt laparoscopy will help. Your problem is definitely coming from the urethra and that is where they need to look. gyn doc.Can that cause lots of pelvic pain if its coming from he urethra? (thank you for posting!!)
    Anonymous 42789 Replies
    • January 5, 2010
    • 07:03 PM
    • 0
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  • Hi. Something similar is happening to me. I'm not sure if it's the exact same problem, but it's definitely affected me psychologically in a similar way. I'm eighteen years old, turning nineteen in May. I became sexually active a few months ago. Everything was fine until I started having UTIs about a month afterward. And they just kept coming back.Back in July I was put on an antibiotic for a week, and my UTIs went away for about a month.Then, in September, I started experiencing UTI-like symptoms about twenty minutes after urinating in the morning. I'm still really struggling with this problem. The burning persists for about one to two hours and then goes away completely. It's so intense sometimes that it's starting to interfere with my education; I've missed about 12 days of class because of it. However, I don't experience these symptoms if I avoid urinating in the morning. I usually hold it until the afternoon now, just to avoid the pain. I'm a vegetarian. I use condoms and I don't take birth control pills. I'm not on any sort of medication at the moment. I have no idea what could be wrong, unless it's sex-related.I haven't yet visited a doctor because I'm not sure whether to go to a urologist or a gynecologist. I'm going to visit a general practitioner this week, however, so he can refer me to a specialist.
    Anonymous 42789 Replies
    • December 21, 2010
    • 08:12 PM
    • 0
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  • Hi. Something similar is happening to me. I'm not sure if it's the exact same problem, but it's definitely affected me psychologically in a similar way. I'm eighteen years old, turning nineteen in May. I became sexually active a few months ago. Everything was fine until I started having UTIs about a month afterward. And they just kept coming back.Back in July I was put on an antibiotic for a week, and my UTIs went away for about a month.Then, in September, I started experiencing UTI-like symptoms about twenty minutes after urinating in the morning. I'm still really struggling with this problem. The burning persists for about one to two hours and then goes away completely. It's so intense sometimes that it's starting to interfere with my education; I've missed about 12 days of class because of it. However, I don't experience these symptoms if I avoid urinating in the morning. I usually hold it until the afternoon now, just to avoid the pain. I'm a vegetarian. I use condoms and I don't take birth control pills. I'm not on any sort of medication at the moment. I have no idea what could be wrong, unless it's sex-related.I haven't yet visited a doctor because I'm not sure whether to go to a urologist or a gynecologist. I'm going to visit a general practitioner this week, however, so he can refer me to a specialist.Sorry to hear that, it's a frustrating process. It has been over 2 years now for me and I am still having problems. It really takes a toll on the education, I missed almost an entire semester and the grades I ended up with really interfered with my schooling options. I can relate to trying to hold it past morning, morning is the worst. Definitely see a gyno and a urologist, they are both very useful. I ended up getting a laproscopy and they found out I had endometriosis, a lot of my pelvic pain is gone since they removed all of the tissue, but I still have a LOT of bladder pain. I recommend drinking lots of water, buy some cranberry pills they help keep UTI's away, and baths are usually the only thing that ever help me. Its frustrating just getting rid of one UTI and then getting another one! Mine isnt sex related i have had all of that checked but do make sure that you get it all checked too! I really hope that your problems do not last as long as mine have! they take a lot out of a person! best of luck
    Anonymous 42789 Replies
    • December 23, 2010
    • 03:15 AM
    • 0
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  • A form of cystitis?http://en.wikipedia.org/wiki/Cystitis
    taniaaust1 2267 Replies
    • December 24, 2010
    • 07:28 AM
    • 0
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  • Ask your doctor about interstitial cystitis. I don't remember if the tests you've had would rule it out, I've only seen one case of it and it was a couple years ago.But it presents itself as what appears to be a recurrent UTI, pain with intercourse, a lot of the symptoms you portray. Except for you can't treat it with antibiotics and it doesn't go away. I think there is a medication to help manage it and some treatments to help you deal with a lot of the symptoms.I hope it turns out to be something else, I feel for anyone with interstitial cystitis.
    rockxgoddess 3 Replies
    • December 25, 2010
    • 01:10 PM
    • 0
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  • Hi I am a young female in my late teens. For the past more than a year now I have been experiencing very painful and chronic symptoms.//-Pelvic pain (sometimes burning pain, sometimes pressure, sometimes stabbing pain)-I was having bleeding about 4 times a months so am on a 3month birthcontrol now to regulate it, it was pretty painful every time I would bleed (not a cramps feeling though)-Incontinence, mostly upon urgency-Sudden urgency-Urethral pain only sometimes when I urinate-Urinating causes lots of pain to my pelvis especially during and afterwards-It feels like my bladder is sometimes getting contracted inside of me, othertimes like its going to explode from some weird pressure-Sometimes I urinate 10-20 times a day, sometimes once or twice, and sometimes its average.-Painful intercourse All of this pain causes me sometimes to not be able to walk, to be uncomfortable to sit, sometimes I cant leave the house because I'm in so much pain, sometimes I cant leave the house because I need to be by a bathroom for the second I have to pee again. I have had Urinalysis- all normalBlood tests/STD tests- all normalA cystoscopy (where they look in your bladder) - normalA colonoscopy- normalPap tests- normal2 pelvic ultrasounds- normal1 renal (kidneys) ultrasound- normalI am scheduled for a laproscopy as well I have seen so many doctors and just keep getting referred to more and they all seem to just want to push me to another one or to give me weird medications that never help anything. All I want is some suggestions as to what this could be, some suggestions as to what to bring up to my doctors that could help them look into something else, or even anyone who has experienced something like this before to comment and let me know how it went. I feel like im getting smothered by it because I can hardly even leave the house anymore and i feel very frustrated because i feel like im so young and cant go out and do or experience anything, please help if you can at all!!! Thank you! You have all the symptoms of interstitial cystitis (IC), which is caused by damage to the lining of the bladder that normally protects the bladder from the acid in urine. It is NOT caused by bacteria, and the worst thing you can eat or drink is cranberry juice!!! You need to go to a urologist and have one of the tests that will diagnose IC. A regular cystoscopy will not show IC - you need a hydrodistention, which is a test done under general anesthesia (or epidural). Your bladder will be filled to capacity, and the doctor will look for signs of bleeding and small tears in the lining of the bladder. The reason for the general anesthesia is because the bladder stretching, if you actually have IC, is too painful, and no compassionate doctor would put you through so much pain! The other test is the potassium sensitivity test (PST), during which a potassium solution is put into the bladder. If you have IC, the potassium solution will be very painful. If it doesn't hurt, it generally means you don't have IC. Unfortunately, for this test you have to be awake. I was diagnosed before the PST was available, so I had the hydrodistention under general anesthesia. To get more information, go to ic-network.com. You'll find an enormous amount of information and tips on how to live with IC. They have a wonderful support forum that will help you through this painful time. I've had IC for almost 20 years, from back in the time when there was no internet to find information.
    pingpong1953 5 Replies
    • January 4, 2011
    • 06:48 PM
    • 0
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