Discussions By Condition: I cannot get a diagnosis.

I am too young to feel this sick. Please help.

Posted In: I cannot get a diagnosis. 36 Replies
  • Posted By: Demise
  • February 22, 2007
  • 10:39 AM

I have had quite a few medical problems, but many of them have never been diagnosed as anything. I've found ways to function, but sometimes functioning isn't enough to enjoy life.

Everything below has occurred since 2004 (except the mental and mood disorders which started at childhood.)

Basic information:
Sex: Female
Age: 18
Weight: 97lbs
Height: 5'4
Smoke: Yes
Drink: No

Diagnosed with:
Bipolar Disorder
Anxiety/Panic Disorder
ADHD
Insomnia
Obsessive-Compulsive Worrier
Asthma
Hair Follicle Disease

Past medical conditions:
Chronic Shingles (Herpes Zoster)
Chronic Gastritis
Chronic sinus infections

Current Medications:
Adderall XR 30MG (Once Daily)
Zelnorm 6MG (Once Daily)

(I'm not allergic to any medications, but if i take any kind of pain killer it seems to set off another case of Gastritis.)

Daily Symptoms:
Dizziness/ Dizzy spells (Almost every time i stand up from and laying position)
Fatigue
Unusual Weakness
Tiredness
Shortness of breath
Foot Pain (from standing any length of time)
Restlessness
Tenderness in stomach
Upset stomach (after i eat)
Upper Back Pain
Neck Pain
Hip (joint) Pain
Knee (joint) Pain

Reoccurring Symptoms:
Severe Constipation (1-2 weeks without a bowel movement)
Stomach pain/cramps
Random Muscle spasms
Random Muscle pains
Nausea
Headaches
Bloating
Bleeding Gums

Tests and Procedures:
Upper and lower Scope
Biopsy (same time as the scopes)
Barium Study
Allergy Panel Test

Blood Tests:
H. Pylori
Thyroid
Allergies
And other

(All tests came back normal except for a mild allergy to mold.)

Other Information:
Around the same time i started having these medical issues i became "allergic" to pot. (I know i shouldn't have been smoking pot, I'm very anti-drug now, but i was young and stupid.) I smoked pot a lot before that, but then out of no where i started getting severely nauseous, violently throwing up and would be sick for two or three days after if i even took one hit. This happened five times. The sixth time i attempted to smoke i collapsed and had an attack i can only describe as the scariest thing I've ever experienced. I was uncontrollably convulsing (for what length of time, i cannot remember) until i finally blacked out.
About 8 months ago i started getting extremely sick (the same way i did with pot, the nausea and vomiting that is) if i drank alcohol, so i stopped that as well.


I stopped eating meat four months ago, around the same time i started taking Zelnorm and most of my digestive problems became 65% better. I struggled with Anorexia for almost three years, during that time i dropped from 135lbs to 108lbs (with occasional fluctuations depending on medications i was trying.) Since i stopped eating meat my weight has dropped from 108lbs to 97lbs, and i am unable to gain weight back no matter how much i eat (...and as a result i obviously no longer have body image issues.) My original excitement about my sudden weight loss has turned into concern because it continues to drop slowly and I sometimes go through periods of time where i randomly become malnourished.

During the first year or so that i started to become constipated it was a constant problem. I tried everything from oral laxatives, suppositories and enemas to a high-fiber diet, magnesium citrate and finally an entirely organic diet. Since nothing was working i decided not to eat until i was too weak to stand, and i continued like that until i saw a gastroenterologist who prescribed me Zelnorm.

Constipation and the severe cramping i had in the past only occur occasionally now in some what milder forms (around five times a month) and are not my biggest concern. I am unable to function most of the time because of how tired and weak i feel. I had to quit my job, test out of high school and now I'm dreading going to college because I'm afraid I'll end up having to drop out.

If anyone has any information about what might be causing all this i would be forever grateful. I know some of this information might seem irrelevant, but i didn't want to leave anything out that might aid in finding an answer.
I apologize for the length of this post.

Thank you :)

.:: Demise ::.

