Discussions By Condition: I cannot get a diagnosis.

I'm 23, I shouldn't be this tired, right?

Posted In: I cannot get a diagnosis. 33 Replies
  • Posted By: Singin4myJC
  • December 31, 2008
  • 07:59 PM

Hello,

I like the rest of the people on here don't know what's wrong with me and have been to many doctors. They all seem to run the same tests and with no insurance I can't afford it anymore.

My problem is I'm always tired. If I had the opportunity I'd sleep for days. I'm not working much because of this (I'm not reliable) and I don't really even have much of a social life because I'm always so tired.

My symptoms:

- tired ALL the time
- hands cold
- moody (prolly due to lack of sleep)
- can't loose weight

I had my blood checked 2 weeks ago. Everything was normal. I'm so frustrated and don't know what to do, my life is being put on hold by a cloud of sleepiness.

Any ideas? And advice? Thank you for reading this and trying to help.

Reply Flag this Discussion

33 Replies:

  • Hello, I like the rest of the people on here don't know what's wrong with me and have been to many doctors. They all seem to run the same tests and with no insurance I can't afford it anymore. My problem is I'm always tired. If I had the opportunity I'd sleep for days. I'm not working much because of this (I'm not reliable) and I don't really even have much of a social life because I'm always so tired. My symptoms: - tired ALL the time- hands cold- moody (prolly due to lack of sleep)- can't loose weight I had my blood checked 2 weeks ago. Everything was normal. I'm so frustrated and don't know what to do, my life is being put on hold by a cloud of sleepiness. Any ideas? And advice? Thank you for reading this and trying to help. These symptoms and many others could be caused by b12 plus cofactor deficiencies. Come on over and read the complete list of symptoms and talk with folks.http://forums.wrongdiagnosis.com/showthread.php?p=135792#post135792
    Freddd 3576 Replies
    • January 1, 2009
    • 00:02 AM
    • 0
    Flag this Response
  • Regarding methylcobalamin or adenosylcobalamin,according to one reliable source,the''usefulness of these is being debated.''
    richard wayne2b 1232 Replies
    • January 1, 2009
    • 02:43 PM
    • 0
    Flag this Response
  • Regarding methylcobalamin or adenosylcobalamin,according to one reliable source,the''usefulness of these is being debated.'' Hi Richard, That is SHEAR UNADULDERATED NONSENSE. Any "reliable source" that says this is spouting nonsense and is a source of bovine excrement only. Debated about by who? It is far more useful than cyanob12 or hydroxyb12. Both active forms are are from 100 to 10,000 times more potent and effective. They both produce very noticeable healing if that is what a person is deficienct in. I have come back from a total basket case for 16 years and decades of problems before that. They can debate all they want. We are getting huge results with it and cofactors. Of course we did run tests to determine reliable brands, determine a method of administration that works and what cofactors are needed to allow them to continue working.
    Freddd 3576 Replies
    • January 1, 2009
    • 04:46 PM
    • 0
    Flag this Response
  • Woah guys, I dunno what those big words Richard used were but I'm assuming they had something to do with the B vitamin? Fredd, I checked out the link you gave me, very interesting. I'm scared to take anymore B vitamin, be it b6 or b12 or whatever other numbers follow the b vitamin because they make me super hungry!! esp b12! Singin
    Singin4myJC 11 Replies
    • January 2, 2009
    • 05:50 AM
    • 0
    Flag this Response
  • singing... it could make you super hungry as it's said to speed up the body metabolism??? B12 injections for that reason are now being used in some weight loss clinics.. with weight loss results. So it may not necessarily thou making you eat more.. make you gain weight........... (im not going about preaching about B12.. but B12.. im using cyancobalamin has helped me, im currently on twice weekly injections of it, so i kind of understand others here praising it so much). i think most doctors are underestimating how many things it can help.
    taniaaust1 2267 Replies
    • January 2, 2009
    • 06:04 AM
    • 0
    Flag this Response
