Discussions By Condition: I cannot get a diagnosis.

I'm 20, but I feel like I'm 80!

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: Morganio
  • July 6, 2009
  • 06:21 PM

As my title says...I'm a 20 year-old who feels like they're 80.

So I have a laundry list of symptoms...I don't know if they're all connected, but treating them individually is getting me nowhere, so here we go.
It all started with achilles tendonitis. My Mom had gotten this early the same year, so I started treatment right away. 2 years later, after acupuncture, ART, physio, NSAID's etc. it still has not gone away. It will "seem" to go away, for anywhere from a week to two months, but then it'll be back. I also have had shin splints. They follow a similar cycle to the achilles tendonitis, except that I got them 6 months later, and when they came back in October of '08, the didn't go away. I did physio for the shin splints, as well as the achilles tendonitis.

So I've had shin splints for 9 months so far- no stress fractures, compartment syndrome or anything. I also have excessive fatigue, and day-time sleepiness (this came up really suddenly two years ago- same time as the tendonitis). It's not so bad that I can't go to work/school, but I have to plan my day around activities to keep me awake, and I can sleep 18+ hours and still be exhausted. I'm also cold all the time- much colder than everyone around me. In fact- the Christmas after everything started, I spent my holidays sleeping something like 19-20 hours a day, and being freezing cold the whole time.

I also get this weird sunburn-like neckrash that comes and goes. It goes all the way around my neck, and when it's really bad, it goes bright red and burns!

About 4/5 months ago, things started getting worse. I got heel pain (like plantar fascitis), and I would wake up and feel like I had sprained my ankle, when I hadn't done anything to it. And my shin splints were worse than ever. When I went hiking, I would come back with all my joints stiff and aching- more similar to my 80 year-old grandmother than even my parents! And I developed jaw pain (almost like TMJ), and I hurt my back just bending down to pick up a piece of paper!

I started getting tingling/pins and needles in my lower legs, face and arms. Now, I have tingling almost everywhere, although it is still worst in my face, legs and arms. Sometimes it is so strong it is painful. I also have muscle twitches- not enough that my whole limb moves, but enough that you can see the muscle moving (and feel it if you put your hand on it).

Finallly- I've also been having problems with my eyes. I had two weeks of excruciating headaches - I got an eye exam, and they could find nothing. After that, I started having trouble reading- big paragraphs tend to blur together, and I have difficulty reading long numbers, or codes. I have difficulty focusing on things to the side of my vision. I sometimes feel as if I have gone blind in one eye- it is like that eye has "turned off". When I close my other eye, I can still see, though, so I haven't actually gone blind. And this can happen in both eyes. Oh- and I see floaters all the time- so much so that I get distracted/ think they are bugs.

I've been tested for RA, Lupus, Thyroid problems, diabetes/blood sugar problems, and vitamin deficiencies. It's all come up normal. I saw a sports medicine doctor for the shin splints, and he ruled out the compartment syndrome/stress fractures and has told me to try physio again, and come back in two months. My doctor thinks that nothing is wrong with me- he just tells me to take NSAIDs and go away. But I feel like something has to be wrong! Does anyone here have any ideas??

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6 Replies:

