Discussions By Condition: I cannot get a diagnosis.

I'm getting worse, and getting scared...

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Anonymous
  • January 26, 2008
  • 02:34 PM

Hi i'm new here,
but i'll try to start this right.

Please be patient.

I'd like to start with a few facts, then start from the beginning.


As a child i spent a lot of time on the streets, because i came from a unsafe and abuseive household. I had little food, and did not eat well, i was very malnutritioned. I lived in a dirty house, run by runaway children, and i became a strong drug user.
(Meth, Marajuana, LSD, Mushrooms, Etc.)

Never did i use a needle though.

When i was a child i got a rash on my right elbow, it seemed like the pores got infected almost, showing as small red dots...
it was no big deal.

Years later i was in highschool playing football.
I got a rash on my ankle where i wore my socks.
They called it staff, and gave me antibiotics.
I couldn't tell if they helped, but in time it went away.

I was in hawaii, And i got what i thought to be a cold sore.
I had NEVER had one before, but i was with my girlfriend at the time who claimed to have herpes so i thought it possible. The cold sore didn't look much like what i'd seen on other people. the bumps were VERY small, and there were hundreds of them, like little pinpricks, all very very close to eachother. It then showed up on my arms in small clusters. i took my girlfriends acyclovier "SP?" and it healed in around a week.

Later me and my girlfriend were having trouble. She moved out, and i was living with a friend. I had been up all night on some meth my friend strangley just gave to me with out wanting anything for it...
"just have it" he said.

It was maybe eight AM and i hadn't slept.
I noticed my left eye was bothering me, i could see a black line, and soon realized the black line was coming from my swolen eyelid.
My upper lip swole up big time, then my other eye.
I was embarrassed and didn't know what was happening.
I went to bed...

I woke up in the morning and both my eyes were swollen shut.
I was taken to the hospital and they diagnosed me with a staff infection.
I was put on antibiotics but i kept getting worse... it was spreading across my scalp, over my ears, down my arms, fingers, hands.
I was rushed to a second hospital, where specialists watched over me.
I had several cultures taken.. 3 and none grew anything, all failed.
This hospital was unsure what was actually wrong with me, so they put an IV of antibiotics in one arm, and an IV of Anti'viral in the other.
It took me "1 week" to begin healing. Then one week to recover at home.

I changed my life...
I got into yoga, became a vegetarian, decided to persue a career in natural medicines. I exersize, i take great care of myself.

3 months later i was sick again.
No drugs, not even a beer.

I was in a second hospital,
they gave me a cat scan of my head to make sure my brain wasn't infected. it wasn't. they gave me antibiotics and i got better in
"a week"... Cellulitus they called it.

3 months later i was sick again.
I took vitamin C in a few large doses.
Between the two hospitals i owed around 20,000.00 dollars and they still had no diagnosis. I didn't go to the hospital this time. I got better in a week.

3 weeks later i had a little trouble with my lip.
I put spirit of campher on it and it went away in a few days.

My face does not blister like herpes is said to.
it does not come in clusters...
I notice it in this order.

1. Lips begin to feel rough to the touch of my tongue, but no visible sign or irritation what so ever.

2. Lips grow red, eye lids begin to swell and feel irritated.

3. Redness begins to feel irritated, and irritation/redness spreads from around my mouth, over my nose, down my chin, connects to my eyes, ears.

4. Signs begin upon my fingers, hands, down my arms, it spreads.

5. The shaft of my penis turns a little red where i was circumsized, and becomes very irritible.

I recieved a call from my X-girlfriend.
She went to the doctor to get checked for HSV. She had never actually been diagnosed. She was clean, never had it.

No HSV
I've been tested for aids 2 times "Negative both times"
I've had my head scanned,
Blood tests,
No cancer,


I'm married, never slept around, and still living healthy.
I've kissed my wife a thousand times while my lips were infected, and she's never got a cold sore in her life. It does not seem in any way shape or form to be contagous. And it does not spread from one place on my body to another through touch. It seems to show up randomly in random places and spread from there running up my limbs toward my heart. or from around my mouth and eyes, away around my head.

It showed up on my back twice very badly.
It came up in long streaks, two long strait lines,
these puffed up, turned almost a slight greyish color, and weeped.
Doctors claimed it was Shingles, then another claimed it to be HSV simplex (the one that spreads over the rest of your body) but could not get a culture to grow.


This rash or what ever you call it is coming around more and more often, and i can't get answers anywhere.

I've detoxed,
I take olive leaf on a regular basis now,
I do everything i can,
I've spoken to doctors, herbalists, acupuncturests, dermetologists, and can't get help.

I had a biopsy "sp?" about a month ago.
They told me the results showed that it could be an alergic reaction to an insect bite. "doesn't make sense to me"
They said it doesn't seem to act like a infection, but they're unsure.
They said it almost kind of resembles chicken pocks in some way, but that it is not, and they do not believe it acts like HSV in any form.

They then said it is their guess that it's either a Allergy or a Auto'immune disease of some sort in which my body is attacking its self.