  • Tania -- Thanks for your reply. I guess if the B12 is known to speed up metabolism I can understand then why that made me hungry -- that makes sense -- I never knew that about B12. I just thought it was a side effect to the vitamin. Either way, the education makes me feel better about it. I can much rather appreciate being hungry knowing it's because my metabolism is being sped up vs it just being how I respond to B12. I don't know if that makes sense, but I felt guilty for gaining weight when taking B12 in the past, and I thought it was my fault or my body being stupid. I do have a couple other things to say though in this post: #1 Related to the B12 injections -- is cyancobalamin the long word for B12? Or is that the name of the form of B12 when it's given by injection form? And I assume B12 injections have to be done by a doctor? With no health insurance I hate thinking of having to go to the doctor, bills, bills, bills. #2 I mentioned gaining weight from B12. But as I was talking to a friend the other day, she suggested that maybe the B12 wasn't what made me gain weight but my overall problem right now of extreme tiredness might be related to the weight thing. I'm not overweight by anymeans. I'm just about at the mid to top of my weight for my height. And I've been exercising and eating really well (like a really strict cal intake) and I haven't lost ANY weight. So maybe the two are a clue as to what may be wrong with me. I think it sounds like hypothyroidism, but my doctor did blood two weeks ago and my T3, T4, TSH and such all came back normal. Hypothroidism is the only thing I know of with symptoms of tiredness and weight gain/inability to loose weight are together. Any ideas anyone? Singin :)
    Singin4myJC 11 Replies
    • January 2, 2009
    • 04:03 PM
    • 0
    Flag this Response
  • Woah guys, I dunno what those big words Richard used were but I'm assuming they had something to do with the B vitamin? Fredd, I checked out the link you gave me, very interesting. I'm scared to take anymore B vitamin, be it b6 or b12 or whatever other numbers follow the b vitamin because they make me super hungry!! esp b12! Singin Hi Singing, Adenosylb12, and in people who can interconvert active forms (some unknown percentage), methylb12 affects our ability to oxidize and form ATP, the body's energy currancy. Adenosylb12, in a state of sufficiency, sits in every mitochondria and is at the heart of the krebs cycle burning fats for energy; no adenosylb12, no energy such as in CFS. Further methylb12 is at the heart of neurological function. Lack thereof can cause anorexia, IBS, daily vomiting and the like. When I started up every sensory aspect of my body was affected. I had the anorexia and during healing I have gone through periods of feeling hungry. We have found that for healing it takes more than one or two specific vitamins. It requires the whole spectrum of them including a full b-complex and a whole lot more. Vitamins have no noticable effect at all normally in people who are not deficient. We have worked out, though experimentation on ourselves, thousands of people over the past 10 years (here on this forum and other places), a protocol that produces profound healing in those that are deficient. I lost 45 pounds as soon as I found the last item needed to activate the Kerbs cycle. Before that I was utterly unable to loose weight. 100% of your stated symtoms are also b12 deficiency symptoms. We have worked through dozens of roadblocks to healing in working out this protocol which has reasonably predictable results for those deficienct Whether you want to heal badly enough to give it a try or not is up to you. It produces outright naked eye healing that doesn't need lab tests to tell you that it is working. It isn't that subtle. In fact the process of healing happens so fast and hard that it can be outright unpleasant as sometimes hundreds of symptoms start shifting around and changing on the way to being healed. Did you make a list of ALL the symptoms you have from the list? All of those things and more will start changing, some of them in less than an hour after the first effective sublingual taken in an effective way. Good luck. Hope to see you over on the b12 thread on your way to healing. There you can compare notes with people who are healing and some who are not. There is a lot of individual fine tuning that most folks have to do.
    Freddd 3576 Replies
    • January 2, 2009
    • 06:28 PM
    • 0
    Flag this Response
  • Tania -- Thanks for your reply. I guess if the B12 is known to speed up metabolism I can understand then why that made me hungry -- that makes sense -- I never knew that about B12. I just thought it was a side effect to the vitamin. Either way, the education makes me feel better about it. I can much rather appreciate being hungry knowing it's because my metabolism is being sped up vs it just being how I respond to B12. I don't know if that makes sense, but I felt guilty for gaining weight when taking B12 in the past, and I thought it was my fault or my body being stupid. I do have a couple other things to say though in this post: #1 Related to the B12 injections -- is cyancobalamin the long word for B12? Or is that the name of the form of B12 when it's given by injection form? And I assume B12 injections have to be done by a doctor? With no health insurance I hate thinking of having to go to the doctor, bills, bills, bills. #2 I mentioned gaining weight from B12. But as I was talking to a friend the other day, she suggested