  • I might not be able to help you with all of your symptoms, but I've experienced some of them myself. I had the shin splints, heel pain, foot pain, and actually fractured my foot without an injury. Turns out that orthotics were what was needed. It cost me about $350 for a good set. These were professionally made for me. Most of the symptoms have subsided.I also had extreme fatigue. I was falling asleep while driving, thats how bad it was. I was tested for all of the same things that you were and all turned out negative. On my insistence I went to a sleep lab and was diagnosed with "OSA" or obstructive sleep apnea. The Cpap machine has 100% cured the fatigue and sleepiness. If you snore then you need to really pursue this. Insurance will cover the cost of the sleep studies and the equipment. I hope that I have helped.E
    Anonymous 42789 Replies Flag this Response
  • Hi,I got orthotics right away, and they haven't done a thing. And I do not have sleep apnea-I also got that checked fairly quickly. Good suggestions though- everyone was stumped when the orthotics didn't work. Apparently they're usually pretty magical.
    Morganio 3 Replies Flag this Response
  • As my title says...I'm a 20 year-old who feels like they're 80. So I have a laundry list of symptoms...I don't know if they're all connected, but treating them individually is getting me nowhere, so here we go. It all started with achilles tendonitis. My Mom had gotten this early the same year, so I started treatment right away. 2 years later, after acupuncture, ART, physio, NSAID's etc. it still has not gone away. It will "seem" to go away, for anywhere from a week to two months, but then it'll be back. I also have had shin splints. They follow a similar cycle to the achilles tendonitis, except that I got them 6 months later, and when they came back in October of '08, the didn't go away. I did physio for the shin splints, as well as the achilles tendonitis. So I've had shin splints for 9 months so far- no stress fractures, compartment syndrome or anything. I also have excessive fatigue, and day-time sleepiness (this came up really suddenly two years ago- same time as the tendonitis). It's not so bad that I can't go to work/school, but I have to plan my day around activities to keep me awake, and I can sleep 18+ hours and still be exhausted. I'm also cold all the time- much colder than everyone around me. In fact- the Christmas after everything started, I spent my holidays sleeping something like 19-20 hours a day, and being freezing cold the whole time. I also get this weird sunburn-like neckrash that comes and goes. It goes all the way around my neck, and when it's really bad, it goes bright red and burns! About 4/5 months ago, things started getting worse. I got heel pain (like plantar fascitis), and I would wake up and feel like I had sprained my ankle, when I hadn't done anything to it. And my shin splints were worse than ever. When I went hiking, I would come back with all my joints stiff and aching- more similar to my 80 year-old grandmother than even my parents! And I developed jaw pain (almost like TMJ), and I hurt my back just bending down to pick up a piece of paper! I started getting tingling/pins and needles in my lower legs, face and arms. Now, I have tingling almost everywhere, although it is still worst in my face, legs and arms. Sometimes it is so strong it is painful. I also have muscle twitches- not enough that my whole limb moves, but enough that you can see the muscle moving (and feel it if you put your hand on it). Finallly- I've also been having problems with my eyes. I had two weeks of excruciating headaches - I got an eye exam, and they could find nothing. After that, I started having trouble reading- big paragraphs tend to blur together, and I have difficulty reading long numbers, or codes. I have difficulty focusing on things to the side of my vision. I sometimes feel as if I have gone blind in one eye- it is like that eye has "turned off". When I close my other eye, I can still see, though, so I haven't actually gone blind. And this can happen in both eyes. Oh- and I see floaters all the time- so much so that I get distracted/ think they are bugs. I've been tested for RA, Lupus, Thyroid problems, diabetes/blood sugar problems, and vitamin deficiencies. It's all come up normal. I saw a sports medicine doctor for the shin splints, and he ruled out the compartment syndrome/stress fractures and has told me to try physio again, and come back in two months. My doctor thinks that nothing is wrong with me- he just tells me to take NSAIDs and go away. But I feel like something has to be wrong! Does anyone here have any ideas??maybe you need to be tested for osteogenesis imperfecta it affects bones nerves fatigue alot i was born with it it is genetic also you could go blind deaf and death could result there is no cure for the diease but there are treatments that can be done to reduce fractures it sounds like you need to see a genetic doctor u could have an under lying problem that is genetic that you may never knew or noticed i hope you get better and you should post if you get better thanks and good luck kim
    Anonymous 42789 Replies Flag this Response
  • Common Sites of Enthesitis in Patients with Spondyloarthropathies -------------------------------------------------------------------------------- Achilles tendon insertion on the calcaneusPlantar fascia insertion on the calcaneusPatellar tendon insertion on the tibial tubercleSuperior and inferior aspects of the patella LOOK up spondylarthopathies and other RAs not always do you test postive for RA blood test yet still have the diseaseALSO check for MSbe your own health advicate.....get a good RA doctor that listens...
    Anonymous 42789 Replies Flag this Response
  • maybe you need to be tested for osteogenesis imperfecta it affects bones nerves fatigue alot i was born with it it is genetic also you could go blind deaf and death could result there is no cure for the diease but there are treatments that can be done to reduce fractures it sounds like you need to see a genetic doctor u could have an under lying problem that is genetic that you may never knew or noticed i hope you get better and you should post if you get better thanks and good luck kimThanks Kim! Luckily, I have an identical twin sister who is perfectly healthy. I'm assuming she'd have the same genetic disorders as me. So (hopefully) that rules out things like osteogenesis imperfecta. I hope you caught it early, and are doing well! Whatever I have, if I find an answer, I'll post it. Good luck to you as well!And I'd like to get checked for MS (although I don't think I quite match the symptoms for it). My family GP hates referrals though. But I guess I should push harder to see a rheumatolagist (sp).
    Morganio 3 Replies Flag this Response
  • my sugestion would be to checking into seeing a neurologist.. you could have an abnormality that is causing tpart of the problems.. good luck.. im also 23 and feel like im 80.. i have a long list of symptoms and no answers
    Anonymous 42789 Replies Flag this Response
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