I'm getting scared.
I'm in more and more pain.
I don't know whats wrong with me, and i'm really really distressed.
Every time it comes full circle and i begin to wish i'd just go to sleep and not wake...
I'm feeling suicidle, Helpless, ........
Every time it goes away i feel this love for life, energy, the world is beautiful. but as soon as i begin to feel comfortable, i begin again to start feeling signs...

I don't know what to do....

Can someone please help.



Matt

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4 Replies:

  • For some people vit c can be a dangerous thing; some diseases vit c can make you quite ill and even be toxic. Iron storage disease, some porphyria diseases I believe. And many other metabolic diseases vit c can play havok with you. Be VERY careful with supplements with your hx of drug use... supplements (vit and herbs) you need to treat like you treat the drugs. Don't take anything you don't need to lessen the risks of side effects from them.Be catreful about anything you ingest for that matter. Your liver must process it, so be kind to the organ you had abused in your youth. You should get checked closely out by a liver specialist because a disease involving the liver could be causing your health issues. Even a rare disease like Porphyria (like acute intermittant porphyria orone of the other 8 kinds of porphyria) could be involved here. Your hx puts you at risk for liver diseases like fatty liver, cirrhosis, viral liver diseases, auto-immune disorders. Some links on liver diseases:http://www.google.com/search?sourceid=navclient&gfns=1&ie=UTF-8&rls=GWYA,GWYA:2006-23,GWYA:en&q=liver+diseases Hi i'm new here, but i'll try to start this right. Please be patient. I'd like to start with a few facts, then start from the beginning. As a child i spent a lot of time on the streets, because i came from a unsafe and abuseive household. I had little food, and did not eat well, i was very malnutritioned. I lived in a dirty house, run by runaway children, and i became a strong drug user.(Meth, Marajuana, LSD, Mushrooms, Etc.) Never did i use a needle though. When i was a child i got a rash on my right elbow, it seemed like the pores got infected almost, showing as small red dots...it was no big deal. Years later i was in highschool playing football.I got a rash on my ankle where i wore my socks.They called it staff, and gave me antibiotics.I couldn't tell if they helped, but in time it went away. I was in hawaii, And i got what i thought to be a cold sore.I had NEVER had one before, but i was with my girlfriend at the time who claimed to have herpes so i thought it possible. The cold sore didn't look much like what i'd seen on other people. the bumps were VERY small, and there were hundreds of them, like little pinpricks, all very very close to eachother. It then showed up on my arms in small clusters. i took my girlfriends acyclovier "SP?" and it healed in around a week. Later me and my girlfriend were having trouble. She moved out, and i was living with a friend. I had been up all night on some meth my friend strangley just gave to me with out wanting anything for it... "just have it" he said. It was maybe eight AM and i hadn't slept.I noticed my left eye was bothering me, i could see a black line, and soon realized the black line was coming from my swolen eyelid.My upper lip swole up big time, then my other eye. I was embarrassed and didn't know what was happening.I went to bed... I woke up in the morning and both my eyes were swollen shut.I was taken to the hospital and they diagnosed me with a staff infection.I was put on antibiotics but i kept getting worse... it was spreading across my scalp, over my ears, down my arms, fingers, hands.I was rushed to a second hospital, where specialists watched over me.I had several cultures taken.. 3 and none grew anything, all failed.This hospital was unsure what was actually wrong with me, so they put an IV of antibiotics in one arm, and an IV of Anti'viral in the other.It took me "1 week" to begin healing. Then one week to recover at home. I changed my life...I got into yoga, became a vegetarian, decided to persue a career in natural medicines. I exersize, i take great care of myself. 3 months later i was sick again. No drugs, not even a beer. I was in a second hospital,they gave me a cat scan of my head to make sure my brain wasn't infected. it wasn't. they gave me antibiotics and i got better in "a week"... Cellulitus they called it. 3 months later i was sick again.I took vitamin C in a few large doses.Between the two hospitals i owed around 20,000.00 dollars and they still had no diagnosis. I didn't go to the hospital this time. I got better in a week. 3 weeks later i had a little trouble with my lip.I put spirit of campher on it and it went away in a few days. My face does not blister like herpes is said to.it does not come in clusters...I notice it in this order. 1. Lips begin to feel rough to the touch of my tongue, but no visible sign or irritation what so ever. 2. Lips grow red, eye lids begin to swell and feel irritated. 3. Redness begins to feel irritated, and irritation/redness spreads from around my mouth, over my nose, down my chin, connects to my eyes, ears. 4. Signs begin upon my fingers, hands, down my arms, it spreads. 