that maybe the B12 wasn't what made me gain weight but my overall problem right now of extreme tiredness might be related to the weight thing. I'm not overweight by anymeans. I'm just about at the mid to top of my weight for my height. And I've been exercising and eating really well (like a really strict cal intake) and I haven't lost ANY weight. So maybe the two are a clue as to what may be wrong with me. I think it sounds like hypothyroidism, but my doctor did blood two weeks ago and my T3, T4, TSH and such all came back normal. Hypothroidism is the only thing I know of with symptoms of tiredness and weight gain/inability to loose weight are together. Any ideas anyone? Singin :) Hi Singing, Related to the B12 injections -- is cyancobalamin the long word for B12? Or is that the name of the form of B12 when it's given by injection form? If you look at the postings on the b12 forum, you will find one talking about the 4 zones of healing with the various cobalamins. Cyanocobalamin was a laboratory mistake in 1948. They accidently converted methylb12 to cyanob12 by the methods used. The proper identifications of the genuine b12s were made in 1959. When a person has cyanide in their body, active b12s, methylb12 and adenosylb12, combine with the cyanide and the kidneys remove cyanob12 from the body. Cyanob12 is the main excretion form of cobalamin. There are more than 30 plant cobalamins that are not active in animals including humans. A very small amount of cyanob12 is converted in the body to the active b12s (mb12 and adb12) and the rest is excreted by the kidneys very quickly. From an IM injection b12 of all forms is cleared from the muscles within about 30 minutes and then 50% excreted each half hour or so. By twelve hours a person has a fraction of 1% of the injection remaining and the serum half life is up to several hours.
    Freddd 3576 Replies
    • January 2, 2009
    • 06:36 PM
    • 0
    Flag this Response
  • Fredd, I'm a little dismayed that I don't fully understand the terms you use of the different forms of b12. Also, you speak of your symptoms going away and finding relief and always reffer me to the b12 thread. I'm looking for answers and all you seem to give me are words. Yes, I want to heal and yes, I want it badly enough. But I'm frustrated that there is no further instruction by you of where to get these injections or what does or who gives them....again, all I get is "go to the b12 thread".
    Singin4myJC 11 Replies
    • January 2, 2009
    • 07:10 PM
    • 0
    Flag this Response
  • Tania -- Thanks for your reply. I guess if the B12 is known to speed up metabolism I can understand then why that made me hungry -- that makes sense -- I never knew that about B12. I just thought it was a side effect to the vitamin. Either way, the education makes me feel better about it. I can much rather appreciate being hungry knowing it's because my metabolism is being sped up vs it just being how I respond to B12. I don't know if that makes sense, but I felt guilty for gaining weight when taking B12 in the past, and I thought it was my fault or my body being stupid. I do have a couple other things to say though in this post: #1 Related to the B12 injections -- is cyancobalamin the long word for B12? Or is that the name of the form of B12 when it's given by injection form? And I assume B12 injections have to be done by a doctor? With no health insurance I hate thinking of having to go to the doctor, bills, bills, bills. #2 I mentioned gaining weight from B12. But as I was talking to a friend the other day, she suggested that maybe the B12 wasn't what made me gain weight but my overall problem right now of extreme tiredness might be related to the weight thing. I'm not overweight by anymeans. I'm just about at the mid to top of my weight for my height. And I've been exercising and eating really well (like a really strict cal intake) and I haven't lost ANY weight. So maybe the two are a clue as to what may be wrong with me. I think it sounds like hypothyroidism, but my doctor did blood two weeks ago and my T3, T4, TSH and such all came back normal. Hypothroidism is the only thing I know of with symptoms of tiredness and weight gain/inability to loose weight are together. Any ideas anyone? Singin :) Hi Singing, My keyboard went funky on me and I had to reboot. Now to continue where I left off. Related to the B12 injections -- is cyancobalamin the long word for B12? Or is that the name of the form of B12 when it's given by injection form?Cyanocobalamin (cyanob12, cb12) is one form of inactive b12 which nobody converts well and some people not at all, which can be fatal at an early age. In Leder's herediatary neuropathy cyanide from cyanob12 is deposited around the optic nerve killing it. The three forms given by injection are methylb12, hydroxyb12 and cyanob12. Only the methylb12 is an immediately active form; the other two must first be