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36 Replies:

  • I'm so sorry if this offends you, but have you tried working out? It might take your mind of things and help build up your confidence in your body again, boost energy levels and make you sleep better. It could very well be something physical, but it wouldn't hurt to try, would it? Good luck, though...
    Anonymous 42789 Replies
    • February 22, 2007
    • 01:04 PM
    • 0
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  • Thank you for the reply. And it doesn't offend me, no. Walking up and down the stairs takes pretty much all the energy i have, gets my heart absolutely pounding, causes major fatigue and dizziness, burns almost every muscle in my body, and often requires me to use my rescue inhaler to calm my breathing down. A few people have asked me why i don't try exercising. I have, a couple times. First i tried running, then i tried walking, then i tried sit ups and push ups, and then i realized that most of the time i was straining to keep myself standing... my endurance is extremely low. Working out is down right painful. I was looking through the forums and came across a few people talking about Fibromyalgia. I started looking into it and it sounds pretty dead on. Fibromyalgia symptoms I experience:Wide spread pain in all four quadrants of the body, 18/18 tender or painful pressure points, stiffness, sleep disturbances, extreme fatigue, constipation, abdominal pain, bloating, headaches, facial pain (jaw), heightened sensitivity to cold/heat/touch/lights, depression, numbness or tingling sensation in the hands and feet, difficulty concentrating, mood changes, chest pain, dry skin, dry eyes, painful menstrual periods, dizziness, anxiety, neurological symptoms (shingles). Does that sound reasonable? Or am i just getting my hopes up on actually finding out what's wrong with me...? I'll be making a doctors appointment ASAP, but any info/insight/opinions/advice etc. would be awesome. Thanks. .:: Demise ::.
    Demise 7 Replies
    • February 22, 2007
    • 01:50 PM
    • 0
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  • I have had quite a few medical problems, but many of them have never been diagnosed as anything. I've found ways to function, but sometimes functioning isn't enough to enjoy life. Everything below has occurred since 2004 (except the mental and mood disorders which started at childhood.) Basic information:Sex: FemaleAge: 18Weight: 97lbsHeight: 5'4Smoke: Yes Drink: No Diagnosed with:Bipolar DisorderAnxiety/Panic DisorderADHDInsomniaObsessive-Compulsive WorrierAsthmaHair Follicle Disease Past medical conditions:Chronic Shingles (Herpes Zoster)Chronic GastritisChronic sinus infections Current Medications:Adderall XR 30MG (Once Daily) Zelnorm 6MG (Once Daily) (I'm not allergic to any medications, but if i take any kind of pain killer it seems to set off another case of Gastritis.) Daily Symptoms:Dizziness/ Dizzy spells (Almost every time i stand up from and laying position)Fatigue Unusual WeaknessTirednessShortness of breathFoot Pain (from standing any length of time)RestlessnessTenderness in stomachUpset stomach (after i eat)Upper Back PainNeck PainHip (joint) PainKnee (joint) Pain Reoccurring Symptoms:Severe Constipation (1-2 weeks without a bowel movement)Stomach pain/crampsRandom Muscle spasmsRandom Muscle painsNauseaHeadachesBloatingBleeding Gums Tests and Procedures:Upper and lower ScopeBiopsy (same time as the scopes)Barium StudyAllergy Panel Test Blood Tests: H. PyloriThyroidAllergiesAnd other (All tests came back normal except for a mild allergy to mold.) Other Information:Around the same time i started having these medical issues i became "allergic" to pot. (I know i shouldn't have been smoking pot, I'm very anti-drug now, but i was young and stupid.) I smoked pot a lot before that, but then out of no where i started getting severely nauseous, violently throwing up and would be sick for two or three days after if i even took one hit. This happened five times. The sixth time i attempted to smoke i collapsed and had an attack i can only describe as the scariest thing I've ever experienced. I was uncontrollably convulsing (for what length of time, i cannot remember) until i finally blacked out. About 8 months ago i started getting extremely sick (the same way i did with pot, the nausea and vomiting that is) if i drank alcohol, so i stopped that as well. I stopped eating meat four months ago, around the same time i started taking Zelnorm and most of my digestive problems became 65% better. I struggled with Anorexia for almost three years, during that time i dropped from 135lbs to 108lbs (with occasional fluctuations depending on medications i was trying.) Since i stopped eating meat my weight has dropped from 108lbs to 97lbs, and i am unable to gain weight back no matter how much i eat (...and as a result i obviously no longer have body image issues.) My original excitement about my sudden weight loss has turned into concern because it continues to drop