Discussions By Condition: I cannot get a diagnosis.

I'm at my wit's end.

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: AGreatPerhaps
  • June 16, 2011
  • 06:18 AM

I am honestly convinced I am dying. I feel like I am, I would certainly think I am with everything I experience on a daily basis, but it's been a five year battle with doctor after doctor and none will listen, I can't even get a diagnosis, and lately it's six hours sitting in waiting rooms just for them to tell me I'm "fat". Oh, well, aren't you a genius. I am a teenage girl, but I was somehow unaware of that. Thanks for the wonderful insight. That's why I'm puking blood, I can't eat solid food without barfing, I always feel sick, somehow I still can maintain an "obese" weight when at best I consume maybe 200 calories in liquids on the average day and no food because I feel like crap, my body has NO sense of temperature control, I'm in a crippling amount of pain, I cannot pee, I cannot sleep... just... about anything, any symptom you can think of, I probably have it. But no. "Fat". That is a sensible diagnosis, of course, despite the fact my symptoms started before I gained the weight, and I was a star athlete and really active kid before I got sick, but no, I'm "just fat". Genius. -rolls eyes-

I'm just fed up with it all. I went to see an internist who WASN'T EVEN AT HIS OFFICE the other day. (He was "caught at the hospital" and how, I don't know... he left for lunch and never came back, it seemed a ***l of a lot more just like he left and decided not to come back. He post-poned my appointment a week for an "emergency", and I've seen a ***l of a lot of a doctors in the past few years, 20+ for sure, and never had any making excuses like that, so... it seems odd that ONLY he would be SO busy.) So his NP and nurses were trying to get people through. I was there ALL day. After sitting in the waiting room for hours I wanted to cry because my back hurt so bad, and they took my pulse... my heart rate was 140. I'm fat, sure, but I'm 17 and haven't been overweight long, so that is still alarmingly high, especially because my NORMAL pulse and BP is fairly low (if you catch me at a "good" time, which these days is almost never... my vitals are incredibly responsive to any form of stress, so pain, anxiety, and they are off the charts, but it's sort of clearly recordable as a stress response. Catch me at a good time, or when someone actually TREATS me every once in a blue moon, they are exceptional, like they should be.), they did an EKG, I was sinus tachycardic for no identifiable reason and they STILL just sent me home. No new treatment NOTHING for any of my symptoms, or anything, no appointments with anyone else to help, and not even considering sending me elsewhere in case there was something severely wrong. I have had medical professionals ignore me A LOT on some level in the past few years, but I have never had them turn up PROOF that something could be so seriously wrong and just brush it off and ignore it and me and send me home when it could have endangered me. Why even DO an EKG if you ignore abnormal results anyway? I don't understand... I would have felt much less worthless if they hadn't done it at all. It hurts on a level I cannot even describe for them to turn up solid evidence that I am obviously not well... possibly in immediate danger, and still, just ignore me.

I don't know what I want, or what to do, or anything. I am seventeen going on eighteen. I am not eighty. But on GOOD days, I can walk, with a freakin' CANE, and moving makes me want to SCREAM it hurts so much. I almost never sleep, and it's not even an escape. I have reoccuring nightmares about being injured so my mind can incorporate my pain and that is when I CAN sleep... most night, I just CAN'T, and I've been sick like this for five years, so I've exhausted every over-the-counter option out there, I can't even treat my own symptoms anymore, I don't have the resources, so I just have to suffer. I used to love to dance, to jump rope, and now I can barely walk, I know I'll never be able to do those things again. I can't have friends. NO ONE understands. They all INSIST there is no way that doctors wouldn't help me, so I'm lying or being dramatic, or not doing what I should be to get better, and I AM. But NO ONE believes me and so I have NO support, and so I'm doing it all on my own. And I don't know HOW to anymore. I lost everything I ever loved to being sick. And a doctor may not have said it yet, but I know I can't be far from dying one way or another if someone doesn't help me. And nothing EVER gives. I struggle, and suffer, and wait for something to give SOMEWHERE. And it never ever does. Things only get worse and worse and worse. I never get any relief of any sort.

Mostly, I just want to know if anyone can relate. I want to know if I'm simply freakin' CRAZY, or worthless, or of this is something other people have gone through too. Because I think more than an answer, more than needing someone to treat me, right now I simply want to know I'm not insane... and maybe that I'm not alone.

I don't know how much longer I can hold myself together like this... or why I would even try... this isn't living...