converted to an active form which nobody does well. The problem for the industry is that methylb12 breaks down easily to an inactive cobalamin, hydroxyb12, and stops working. So the chemical industry likes the two inactive forms because they don't break down, they already are inactivated. Methylb12 injections are only available from compounding pharmacies. Most folks take sublingual methylb12 and adenosylb12. In the right brands that actually work, such as the Jarrowb12 5000 mcg, with good technique (45 minutes in mouth) can achieve a 15% or better absorbtion. So a 5mg Jarrow sublingual can put 750mcg of methylb12 into the bloodstream instead of the aproximately 10mcg or less of methylb12 that a 1000 mcg cyanob12 injection can achieve at best. A daily Jarrow or Enzymatic therapy methylb12 is far more effective than any quantity of cyanob12 or hydroxyb12 injected, oral or sublingual at any interval. Hypothroidism is the only thing I know of with symptoms of tiredness and weight gain/inability to loose weight are together. Any ideas anyone? Yes, plenty of ideas. These are symptoms of methylb12 and adenosylb12 and some cofactors deficiencies. That is the whole point. I'm handing you a highly probable solution to your problems. It's up to you to actually run the trial. I know it's hard to believe, but the abnormal fatigue can be fully corrected within 24 hours of getting all the correct supplements. Brand matters, method taken matters and combination of supplements matter.
    Freddd 3576 Replies
    • January 2, 2009
    • 07:16 PM
    • 0
    Flag this Response
  • Fredd, I'm a little dismayed that I don't fully understand the terms you use of the different forms of b12. Also, you speak of your symptoms going away and finding relief and always reffer me to the b12 thread. I'm looking for answers and all you seem to give me are words. Yes, I want to heal and yes, I want it badly enough. But I'm frustrated that there is no further instruction by you of where to get these injections or what does or who gives them....again, all I get is "go to the b12 thread". ALL the answers to your questions are on that thread. You don't need injections most likely. Don't be fixated on that. Go over to that thread, read from the back end for a couple of hours and most all your questions will be answered. Any that remain can be answered then. You will hjave some context for the answers then. The correct brands of sublingual active b12s are quite sufficient for 95% of the people who don't have severe neurological damage yet. Kevin also is better at putting things into words that you may understand. And there are a lot of others there who will be glad to help you understand. Brainfog is one of the big symptoms of b12 deficiencies. So please come over there to have all your questions answered. Most of them already are answered. Of the 175 symptoms I had I have a few left, many related to physical injuries or severe neurological damage from prolonged deficiency.
    Freddd 3576 Replies
    • January 2, 2009
    • 07:19 PM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • Thanks for your replies and explinations. I will head over to the thread again later on. I appreciate your time and help Fredd. - Singin :)
    Singin4myJC 11 Replies
    • January 2, 2009
    • 07:33 PM
    • 0
    Flag this Response
  • Have they tested for thyroid antibodies? I had all of my test come back in normal range but with a family history of hypothyroidism and all the symptoms I insisted they run the antibody tests. The doctor actually said "we aren't going to find anything, they're going to be normal". One week later the doctor called to tell me they found antibodies and gave me a referal to a endocrine doctor. I was diagnosed with Hashimoto’s Thyroiditis. I was given a low dose of thyroxin and am feeling much better now. Hashi's swings from hypo to hyper in the early stages and if you run the standard thyroid tests at the wrong time everything will appear normal or near normal. http://thyroid.about.com/cs/hypothyroidism/a/hashivshypo.htmJust a thought. HTH
    Anonymous 42789 Replies
    • January 3, 2009
    • 03:49 PM
    • 0
    Flag this Response
  • An actor recently had to drop out of a Broadway play because of fatigue.The doctors found nothing.When he mentioned he ate sushi every day, the doctors then did a different blood test.Because of the daily sushi, he had a high level of mercury in his bloodstream. The mercury poisoning was the source of the fatigue.
    bobwhite 20 Replies
    • January 3, 2009
    • 11:35 PM
    • 0
    Flag this Response
  • Hi! Get your thyroid checked-it sounds like hypothyroidism...I have it. huge pain in the **s but if thats what it is very treatable with meds. A pill a day and you should feel tons better in a few weeks!Hope everything works out, let us know.-Sarah
    Anonymous 42789 Replies
    • January 4, 2009
    • 04:04 AM
    • 0
    Flag this Response