slowly and I sometimes go through periods of time where i randomly become malnourished.During the first year or so that i started to become constipated it was a constant problem. I tried everything from oral laxatives, suppositories and enemas to a high-fiber diet, magnesium citrate and finally an entirely organic diet. Since nothing was working i decided not to eat until i was too weak to stand, and i continued like that until i saw a gastroenterologist who prescribed me Zelnorm. Constipation and the severe cramping i had in the past only occur occasionally now in some what milder forms (around five times a month) and are not my biggest concern. I am unable to function most of the time because of how tired and weak i feel. I had to quit my job, test out of high school and now I'm dreading going to college because I'm afraid I'll end up having to drop out. If anyone has any information about what might be causing all this i would be forever grateful. I know some of this information might seem irrelevant, but i didn't want to leave anything out that might aid in finding an answer. I apologize for the length of this post. Thank you :) .:: Demise ::.STOP SMOKING!!! You are so obviously concerned about your health in general. Why would you continue to poison yourself when you already don't feel well? Maybe if you stopped smoking, you could exercise more and improve your health.
    Anonymous 42789 Replies
    • February 22, 2007
    • 02:34 PM
    • 0
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  • that is a STUPID answer from a person who has obviously never been addicted to nicotine. Coffee is bad too, I don't hear anyone offering to quit that for their health. I have been smoking for about 15 yrs, two yrs ago I had a swollen lymph node and began having other debilitating symptoms (many of the ones you get). Though an avid pothead for about 12 yrs (between 5-10 times daily,everyday), I started feeling extremely lightheaded after only a single hit. Two yrs potfree unfortunately, since I really enjoyed getting a nice buzz and had no intention of ever giving it up. BTW, I am 30. I am uninsured, so I went to a clinic to get a bunch of tests done. I personally do not believe in too many illnesses that cannot be tested for (i.e. CFS and fibro). The number of diagnoses of these "syndromes" has risen way to dramatically for me to buy into. I like to tell the docs that they have LDS (Lazy Doctor Syndrome) when they try to tell me I have CFS. These symptoms are so generic that they could point to MANY different conditions and many more if taken in groups (I mean, some symptoms could be caused by one thing and others caused by another thing entirely).I don't want to sound like I am advocating smoking in any way, wish I never started. Since you do have asthma, IF you could quit then it may help narrow down some of your symptoms (shortness of breath). As I look at your symptoms more, I realize that I suffer from almost all of them, though no mental disorders. Stress/anxiety can exacerbate many of these symptoms too, just googling the symptoms and seeing CANCER can make anyone feel unwell. I think you are on the right track so far as eating well, but I do believe that excercise (as much as you can handle) and being outdoors can work wonders. A few articles that I read point to the colon as the originator of most disease (this was published in the UK journal of medicine) there is a site that sells a cleanse but its pretty expensive and I don't know if it would work or not. But I think that if the body can be given a little help it can fix most other things (homeostasis). You can check it out, maybe you are wealthy and can afford to try anything www.drnatura.comYou can email me if you want, I probably won't check back on this board. I'm at jackazz76@aol.com
    Anonymous 42789 Replies
    • February 22, 2007
    • 06:55 PM
    • 0
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  • Hiya demise,I have read you're post and i think it could possibly be ME/chronic fatigue syndrome(cfs). I have had this for seven years but only recently been diagnosed. I have very little energy and have to go to bed everyday for two hours to function even slightly normal. The symptoms vary, mine would be extreme tiredness/malaise, swollen lymph nodes (for no reason) confusion/brain fog, really bad short term memory, if i don't sleep in the afternoon my whole body ends up sore, i feel really sick like the flu my head hurts and generally very ill, abdominal pain and bloating. there are so many symptoms of this.chronic fatigue syndromeWhat is it?Chronic fatigue syndrome (CFS) is characterised by prolonged fatigue associated with a wide range of accompanying symptoms. It has also been called post-viral fatigue syndrome, myalgic encephalomyelitis (ME) or chronic fatigue.CFS can affect people of any age. However, it's most common between the ages of 25 and 45 years. It's estimated that around 150,000 people in the UK have CFS, with women affected more often than men.SymptomsTo be diagnosed with