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3 Replies:

  • Sorry to hear that you are so unwell. Try going to an Iridologist, they look into your eyes and can see where the problem comes from. I have had excellent experience with going to one. Otherwise try homoeopathy, homeopathists look at illness from a different perspective, they try heal the cause and not the symptoms . Good luck and don't give up.I am honestly convinced I am dying. I feel like I am, I would certainly think I am with everything I experience on a daily basis, but it's been a five year battle with doctor after doctor and none will listen, I can't even get a diagnosis, and lately it's six hours sitting in waiting rooms just for them to tell me I'm "fat". Oh, well, aren't you a genius. I am a teenage girl, but I was somehow unaware of that. Thanks for the wonderful insight. That's why I'm puking blood, I can't eat solid food without barfing, I always feel sick, somehow I still can maintain an "obese" weight when at best I consume maybe 200 calories in liquids on the average day and no food because I feel like crap, my body has NO sense of temperature control, I'm in a crippling amount of pain, I cannot pee, I cannot sleep... just... about anything, any symptom you can think of, I probably have it. But no. "Fat". That is a sensible diagnosis, of course, despite the fact my symptoms started before I gained the weight, and I was a star athlete and really active kid before I got sick, but no, I'm "just fat". Genius. -rolls eyes- I'm just fed up with it all. I went to see an internist who WASN'T EVEN AT HIS OFFICE the other day. (He was "caught at the hospital" and how, I don't know... he left for lunch and never came back, it seemed a ***l of a lot more just like he left and decided not to come back. He post-poned my appointment a week for an "emergency", and I've seen a ***l of a lot of a doctors in the past few years, 20+ for sure, and never had any making excuses like that, so... it seems odd that ONLY he would be SO busy.) So his NP and nurses were trying to get people through. I was there ALL day. After sitting in the waiting room for hours I wanted to cry because my back hurt so bad, and they took my pulse... my heart rate was 140. I'm fat, sure, but I'm 17 and haven't been overweight long, so that is still alarmingly high, especially because my NORMAL pulse and BP is fairly low (if you catch me at a "good" time, which these days is almost never... my vitals are incredibly responsive to any form of stress, so pain, anxiety, and they are off the charts, but it's sort of clearly recordable as a stress response. Catch me at a good time, or when someone actually TREATS me every once in a blue moon, they are exceptional, like they should be.), they did an EKG, I was sinus tachycardic for no identifiable reason and they STILL just sent me home. No new treatment NOTHING for any of my symptoms, or anything, no appointments with anyone else to help, and not even considering sending me elsewhere in case there was something severely wrong. I have had medical professionals ignore me A LOT on some level in the past few years, but I have never had them turn up PROOF that something could be so seriously wrong and just brush it off and ignore it and me and send me home when it could have endangered me. Why even DO an EKG if you ignore abnormal results anyway? I don't understand... I would have felt much less worthless if they hadn't done it at all. It hurts on a level I cannot even describe for them to turn up solid evidence that I am obviously not well... possibly in immediate danger, and still, just ignore me.I don't know what I want, or what to do, or anything. I am seventeen going on eighteen. I am not eighty. But on GOOD days, I can walk, with a freakin' CANE, and moving makes me want to SCREAM it hurts so much. I almost never sleep, and it's not even an escape. I have reoccuring nightmares about being injured so my mind can incorporate my pain and that is when I CAN sleep... most night, I just CAN'T, and I've been sick like this for five years, so I've exhausted every over-the-counter option out there, I can't even treat my own symptoms anymore, I don't have the resources, so I just have to suffer. I used to love to dance, to jump rope, and now I can barely walk, I know I'll never be able to do those things again. I can't have friends. NO ONE understands. They all INSIST there is no way that doctors wouldn't help me, so I'm lying or being dramatic, or not doing what I should be to get better, and I AM. But NO ONE believes me and so I have NO support, and so I'm doing it all on my own. And I don't know HOW to anymore. I lost everything I ever loved to being sick. And a doctor may not have said it yet, but I know I can't be far from dying one way or another if someone doesn't help me. And nothing EVER gives. I struggle, and suffer, and wait for something to give SOMEWHERE. And it never ever does. Things only get worse and worse and worse. I never get any relief of any sort.Mostly, I just want to know if anyone can relate. I want to know if I'm simply freakin' CRAZY, or worthless, or of this is something other people have gone through too. Because I think more than an answer, more than needing someone to treat me, right now I simply want to know I'm not insane... and maybe that I'm not alone. I don't know how much longer I can hold myself together like this... or why I would even try... this isn't living...
    Simonea 1 Replies Flag this Response
  • Could you please describe your symptoms better? Maybe someone will be able to figure out where to start. Do you know what tests have been done, besides EKG? Take care! My heart goes out to you!
    Felsen 510 Replies Flag this Response