  • Have they tested for thyroid antibodies? I had all of my test come back in normal range but with a family history of hypothyroidism and all the symptoms I insisted they run the antibody tests. The doctor actually said "we aren't going to find anything, they're going to be normal". One week later the doctor called to tell me they found antibodies and gave me a referal to a endocrine doctor. I was diagnosed with Hashimoto’s Thyroiditis. I was given a low dose of thyroxin and am feeling much better now. Hashi's swings from hypo to hyper in the early stages and if you run the standard thyroid tests at the wrong time everything will appear normal or near normal. http://thyroid.about.com/cs/hypothyroidism/a/hashivshypo.htm Just a thought. HTH Hey Bobbie, Thanks for your response. I am about to head to the link you sent me after I type out my response...one thing at a time here... :) It's interesting you mentioned the antibody test. I don't know if they ran that test or not. I assume they didn't because you mentioned you also having your thyroid tested and the results came back normal. Did you have to go back in to get your blood taken for the antibody test or did you call confront them about it when they took your blood and made sure they ran it at the same time? See, I struggled even going to the doctor because I don't have health insurance and can barely make my rent and bills now, so how was I going to afford a doctor bill, but I just bit my lip and went ahead because I know it's not normal for me to be feeling this crappy. I just want to give up some days because even if I had the perfect answer I probably couldn't afford it -- but that's the looser mentality in me -- that's probably the tiredness talking -- and my way to push through that I guess is coming on here, which is free, and hopefully, somehow I'll get some ideas as to where to turn next. So my question to you Bobbie is, did you have to go back in for another draw of blood and then requested they check the antibodies? I give you a LOT of credit for standing up to your doctor and I can't believe your doctor even told you they weren't going to find anything....ha! guess the test showed him, hopefully that will lower his ego a bit and make him realize he doesn't know all the answers all the time!! :D I love the body and how it works so I'm curious to know more about Hashimoto’s Thyroiditis as well. Thanks for sharing a little about yourself with me. I appreciate your response and interest in possibly helping me brainstorm some ideas of what's going on. It's frustrating to think too that at some point tests can be normal and then you go back and for whatever reason they show completly different results. Just goes to show you, you've got to listen to your body and if it says something is wrong, to be persistent and demand an answer from the doctors. - Singin :)
    Singin4myJC 11 Replies
    • January 5, 2009
    • 03:50 PM
    • 0
    Flag this Response
  • An actor recently had to drop out of a Broadway play because of fatigue.The doctors found nothing.When he mentioned he ate sushi every day, the doctors then did a different blood test.Because of the daily sushi, he had a high level of mercury in his bloodstream. The mercury poisoning was the source of the fatigue. BobWhite, Good though. I've never eaten sushi in my life, so this DEF isn't a possibility. But thanks for mentioning it! - Singin :)
    Singin4myJC 11 Replies
    • January 5, 2009
    • 04:00 PM
    • 0
    Flag this Response
  • Maybe M.E, chronic fatigue syndrome
    Anonymous 42789 Replies
    • January 5, 2009
    • 08:20 PM
    • 0
    Flag this Response
  • Singin' - it makes me very sad that you can't afford to get proper medical help. Have you tried a hospital emergency room clinic? They will frequently give you a sliding rate depending on your income. And sometimes the doctors there are really good.
    bobwhite 20 Replies
    • January 6, 2009
    • 03:47 AM
    • 0
    Flag this Response
  • BobWhite -- It is sad isn't it. I start to feel bad for myself and then I think of the other millions of people who are like me and have no health insurance and barely make rent and pay their bills, so you just learn to live with your symptoms and hope that somehow, someway, you'll get to the doctor if you can save up enough money. Or people do what I did and get fed up and go and then bear the grunt of a huge bill for 5 minutes of talking to the doc and a few tubes of blood taken. There is a community health care clinic around here that is a sliding scale but at this point, I have to work off paying my doctor bills. I can't afford much of anything right now. I came on here thinking maybe someone has had the same symptoms and maybe, just maybe we'd have the same thing and I'd find a way to attack it.
    Singin4myJC 11 Replies
    • January 7, 2009
    • 06:20 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.