CFS someone must have severe chronic fatigue for at least six months with no other medical condition identified as the cause. They must also have four or more of the following symptoms:substantial impairment in short-term memory or concentration sore throat tender lymph nodes muscle pain multi-joint pain without swelling or redness headaches of a new type, pattern or severity unrefreshing sleep post-exertional malaise lasting more than 24 hoursOther symptoms that may occur include:abdominal pain alcohol intolerance bloating chest pain chronic cough diarrhoea dizziness dry eyes or mouth earaches irregular heartbeat jaw pain morning stiffness nausea night sweats psychological problems, such as depression, irritability, anxiety, panic attacks shortness of breath skin sensations tingling sensations weight lossIn general, the symptoms of CFS aren't improved by bed rest and may be worsened by physical or mental activity.ALSO Fibromyalgia can go hand in hand with ME alot of people with ME have FM.I really hope this helpsKerry
    Anonymous 42789 Replies
    • February 22, 2007
    • 09:27 PM
    • 0
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  • Thank you for your reply. ME/CFS/FM; One of these could very likely be exactly what I've been dealing with for so long. I've made a doctor's appointment for next Wednesday, so hopefully we'll be able to determine exactly which one. I think I'm a little too emotional to write right now lol. Thank you so much for the information. I hope you find some relief from your pain. .:: Demise ::.
    Demise 7 Replies
    • February 22, 2007
    • 10:08 PM
    • 0
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  • Our symptoms/diagnoses are eerily similarabout me:Basic information:Sex: FemaleAge: 24 Weight: 110lbs, WAS 82 3 months agoHeight: 5'4"Smoke: YesDrink: NoDiagnosed with:Bipolar DisorderAnxiety/Panic DisorderADHDInsomniaObsessive-Compulsive Worriermild AsthmaConnective Tissue DiseaseFibromyalgia/CFSsleep apnearestless legs syndromePast medical conditions:Chronic GastritisChronic ear infectionschronic UTI'sCurrent Medications:Adderall (regular) 20MG (twice Daily)Cymbalta 60mg once dailyKlonopin 1mg 2x/daily(allergic to sulfa, phenergan drugs.)Daily Symptoms:Dizziness/ Dizzy spells (Almost every time i stand up from and laying position)FatigueUnusual WeaknessTirednessShortness of breathRestlessnessTenderness in stomachUpset stomach (after i eat)Back PainNeck PainKnee (joint) PainReoccurring Symptoms:Stomach pain/crampsRandom Muscle spasmsRandom Muscle pains some muscle wasting in the upper extremitiesNauseaHeadachesBloatingBleeding Gums (dentist suggested vitamin c supplements, but they haven't helped thus far)Tests and Procedures:Antibodies 1. ANA Positive a. Homogenous 1:320 b. speckled 1:160 2. Anti-Sm (Anti-smith antibody) positive 3. other antibody tests taken 3 weeks ago ; haven't heard back yetBlood Tests:ThyroidDo you think we may have the same thing?I'm going to try and quit smoking pretty soon b/c i want to start healing my body from toxins. Have you had antibody tests? Because a lot of your symptoms suggest an autoimmune disorder. I'm being tested for lupus, rheumatoid arthritis, and sclerodermahave you had hot flashes and night sweats? That's the main thing bothering me right nowAlso, I know I hate to admit this (cause I don't want to let go of my way of making it through the day), but look at rxlist.com and look up side effects of adderall. it can cause a lot of the weight symptoms, and I also noticed a big turn-off to the smell of meat when I started taking it. The smell of roasting meat will literally make me barf.http://www.rxlist.com/cgi/generic/adderallxr_ad.htmtake care,Sheree
    Anonymous 42789 Replies
    • February 22, 2007
    • 10:34 PM
    • 0
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  • Wow, we do have a lot of the same symptoms... and you reminded me that i used to have a lot of UTI's. Woke up two Christmas' ago peeing blood for no reason. That used to happen a lot. But I've been on AdderallXR for a long time, and I've also gone through long periods of time (up to 8 months) without taking it, and it made no difference. The only AdderallXR effects my weight is if i don't eat before i take it, and let me tell you... i hardly ate for three years, so I'm making up for it now lol. I LOVE food. (It just kinda hurts after...) I'm not sure if i've had an antibody test. My doctors like to test me for things but then never mention they are doing so. And of course if i don't call them everyday i never end up getting my results back. I'll have to check with a few of my doctors to find out and if i haven't I'll definitely do that. I didn't stop eating meat because i disliked the smell. I came across the PETA web site www.goveg.com and saw videos about what i was eating. I haven't eaten meat since. And it has helped my discomfort tremendously. Not to mention i feel better about myself knowing that nothing died for my meal. (Btw I'm not here to get into a debate about how, "It's human nature