Discussions By Condition: I cannot get a diagnosis.

I'm desperate!

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: alliestar90
  • October 29, 2011
  • 00:09 PM

Hello, I am a 21 year old female. All my life it seems I've always had heath issues of some kind. I've always had allergies (hay fever, pets, some foods, nickel, and some other random things) and I am very prone to rashes. I get a lot of sinus infections and as soon as that goes away a double ear infection always seems to follow. *I have been diagnosed with eosinophilic esophagitis which causes scar tissue to form in my esophagus and it makes it hard for me to swallow. I was also diagnosed with depression, generalized anxiety, and ADHD, but in the past couple of months I've been thinking maybe that was a misdiagnosis. For the past two and a half years I've been on a rollercoaster of anti-depressants and nothing seemed to help. About 7 months ago I got the ADHD diagnosis and I started taking adderall xr. That made a big difference with being so tired all the time but the longer I'm on it, the less it seems to work. *But anyway, in the past couple of years I have steadily started feeling awful all the time. This past year or so I haven't gone a day without being in some kind of pain. I'm only 21 and I feel like I'm 80! *I'm a mess and I just want to get fixed so I can live like a normal 21 year old, where's Dr. House when you need him haha. I have an appointment with an endocrinologist on Monday and I just want to get a few people's opinions on my symptoms so I can have him test for a bunch of things all at once.*My daily symptoms are: muscle weakness, joint pain, depression, anxiety, short term memory loss, general brain fogginess, constant feeling of being tired (I can easily sleep 14+ hours straight if my schedule allows it), dry skin (although the skin on my face is very oily), bad acne (including blackheads, whiteheads, and cysts), excess hair growth (I've mostly noticed it on my chin and upper lip, they are very dark thick hairs that I have to tweeze usually once a day), heartburn almost every time I eat or drink anything, indigestion, constipation (I go #2 maybe once every 3 days), constant ringing in the ears (my ears have been doing this for as long as I can remember, maybe from having so many sinus issues in the past, having to blow my nose so much?), heavy bleeding and severe cramps during my period (I've been on the pill for 6 years though so that went away), and the usual allergy/sinus issues.*A lot of the symptoms sound like Hashimoto's disease, but I'm not totally sure and it doesn't explain where everything else is coming from. I've been tested for hypothyroidism at least twice and the doc always says its normal. I'm so sick and tired of feeling sick and tired, Ive even started thinking about suicide because I'm so incredibly frustrated (I would never actually do it, it just sounds a lot better than suffering the rest of my life). So if anyone could offer ideas I would really appreciate it. Thanks in advance!

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  • I'm not the patient, I'm the mother of a 9 year old girl with Eosinophilic Esophagitus and Celiac Disease.I'm so glad I found you! I need some help with trying to understand EE and if we have missed something in her medical diagnoses.So they haven't really put EE inthe whole auto-immune disease world. But I'm gonna tell you, if you hav one Auto-immune disease it is just a matter of time before you get diagnosed with another. I do happen to have Hashimoto's thyroiditis and have been treated for it for about 16 years now. I had to see an endocronologist to get properly diagnosed. Your testing is supposed to be less complicated now , from what some have said just the TSH (thyroid stimulating hormone) and possibly to see if there is auto-immune antibodies. (I had the radio active thyroid uptake and ultasound and scan of the thyroid.) So get a refferal to an endo. if a general practice doc doesn't diagnose you.The EE is taking a toll on your body and you should be supplementing some vitamins. Specifically vitamin B12 (con't overdose on it, your body will just flush any excess).So how are you treating the EE? Did you go through an elimination diet to find out what your "trigger" foods are?
    mommida 6 Replies
    • November 6, 2011
    • 00:52 AM
    • 0
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