Alright- here we go! Sorry for being so long but I need help. :)
I am currently 26 and work as a chemotherapy nurse for about a year.
I don’t know a lot of my family history as I am adopted but do know my bio mom had thyroid cancer and bio sister had cervical and uterine cancer. There is a possibility that my bio mom drank and did drugs while she was pregnant with me:mad:
I was a very healthy child even though I had rubella when I was 4 (I had my immunizations but it did not work in this case). We lived in Indiana and I had no allergy problems. We moved to Florida when I was 12 and I had some seasonal allergies. When I was in eighth grade I started having bad reactions to insect bites/ stings. In 9th grade I had my first anaphylactic reaction to a fire ant- from then on I was in the hospital 17 times my freshman year due to anaphylactic shock. I was miserable! A wonderful ER doctor suggested my parents look in to allergy shots. I was skin tested and found to be allergic to yellow jackets, wasps, bees and very, very, very allergic to fire ants. I received allergy shots for 7 years.
About 4-5 years ago, I started to feel very tired all the time. I would sleep all night and not feel like I slept at all. I attributed it to finishing nursing school and starting my first real full time job. About 2-3 years ago I started feeling worse and getting recurrent infections. I also developed a severe allergy to cats- now I am not allergic to the insects but can’t go into the same house as a cat without wheezing. If I touch the cat I have an anaphylactic reaction. I also started having recurrent infections- anything from recurrent bronchitis, sinus infections, skin infections, etc.
In November 2005 I had my tonsils taken out with hopes that my recurrent infections would stop because the tonsils would not be harboring bacteria. I had had strep throat 6 times in 4 months. I had about a 6 month reprieve.
In July 2006 I started to feel tired again and went to the doctor. He said it was allergies and put me on meds. I tried about 10 different allergy meds and nothing worked. My primary doctor SUCKS and then he attributed my fatigue to depression so he put me on antidepressants. I had bad reactions to each antidepressant and he finally took me off. He never talked about the recurrent infections.
In October 2006 I ended up in the hospital with an arrhythmia that was attributed, after a Holter monitor and stress test, it was related to my weight. There was some worry that the recurrent strep infections could have damaged my heart by that was ruled out. I have been losing weight and exercising. The arrhythmia has pretty much stopped.
In January 2007 I was hospitalized with severe diarrhea and vomiting and was diagnosed with infectious colitis. February brought about a colonoscopy and EGD and it showed I had slight IBS and diverticulitis.
I have missed a lot of work since starting my current job in June 2006- it is my dream job- I am meant to be here and I can’t lose my job. I was almost not given a full time position because of my absenteeism. :eek:
I have a strange darkened area on my right lower abdomen that has thicker skin than everywhere else. Biopsy should hyperpigmentation and hyperplastic skin (dark and thick skin)- but I already knew that. It showed nothing else.
Since March I have had an infection of one type or another. I have been on antibiotics 3 out of the last 4 weeks. I finish the antibiotics and am off for 5 or so days and the infection comes back. I am running low grade fevers, mostly at night. I will wake up and be shivering cold, cover up and go back to sleep, and wake up later and the bed is soaked.
ME/CFS has been ruled out, Epstein Barr Virus negative, Monospot negative, Strep negative, regular blood tests are fine, thyroid is within normal limits.
My primary doctor finally said that I probably have an immune deficiency.
I went to see an immunologist on Tuesday and go for blood work on Friday along with some CT scans. The blood work includes testing for lupus, IgG, IgM, and other immune components, diphtheria, and tetanus. I am scared to death to have lupus or scleroderma but it is a possibility. He is comparing the possibility of immune deficiency vs. autoimmune disease.
I have seen my primary, a cardiologist, dermatologist, ENT, immunologist, GI, and a psychiatrist (the psychiatrist even said that she didn’t think it was all in my head like my primary thought).
Any thoughts? I am sick of being sick. I don’t feel good. My husband is amazing and so supportive but I want to be a wife and I don’t feel good enough to.
Any suggestions would be greatly appreciated.