to eat meat" with anyone. I agree with that, but not the way factory farming is done... so please please please please don't try to -convert- me back to eating meat. It wont happen.) ...Just had to throw that in there lol. Seems like there's always some eager person to put up a fight. I have occasional hot flashes, and most of the time they are mild. I haven't noticed night sweats but that might just be because i try to make my room as cold as possible when i go to bed because if it gets hot/warm at all, i wake up. I've been smoking since i was 12 or 13 and i really do want to quit too. The problem is that when i don't have a cigarette when i crave one i get nauseous, restless, irritable, emotional and most of the time start crying. It really is annoying. I kinda keep hoping I'll just randomly start having terrible reactions to cigarettes like i do with pot and alcohol lol. I know i need to give it up though... Thanks for the reply, I'll look into autoimmune disorders. .:: Demise ::.
    Demise 7 Replies
    • February 22, 2007
    • 11:27 PM
    • 0
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  • Have you ever been tested for Lyme's Disease? My doctor told me it is the next up-coming disease epidemic in America. 40% of Americans have it and don't even know it. It has a symptom list of 4 pages and you no longer can only contract it just through ticks; but meat, water, etc. I have never been bitten by a tick and went untreated with multiple symptoms for three years before my doctor tested me for Lyme...and to my surprise the test came up positive.
    Anonymous 42789 Replies
    • February 23, 2007
    • 06:09 AM
    • 0
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  • so, there's too many similarities, and too many symptoms that are alike too really ignore. i was supposed to have an endoscopy two years ago for GERD and couldn't b/c of sudden lack of health insurance, so darn...it really sucks when I eat, too. I feel like I have to swallow like 4 times before it finally goes down, and I get bloated, ****y, and seem to go thru "eating swings" instead of mood swings ; like I'll flip-flop every few weeks between not wanting to eat at all and eating everything in the house, so I think my heart may be having some problems dealing with the added stress of repetitive, rapid weight fluctuations (ranges up and down, between 95 and 110). have you ever had any heart palpitations or had to go to the hospital because of SVT (Supraventricular Tachycardia)?
    Anonymous 42789 Replies
    • February 23, 2007
    • 08:07 AM
    • 0
    Flag this Response
  • I have had quite a few medical problems, but many of them have never been diagnosed as anything. I've found ways to function, but sometimes functioning isn't enough to enjoy life. Everything below has occurred since 2004 (except the mental and mood disorders which started at childhood.) Basic information:Sex: FemaleAge: 18Weight: 97lbsHeight: 5'4Smoke: Yes Drink: No Diagnosed with:Bipolar DisorderAnxiety/Panic DisorderADHDInsomniaObsessive-Compulsive WorrierAsthmaHair Follicle Disease Past medical conditions:Chronic Shingles (Herpes Zoster)Chronic GastritisChronic sinus infections Current Medications:Adderall XR 30MG (Once Daily) Zelnorm 6MG (Once Daily) (I'm not allergic to any medications, but if i take any kind of pain killer it seems to set off another case of Gastritis.) Daily Symptoms:Dizziness/ Dizzy spells (Almost every time i stand up from and laying position)Fatigue Unusual WeaknessTirednessShortness of breathFoot Pain (from standing any length of time)RestlessnessTenderness in stomachUpset stomach (after i eat)Upper Back PainNeck PainHip (joint) PainKnee (joint) Pain Reoccurring Symptoms:Severe Constipation (1-2 weeks without a bowel movement)Stomach pain/crampsRandom Muscle spasmsRandom Muscle painsNauseaHeadachesBloatingBleeding Gums Tests and Procedures:Upper and lower ScopeBiopsy (same time as the scopes)Barium StudyAllergy Panel Test Blood Tests: H. PyloriThyroidAllergiesAnd other (All tests came back normal except for a mild allergy to mold.) Other Information:Around the same time i started having these medical issues i became "allergic" to pot. (I know i shouldn't have been smoking pot, I'm very anti-drug now, but i was young and stupid.) I smoked pot a lot before that, but then out of no where i started getting severely nauseous, violently throwing up and would be sick for two or three days after if i even took one hit. This happened five times. The sixth time i attempted to smoke i collapsed and had an attack i can only describe as the scariest thing I've ever experienced. I was uncontrollably convulsing (for what length of time, i cannot remember) until i finally blacked out. About 8 months ago i started getting extremely sick (the same way i did with pot, the nausea and vomiting that is) if i drank alcohol, so i stopped that as well. I stopped eating meat four months ago, around the same time i started taking Zelnorm and most of my digestive problems became 65% better. I struggled with