Discussions By Condition: I cannot get a diagnosis.

I'm thinking autoimmune...any input?

Posted In: I cannot get a diagnosis. 8 Replies
  • Posted By: leanner977
  • October 26, 2009
  • 07:01 PM

That's my own diagnosis and I havent' even been able to narrow it down but here is a list of symptoms:

~ Red scaley sores on the tips of my second toes (both feet, sometimes they will show up on my middle toes...but it is always bilateral) that come and go but ALWAYS appear in the fall.
~ Leg pain that drives me to tears...it gets better when I move, sitting still is when it is worst. It isn't a cramp, just a very deep terrible ache.
~ Splinter hemorrhages under multiple finger nails
~ Chronic low WBCs

I am anemic and take iron supplements as well as 1000mcg of B12 every 3 weeks but I'm otherwise healthy.

When I mention it to my doctor he says "very odd" but can't seem to come up with a diagnosis.

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8 Replies:

  • Any family history of any clotting disorders? hemophilia A/B or vonWillebrand's? Not all cases of bleeding disorders have characteristic massive bleeding episodes. Some are minor and show near normal clotting abilities, but internal bleeding episodes can occur. It's an idea. lower than normal clotting explains some things. The leg pain could be caused by internal capillary bleeds. Also the under nail bleeding fits. These bleeding episodes would explain your anemia. The anemia could be having an effect on your WBC count. Also i'm guessing your second toes are the longest, ie longer than big toe. These sores likely start in the fall, because from summer to fall you go from barefeet and sandals to more time in shoes, with your longest toes getting most of the friction resulting in sores. I doubt it is autoimmune.
    Croatiamedstudent 32 Replies
    • October 26, 2009
    • 08:29 PM
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  • Any family history of any clotting disorders? hemophilia A/B or vonWillebrand's? Not all cases of bleeding disorders have characteristic massive bleeding episodes. Some are minor and show near normal clotting abilities, but internal bleeding episodes can occur. It's an idea. lower than normal clotting explains some things. The leg pain could be caused by internal capillary bleeds. Also the under nail bleeding fits. These bleeding episodes would explain your anemia. The anemia could be having an effect on your WBC count. Also i'm guessing your second toes are the longest, ie longer than big toe. These sores likely start in the fall, because from summer to fall you go from barefeet and sandals to more time in shoes, with your longest toes getting most of the friction resulting in sores. I doubt it is autoimmune.No family history that I'm aware of but that certainly does fit. Would also explain the random nosebleeds I used to get. I'll have to look more into this.As far as the toes...it's not from shoes, my second toes are shorter than my great toes...besides that, I actually go barefoot or in just sandals even in cooler temps. :)The autoimmune thought came up because it is always bilateral and cyclical and that seems to be pretty standard for many autoimmunes. Thanks for the input though!
    Anonymous 42789 Replies
    • October 26, 2009
    • 08:37 PM
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  • couplequestions, how long has this been going on? ever get your tongue pierced?
    gregtfish 67 Replies
    • October 27, 2009
    • 02:46 AM
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  • couplequestions, how long has this been going on? ever get your tongue pierced?This fall will be about 3 years since the "toe spots" started. Leg pains are new in the past 6 months. Splinter hemorrhages it's hard to say because I'm sure I noticed and dismissed them for awhile before I realized what they were.No tongue piercing....ears, nose and a nipple ones though...and a few tattoos if that is relevant at all.
    leanner977 1 Replies
    • October 27, 2009
    • 00:10 PM
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  • Actually, those aren't that relevent to what I was thinking, I had seen something similar in a patient who contracted bacterial endocarditis from viridians strep after a tongue piercing. It is normal flora of the mouth once in a while enters the bloodstream during dental work or sometimes tongue piercing. But that situation complicates fairly rapidly and would not last 3yrs. so it's not that. Sorry I could not be more helpful.You may want to consider having a liver panel run, however it may lead you in the direction of some clearer answers.
    gregtfish 67 Replies
    • October 27, 2009
    • 09:45 PM
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  • lichen simplex TAKE A LOOK INTO THE lichen simplex SYMPTOMS AND SKIN PROBLEMS THAT DOES COME WITH autoimmune disease SEE IF ANY PICTUERS LOOK LIKE WHAT U EXPLAIN OR GO TO https://atlases.muni.cz/atlases/kuze/atl_en/index-en.html (ATLAS OF DERMATOLOGY)
    charmaine petzer 176 Replies
    • October 30, 2009
    • 09:57 AM
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  • HI TAKE A LOOK AT lichen sclerosus OR TAKE A LOOK AT https://atlases.muni.cz/atlases/kuze/atl_en/index-en.html SEE IF ANY PICTUERS LOOK LIKE YOUR PROBLEM
    charmaine petzer 176 Replies
    • October 30, 2009
    • 10:27 AM
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  • No family history that I'm aware of but that certainly does fit. Would also explain the random nosebleeds I used to get. I'll have to look more into this. As far as the toes...it's not from shoes, my second toes are shorter than my great toes...besides that, I actually go barefoot or in just sandals even in cooler temps. :) The autoimmune thought came up because it is always bilateral and cyclical and that seems to be pretty standard for many autoimmunes. Thanks for the input though! Wow,the last sentence of your post describes my situation to a t.My symptoms are skin and urinary.:cool:
    bigboy 64 Replies
    • September 30, 2010
    • 02:32 PM
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