  • Take some deep breaths.. your frustration and anxiety are coming across quite strongly. It is understandable thou that you are frustrated at the doctors etc. about anything, any symptom you can think of, I probably have it. I notice with your post that you are having trouble communicating your illness, you did not do it well at all here, I dare say you probably are having a similar difficulty when it comes to doctors, (who can be very hard to get throu to anyway esp when they have stupid predetermined things going on such as you are obese which is causing all your symptoms .. Ive never heard of obesity causing vomiting of blood!! unless you have a eatting disorder with it eg bulemia. Have you ever made yourself vomit???? with those calories you mentioned, eatting disorder is possible.. do you ever binge eat and then make yourself sick?). Sit down and write down ALL those symptoms you have (you only mentioned a few here in your post) .. dont miss anything as something something which seems to be insignificant to you, could actually help another realise what you have. Keep a full list to take to your doctors with you and make sure they know the full range of symptoms you are having esp ones which cant be put down to anxiety. Post a full symptom list here so maybe someone is more likely someone will be able to hit on what you have......... Several things come to mind when a female says they are obese and that its not due to what they are eatting. In your case the fact you have pain to the point on good days you are walking with a cane.. so the fact you arent getting exercise would cause weight gain if you are eatting an ordinary diet. With no exercise.. you need to be eating less then an average person does (child size meals maybe). The amount you say you are eatting thou (very understandable you wouldnt be eatting much if you have vomiting) makes me think your issue isnt just due to the fact you cant exercise but is also some kind of hormonal issue or something which is also affecting hormones. I need to know more about your symptoms before I can suggest more what it could be hormone wise... Quite a few different hormone issues can cause obesity. Are your periods regular? What is your cycle like? When one has an unknown chronic illness.. it is a good idea to be focusing on helping the symptoms while one is still searching what the issue exactly is. (hence another reason why you need to post all your symptoms as possibly things to help can be suggested).......... "I have reoccuring nightmares about being injured so my mind can incorporate my pain and that is when I CAN sleep... most night, I just CAN'T" It is possible to even develop post traumatic stress disorder due to bad chronic illness symptoms in which doctors are ignoring. Sadly most doctors dont realise that happens in some chronic patient groups. Sorry I cant suggest anything nightmare wise but that may lessen some when you get a diagnoses and are able to find some medical support. I was sinus tachycardic for no identifiable reason and they STILL just sent me home. They probably thought it was due to anxiety, fear or anger .. as those things can cause sinus tachycardia. If you are upset at the doctors, the wait you had at the hospital etc, it may as well been one of those things. my body has NO sense of temperature control Explain more exactly what your body is doing..... You havent described your pain well so Im left not knowing if the "crippling" pain just in your "back" (like you mentioned) or other places too??? so dont know if my current thoughts on your pain issues are correct or not so will wait to hear back........... Mostly, I just want to know if anyone can relate. I want to know if I'm simply freakin' CRAZY, or worthless, or of this is something other people have gone through too. Because I think more than an answer, more than needing someone to treat me, right now I simply want to know I'm not insane... and maybe that I'm not alone. I can relate to much of what you said. I ended up bedbound (and in severe pain) for 9mths with a little child caring for me, after doctors had given me a diagnoses and told me there was nothing they could do. They quit on me. Im much better now but I actually would of died back then if it werent for my 10 year old looking after me... I was left not even being able to eat much and couldnt even stand. I ended up in like a comatose state most of the time. I nowdays have a lot of different specialists and have got a lot of different diagnoses as after many many many years a lot of issues have now been found with more uncommon tests due to them being not common or little known issues, thou i do have a couple still (two possibly serious) which have been ignored as doctors dont know much about them. I still thou due to having so many different issues.. cant find a GP/MP who wants to take on my medical case. My General practioner told me no doctor would be able to as its too complex and hence tells me no doctor can coordinate it all. Ive had many GPs tell me they dont want to see me and even write in my notes they wont see me again. So im left with all these separate specialists for separate issues (in the past two weeks alone Ive seen orthopedic, an internalist and a psychologist who is helping me to deal with having to deal with all the medical stuff including at times terrible doctors.. like you.. my condition often gives me nightmares. I may have PSTD due to it). My specialists tell me to get my GP to coordinate as that isnt his role and my GP says get them too as its all too complex. GP this week had cancelled out on of my appointment YET AGAIN, he's cancelled my appointment on me 4 times out of the past 5 times. This week his excuse for cancelation was that he has a medical student with him this week who he didnt want in on my appointment cause I have uncommon issues. :mad: So Im discriminated against cause I dont have a common illnesses. Anyway.. I hope you reply back with more info as Im hoping someone else or I can help you a little. best luck
    taniaaust1 2267 Replies Flag this Response
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