Anorexia for almost three years, during that time i dropped from 135lbs to 108lbs (with occasional fluctuations depending on medications i was trying.) Since i stopped eating meat my weight has dropped from 108lbs to 97lbs, and i am unable to gain weight back no matter how much i eat (...and as a result i obviously no longer have body image issues.) My original excitement about my sudden weight loss has turned into concern because it continues to drop slowly and I sometimes go through periods of time where i randomly become malnourished.During the first year or so that i started to become constipated it was a constant problem. I tried everything from oral laxatives, suppositories and enemas to a high-fiber diet, magnesium citrate and finally an entirely organic diet. Since nothing was working i decided not to eat until i was too weak to stand, and i continued like that until i saw a gastroenterologist who prescribed me Zelnorm. Constipation and the severe cramping i had in the past only occur occasionally now in some what milder forms (around five times a month) and are not my biggest concern. I am unable to function most of the time because of how tired and weak i feel. I had to quit my job, test out of high school and now I'm dreading going to college because I'm afraid I'll end up having to drop out. If anyone has any information about what might be causing all this i would be forever grateful. I know some of this information might seem irrelevant, but i didn't want to leave anything out that might aid in finding an answer. I apologize for the length of this post. Thank you :) .:: Demise ::.ask your doctors to check your heart, your lungs and your kidneys, most of the symptoms you have, are related with these sicknesses, it is better to prevent than to be sorry, do not accept any mental disease diagnosis until they have ruled out all possibilities!!!!!!, good luck, and try to stay calm.
    Anonymous 42789 Replies
    • February 24, 2007
    • 00:08 AM
    • 0
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  • Okay, so I've never been tested for Lyme's Disease, but i will do that, as well as having my heart, my lungs and my kidneys. (Oh that's right, I've got a list now... my doctor is going to hate me so more then she already does lol.) I used to go through eating swings too, mostly when my gastritis used to come back almost immediately after it went away. The combination of that and my years of refraining from eating caused my weight to bounce around a lot too. Mostly between 105lbs and 115lbs (there were about six times that my weight went back up to around 130lbs and it was sudden, fast and extremely painful. When ever that happened it was always followed by a very quick drop of the weight.) So i was having the loss/gain of about 20-25lbs in a week or two... is that really ******n your heart? I actually had no idea what heart palpitations were until just now when i looked it up, and yes... all the time. Sometimes it's random, and some times it's after I've walked up the stairs, or right when i get out of bed or get in bed. A lot of the time i get wheezy and tight chested and have chest pains with it. After looking this up, that's bad isn't it? One web site said if you experience those together to call 911, but it doesn't feel that serious to me. It's more annoying then anything. :confused: Thank you all so much for everything so far. Like i said, I've got a list going. I really appreciate everything. .:: Demise ::.
    Demise 7 Replies
    • February 24, 2007
    • 02:14 AM
    • 0
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  • Please, don't let all of this go...you're right...you ARE too young to be having all of these symptoms. Extreme, rapid weight fluctuations is very stressful on your cardiovascular system, as well as your digestive system and metabolism of food. When in starvation, the body adjusts the hormones to try and slow metabolism to try to keep from losing more weight. After a few months to a year, the digestive muscles begin to atrophy ; So once you begin to ravenously eat and eat, the heart begins to beat faster, the blood pressure increases dramatically, and the digestive system, which by now is used to the body being starved, and diarrhea, nausea, and vomiting are common during a period of "refeeding" lasting anywhere from several days to several weeks, usually depending on how long the starvation period lasted. Thus, the name, "Refeeding syndrome" ; look it up
    Anonymous 42789 Replies
    • February 24, 2007
    • 07:03 AM
    • 0