5. The shaft of my penis turns a little red where i was circumsized, and becomes very irritible. I recieved a call from my X-girlfriend.She went to the doctor to get checked for HSV. She had never actually been diagnosed. She was clean, never had it. No HSVI've been tested for aids 2 times "Negative both times"I've had my head scanned,Blood tests,No cancer, I'm married, never slept around, and still living healthy.I've kissed my wife a thousand times while my lips were infected, and she's never got a cold sore in her life. It does not seem in any way shape or form to be contagous. And it does not spread from one place on my body to another through touch. It seems to show up randomly in random places and spread from there running up my limbs toward my heart. or from around my mouth and eyes, away around my head. It showed up on my back twice very badly.It came up in long streaks, two long strait lines,these puffed up, turned almost a slight greyish color, and weeped.Doctors claimed it was Shingles, then another claimed it to be HSV simplex (the one that spreads over the rest of your body) but could not get a culture to grow. This rash or what ever you call it is coming around more and more often, and i can't get answers anywhere. I've detoxed,I take olive leaf on a regular basis now,I do everything i can,I've spoken to doctors, herbalists, acupuncturests, dermetologists, and can't get help. I had a biopsy "sp?" about a month ago.They told me the results showed that it could be an alergic reaction to an insect bite. "doesn't make sense to me"They said it doesn't seem to act like a infection, but they're unsure.They said it almost kind of resembles chicken pocks in some way, but that it is not, and they do not believe it acts like HSV in any form. They then said it is their guess that it's either a Allergy or a Auto'immune disease of some sort in which my body is attacking its self. I'm getting scared.I'm in more and more pain.I don't know whats wrong with me, and i'm really really distressed.Every time it comes full circle and i begin to wish i'd just go to sleep and not wake...I'm feeling suicidle, Helpless, ........Every time it goes away i feel this love for life, energy, the world is beautiful. but as soon as i begin to feel comfortable, i begin again to start feeling signs... I don't know what to do.... Can someone please help. Matt
    TaylorDeelwithit 382 Replies
    • January 30, 2008
    • 10:01 PM
    • 0
    Flag this Response
  • Some of your symptoms are consistent with B12 deficiency, which can occur in people who are vegan, malnourished or have an innate malabsorption disorder. Doctor's often get B12 blood levels when patients are in the hospital so you can try checking your medical records. If not, I would recommend getting you blood tested just so you can rule it out. Oral B12 supplementation is possible but people with severe deficiency or malabsorption disorders often require prescription B12 injections.
    Anonymous 42789 Replies
    • January 31, 2008
    • 01:14 AM
    • 0
    Flag this Response
  • When i was reading your message of the symptoms, i kept thinking of maybe some kind of allergic reaction.. things like eye lids can swell in allergic reactions and an allergic reaction could affect the whole body. Seeing the first symptom you are getting is with your mouth.. maybe it is due to something you are eatting???? be more aware of your foods and what you eat in the 24 hr period before one of these reactions. I too are a great believer in vit C and find it helpful for most the issues I get esp when one has problems due to ones immune system not being as well as it should. (years of drug use and stress would of lowered your immunity etc). If it seems to be helping..stick with it.
    taniaaust1 2267 Replies
    • January 31, 2008
    • 08:31 AM
    • 0
    Flag this Response
  • Certain strains of the herpes virus cause cold sores. Herpes simplex virus type 1 usually causes cold sores. Herpes simplex virus type 2 is usually responsible for genital herpes. However, either type of the virus can cause sores in the facial area or on the genitals. You get cold sores from another person who has an active lesion. Shared eating utensils, razors and towels may spread this infection. Once you've had an episode of cold sores, the virus lies dormant in the nerve cells in your skin and may emerge again as an active infection at or near the original site. You may experience an itch or heightened sensitivity at the site preceding each attack. Fever, menstruation, stress and exposure to the sun may trigger a recurrence. I know someone who gets them every time she goes to the dentist and she has never passed one to her kids. I think the contagious part is pertinent only if the person you are in contact with has a break in the skin or is unhealthy. You might have had a cold sore as a child, and a sunburn in Hawaii could have re-activated the virus. Regarding your viral rashes... Viral rash: While viral infections of the skin itself, like herpes or shingles (a cousin of chickenpox), are mostly localized to one part of the body, viral rashes are more often symmetrical and everywhere. Patients with such rashes may or may not have other viral symptoms like coughing, sneezing, or an stomach upset (nausea). Viral rashes usually last a few days to a week and go way on their own. Treatment is directed at relief of itch, if there is any. As a child, you probably missed many vaccinations. Have they checked your antibodies for measles, mumps, rubella, chicken pox and is your tetanus updated? Many other people on this board aren't in favor of vaccinations, but I am personally glad that I never had polio etc. Maybe a specialist of infectious diseases who is familiar with third-world children's diseases might shed some light on your problems. Also, have they looked at parasites of the skin? Keep up the healthy life-style as this can only help your low immune system problems. Have you been tested for methicillin-resistant staph infections? Make sure your docs know about your horrible childhood. Maybe talking with a therapist could unloosen some of the negativity that your body remembers. Also, are your teeth in good shape? Get in touch with a non-profit credit counselor to see if you can get the hospitals to reduce your bills. Good faith payments can be spread out over several years and the hospitals don't want you to declare bankruptcy. This alone might help your immune system to heal.
    rad-skw 1605 Replies
    • January 31, 2008
    • 00:33 PM
    • 0
    Flag this Response
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