This is continued from Dec. 13, 2006. I am getting worse daily. In a nutshell:
*I have hypothyroidism (and take Levoxyl) but still have every symptom
*I have idiopathic hypersomnia (being re-tested for narcolepsy because i cannot move when I wake up, not a muscle. I also try to get help but can only make noise, no words). It is like being paralyzed.
*I have diabetes type 2, but I am not overweight. I can't lose weight either. It is diet controlled.
*My lower back and neck are extremely stiff and painful. I cannot turn my head far to either side and you can hear it crack. I cannot look up or down very far. I cannot touch my toes and I used to be a ballet dancer.
*I 'sigh' constantly like I'm 110 years old. I can't walk up three steps without cramping in my legs or burning pain.
*I used to lift weights and I can barely lift a laundry basket
*I can't stay awake!!!! 16 hours of sleep and I will have to go back to bed shortly. I'm not 'kind of tired', I have seconds before I'm out (I'm on 120mgs of adderall and 15-20 of Ritalin (Ritalin is new for me). I'm taking an extra dose a day and still can't stay awake.
*I can't remember from one minute to the next.
*I don't go to the bathroom without laxatives and I no longer get my period. (I'm only 42)
*I have Raynaud's(hands, feet and nose are freezing). My hands are all cracked, my nails have vertical ridges and I am covered in bruises and cuts that don't heal. I have dogs but no one else has bruises but me.
*I am not depressed, I'm *****d off because I can't find out what is wrong.
I have lost ten years now and I don't have a job. It was hard enough to hold on to one when I was feeling badly, but getting one feeling like this is awful. I am 100 percent career person. No family of my own. Now no home, life, money or health insurance either.
My parents are ultra-conservative and think Adderall is a 'bad' drug. It doesn't even keep me awake. I went off of all med's and I had to go back on the adderall or I wouldn't be up even an hour. I stopped depression meds with no problem.
PLEASE, PLEASE help. My family thinks I need a psychiatrist but mentally (except for the memory problem) I am very tough and want to get better immediately. Someone suggested it might be Hemochromotosis. My doctor blew that off and Wilson's Temperature Syndrome (my temp is 94 to 96-7). I feel horrible. My friend who's basement I live in now (good luck getting a date, right?!), thought I was dead the other morning. No one could wake me. This is really scary and I feel like I've got a week left in me of this max!
Recognize the risks associated with Crohn’s disease.
Did you know that one in six US adults has high cholesterol?