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  • Lyme and its coinfections are the cause of Fibro, CFS and much more. You don't get it from water and meat as someone suggested. The dr's normally don't test for Lyme & company. Get the western blot test, its more accurate.Its also a clinical dx so the symptoms matter. One of the coinfections causes night sweats. But I can't remember which one. Do some google searches, you will learn alot. You could also have a thyroid problem and be anemic. You may also be lacking in some minerals, like magnasuim and potassium. Some times the dr's don't read all the lab results. The labs boldface what is abnormal to them. And thats what the dr sees . What the lab considers normal, is not right for everyones body. While fibro & Cfs are real, they will only want to give you antidepressants, several kinds, even at the same time. They might help a little, but it dosen't last long. I was dx'd with fibro abt 8 yrs ago, but have had undx'd Lyme for almost 20 yrs. It has affected every aspect of my body and life. Please push for the right answers....You are too young to have to deal with this stuff forever, if its not found soon. Hope you can feel better soon.
    Anonymous 42789 Replies
    • February 24, 2007
    • 11:12 AM
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  • Hello Demise Your symptoms sound alot like mine i had shingles when i was 16 and lots of recurrent infections (bladder, ear, chest etc). I was diagnosed with an immune deficiency at 20, maybe you could get your doctor to refer you to an immunologist who can look closely at your blood immunoglobulin levels. There is a web site from the PIA Primary Immunodeficiency Association they give a list of signs and symptoms so you could see if they look familier. Hope this is of some help :) Diane
    Diane Sistern 29 Replies
    • February 24, 2007
    • 01:37 PM
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  • hi Demise, just read an article about mitochondrial disease, ie the energy factory of the body. if that's affected, most body systems are down, resulting in poor digestion, fatigue etc..I'm not sure if there are specific tests as this is only beginning to be recognised, but it's worth checking out. Also most of the immune system of the body comes from the intestines as these contain the largest amount of lymphatics- responsible for immune system. therefore the digestive system is Very important, and needs to be helped as much as possible. the pot will have affected different systems, I'm sure there are undiscovered links between the brain and the digestive system. (other than the known ones). Meanwhile do anything that helps the digestive system,eg probiotics and digestive enzymes, aloe vera.... With mitochondrial disease the heart muscle is affected and not detected by normal tests, and this is one of the causes of fatigue, especially with exercise. hope this helps Marisa
    marisa 4 Replies
    • February 25, 2007
    • 00:34 AM
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  • Hi there and I'm sorry you're so ill................ Have you been checked for Celiac Disease? If not, I think it should be your first place to go..........run there now! C
    Catherine2007 8 Replies
    • February 25, 2007
    • 04:12 PM
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  • oh ***k! I know you want help, and all the advice is confusing, but you must use your intuition. First you must not give up faith, know that you are deserving of radiant health. Jumping on the stair master or quiting smoking is not where the roots are. You must love yourself and not have guilt about your behavior, it will only attach you to more of that behavior. It may take a long time, but you need to return your body to balance. Look at you life story, what happened in you personal world when these symptoms arose?I would advise seeking alternativr medical care, such as Traditional chinese medicine practitioners, counseling and fresh blood and oxygen to your brain via the form of Bikram yoga wouldn't hurt.you must love yourselfhave faithforgive yourself and otherspolluting your body further wiil only confuse your concerns
    Anonymous 42789 Replies
    • February 25, 2007
    • 10:20 PM
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  • Honey,You DO have Fibromyalgia. It affects everyone differently but it sounds like you have it. You should go see a Rheumatologist, they are the doctors who mostly treat Fibro. With all the jumble of symptoms that go along with Fibro it makes a diagnosis very difficult, but Rheumys know what to look for.I am sorry to say that even if you get a correct diagnosis of Fibro you will not feel any better. You will only have a name for your condition. It is a very tough condition to live with. You will have to make many modifications to your daily life. But at least you will know what you are dealing with.I wish you luck!Please see a Rheumatologist :)
    Anonymous 42789 Replies
    • February 25, 2007
    • 11:58 PM
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  • ask your doctors to check your heart, your lungs and your kidneys, most of the symptoms you have, are related with these sicknesses, it is better to prevent than to be sorry, do not accept any mental disease diagnosis until they have ruled out all possibilities!!!!!!, good luck, and try to stay calm.Please get checked for Celiac Disease!
    Anonymous 42789 Replies
    • February 26, 2007
    • 00:35 AM
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