Discussions By Condition: I cannot get a diagnosis.

I am only 15 but I feel so sick

Posted In: I cannot get a diagnosis. 22 Replies
  • Posted By: Anonymous
  • December 4, 2008
  • 03:45 AM

Hello,

My symptoms:

-Pain in my intestines... It starts to hurt when I begin to digest a meal. I can trace the path of food all the way down through my intestines because I can feel it so acutely. It's like when you eat too much junk food or something else like it that you can't digest very well, except it happens after almost every meal.
-Nausea...I feel nauseaus about 90% of the time. I never actually throw up, but the constant nausea is horrible.
-Headaches...I get every type of headache possible it seems. Sometimes it is shooting pain over my right eye and back into my head, other times it can be just a headache in the front part of my head. It varies.
-Occasionnal diarrhea
-Irregular periods
-Cold hands and feet
-I have acne on my face, back, and chest (i don't know if this is related or not)
-Irritability
-Occasional dizziness
-Fatigue
-Chronic heartburn (which I think is causing my breathing issues)
-Occasional muscle cramps
-Difficulty sleeping
-Occasional weakness
-Trouble adjusting to hot weather (I don't know if that's a symptom or not)

Another troubling and problamatic symptom for me only occurs sometimes. After I run or otherwise work out, sometimes my stomach will randomly start to cramp and I will get diarrhea even if I haven't eaten anything in quite a while. This is very troublesome when I'm in gym class or something like that.

I also suffer from depression and anxiety, though I'm sure this isn't causing my symptoms. Every doctor I've been to has told me this, and told me its all in my head. Which I'm pretty sure it's not.

I have been tested for some things and come back negative for all of them. The only medication I am on is Stievamycin for my acne.

I am a fifteen year old caucasian female. I am not overweight, eat fairly well, and I think I am in pretty good shape.


If anyone has any ideas, that would be great. I feel so sick, and its too the point where I simply don't want to eat anymore.

Thanks!

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22 Replies:

  • Anyone? Any ideas at all? Please?Thanks
    Anonymous 42789 Replies
    • December 5, 2008
    • 00:10 AM
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  • Hey...Thank you for replying! I don't think that's its though, mainly because the symptoms persist when I travel or camp away from wireless stuff.Anyone else? Please?
    Anonymous 42789 Replies
    • December 5, 2008
    • 02:20 AM
    • 0
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  • Did anyone think about celiac disease? Try here: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/index.htm
    aquila 1263 Replies
    • December 5, 2008
    • 05:26 PM
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  • Have you seen a gastrointerologist for your stomach symptoms, or a gynocologist or even your regular doctor about your period symptoms? I'm not sure if these two could be related... How about fructose intolerance? Or aquila could be right about celiac.
    qwertyuiop123 453 Replies
    • December 5, 2008
    • 10:59 PM
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  • Try getting tested for lymes disease. It is worth a shot. Check out this link: http://info.lymebook.com/matthewgoss.html My mom was just diagnosed with lymes and you sound like you have similar symptoms. The doctors tried to tell her it was everything from IBS to fibromialgia. She looked lymes disease up online and asked them to test her and sure enough that is what it was...so good luck.
    PUNKYB33 7 Replies
    • December 6, 2008
    • 01:24 AM
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  • Thank you very much for replying!Thank you for the link, I'm thinking of going back to my doctor and asking her if she can test me for celiac disease. I had an ultrasound a while ago because of my period problems but apparently everything was fine. Other then that, my doctor told me its probably anxiety and left it at that. Thanks again!
    Anonymous 42789 Replies
    • December 6, 2008
    • 02:06 AM
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  • Hi, Twilight. I just wanted to tell you to stick to your guns and not get discouraged by the doctors who say that it's all in your head. I'm in my 20s and have been dealing with my own undiagnosed digestive and other issues for several years. I'm reasonably intelligent, sane, and self-aware, but even when you know you're not making it up, you're taking decent care of yourself and you really are sick, it can be hard to know how to talk to doctors and not feel put out when people in authority imply that your very real suffering is somehow your doing. When they treat you poorly, remember that it's not you, it's them: They don't know what to do when you don't fit into standard diagnoses or treatments, and instead of admitting it they tell themselves it's because there's something wrong with your thinking. Obviously I haven't fixed my own problems either, so I suppose I can't be of much help there. I hear a lot about celiac (which I don't have, but it's something you can get tested for so you might as well) and I do know that some foods effect me to some degree. I'm trying an anti-inflammatory diet now, since I figure it can't hurt to cut out milk, wheat, sugar, etc and focus on fresh fruits and veggies. I'm not sure how long it would take to have any effect, but I thought I'd put it out there. Don't stop looking for a diagnosis (I know, I know, that's what you're doing on this forum), and best of luck.
    so over it 5 Replies
    • December 7, 2008
    • 02:00 AM
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  • hey sweetie,try researching P O T S syndrome, or dysautonomia. some of your symptoms sound like they fit.good luckPAM
    pamelasmc 82 Replies
    • December 7, 2008
    • 02:06 AM
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  • Hey,Thanks you all very much for replying. Yes, I talked to my doctor about it and went to a pediatrican, but the pediatrcian sort of brushed off my stomach symptoms and didn't actually say anything or do anything about them. My doctor said it must be anxiety and sent me to a psychologist, which didn't help AT ALL. I'm thinking celiac is the best guess right now and I'm going to go back to my doctor and ask her to test me for it. I looked up POTS and dysautonomia, but I don't have some of the major symptoms assosciated with those diseases. Thanks anyway!Thank you again, everyone. If anyone else has any ideas, that would be great
    Anonymous 42789 Replies
    • December 7, 2008
    • 03:10 AM
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  • Good luck with the celiac test. If you have it, at least just avoiding wheat is fairly straightforward.Super-long post below, but it might be worth a look:If the celiac test is negative, another possibility worth exploring is systemic yeast, which is like a full-body yeast infection. (I know yeast plays at least some role in my issues, though I'm not sure if it's everything.) Google "chronic yeast," "systemic yeast," or "candida" and you'll find many, many pages on it. A couple places to start might be http://www.yeastinfectionadvisor.com/systemicyeastinfections.html and a candida message board at http://www.prohealth.com/candida/blog/boardhome.cfm. A little background, from my own research and experience: Systemic yeast is one of those weird diagnoses that many doctors don't recognize, so if you want to explore it you might have trouble getting someone to listen to you. Try a naturopath or a Lyme-literate doc, since they often operate outside conventional medicine. A lot of the websites sound kind of nutty and conspiratorial, so you have to be open minded and just take from them what you find helpful. If you want to dip your toe in slowly, try eliminating sugar from your diet--I know it's a real pain, but sugar feeds yeast, so if you have it, not eating sugar starves them. That means no sugar, honey, molasses, juice, dried fruit, maybe all fruit (depending how far you want to take it), most artificial sweeteners, basically almost anything sweet--for, say, a couple weeks and see if you feel any better at all. (You might have crazy cravings for a few days, but they do go away.) If you do start to feel a bit better, it might be worth giving the yeast thing a real shot.If you decide to go further, you'll find a lot of the anti-yeast sources disagree as to exactly what you should do, and what supplements help and what foods make it worse seem to differ among people. The general agreement seems to be to eliminate sugars, white flours/rice/etc, and most dairy (milk contains a sugar called lactose). Many also say you should avoid anything fermented, aged, or brewed, like soy sauce, vinegar, and cheese, but others say no. Similarly, some say to avoid all carbs, including whole grains and starchy veggies like carrots and pumpkin, but I guess it depends on how you feel when you eat them.Most people also seem to take some sort of anti-yeast supplement or drug. Doctors can prescribe Nystatin (which only acts in the digestive system) or Diflucan (which acts everywhere, but you have to get liver tests every so often to make sure your liver is handling the drug OK), and there are lots of suggestions about herbal and other supplements like oregano oil and coconut oil, though you should take it slowly because even supplements are drugs in a way. There's also general agreement that after a few days or weeks, the starving, dying yeast will release toxins and you might feel a "die-off" reaction, which could be headaches, feeling mentally out of it, feeling flu-ish, all sorts of things, and that could last for a couple of weeks before it goes away. My impression is that you don't want to be too hard-core about the supplements and drugs, because having really bad die-off doesn't mean you're doing any better of a job at killing yeast.There are tests for yeast but most people seem to agree that they aren't good ones, so if a doctor gives you a test and it's negative, that could be incorrect. Also, people often end up being on the drugs/supplements/diet for months and months before they're feeling mostly normal again, so just a few weeks or a low dose of the drug won't be enough. Just wanted to point that out if you get a doctor who's willing to give it a try but only a little or for a short time--it might not work because it's just enough, or not for long enough. So it's hard to know if you have systemic yeast unless you try the treatment and it works. I suspected it because my major problems started when I was on antibiotics for a long time: antibiotics kill not only bad but also good bacteria in your body, so the normal yeasts in your body can take over way more than they should. You can find questionnaires online that will ask things about your medical history and symptoms and then suggest how likely it is that you have yeast. Those things can sound kind of like they could apply to anybody, but you might find some pertinent listings from those questionnaires. Ones like "cold hands and feet," "lots of ear infections when I was a kid" and "craving sugar and other carbs" resonated with me. Even though I'm still sick, I did find that when I eliminated sugar my acne basically vanished, so that was a good sign. Plus it just can't hurt to stop eating sugar and white flour, you know? I hope this posting is of some help, and good luck!
    so over it 5 Replies
    • December 8, 2008
    • 11:25 PM
    • 0
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  • Hey everybody,I was just wondering if anyone knew anything about whether or not celiac disease can cause nausea? A lot of it? Most of the the stuff I've read about it haven't mentioned nausea as a symptom. Part of my nausea is from my anxiety issues and that's what my dad thinks it is. Same with my doctor. But I know for sure that there is no way I feel anxious 98% of the time, and after all why would I feel anxious after eating? Cause that's when I feel nausous most of the time. Thanks!
    Anonymous 42789 Replies
    • December 9, 2008
    • 00:43 AM
    • 0
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  • Hi again,Thank you very much, so over it! I will look into that. I do have cold hands and feet, and I also crave sugar and other food items.I also thought I'd mention something else that I don't know is related or not, but I thought I'd give it a try...one of my ribs sticks out more then the others, right at the bottom left hand side of my rib cage. it isn't that noticable normally, just a slight bump, but if I suck my stomach in you can very plainly see it protruding. Most of the time I don't notice it, but in certain positions it is uncomfortable. Thanks again!
    Anonymous 42789 Replies
    • December 10, 2008
    • 00:43 AM
    • 0
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  • Here are a list of some of the symptoms of lymes disease::oThis is an excerpt from: www.ilads.org (international lymes disease assoc) SYMPTOM CHECKLISTThis is not meant to be used as a diagnostic scheme, but is provided to streamline the office interview. Note the format — complaints referable to specific organ systems are clustered to better display multisystem involvement. NAME_______________________________________DATE__________________ RISK PROFILE (PLEASE CHECK) Tick infested area ___ Frequent outdoor activities ___ Hiking ___ Fishing ___ Camping ___ Gardening ___ Hunting ___ Ticks noted on pets ___ Other household members with Lyme ___ Do you remember being bitten by a tick? No ___ Yes ___ when ________ Do you remember having the “bull's eye rash?” No ___ Yes ___ Any other rash? No ___ Yes ___ Have you had any of the following? CIRCLE ALL YES ANSWERS 1. Unexplained fevers, sweats, chills, or flushing2. Unexplained weight change (loss or gain — circle one) 3. Fatigue, tiredness, poor stamina4. Unexplained hair loss5. Swollen glands: list areas _______________________________________________6. Sore throat7. Testicular pain/pelvic pain8. Unexplained menstrual irregularity9. Unexplained milk production; breast pain10. Irritable bladder or bladder dysfunction11. Sexual dysfunction or loss of libido12. Upset stomach or abdominal pain13. Change in bowel function (constipation, diarrhea) 14. Chest pain or rib soreness15. Shortness of breath, cough16. Heart palpitations, pulse skips, heart block17. Any history of a heart murmur or valve prolapse? 18. Joint pain or swelling: list joints _________________________________________________19. Stiffness of the joints or back20. Muscle pain or cramps21. Twitching of the face or other muscles22. Headache23. Neck creaks and cracks, neck stiffness, neck pain24. Tingling, numbness, burning or stabbing sensations, shooting pains, skin hypersensitivity25. Facial paralysis (Bell's Palsy) 26. Eyes/Vision: double, blurry, increased floaters, light sensitivity27. Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity28. Increased motion sickness, vertigo, poor balance29. Lightheadedness, wooziness, unavoidable need to sit or lie down30. Tremor31. Confusion, difficulty in thinking32. Difficulty with concentration, reading33. Forgetfulness, poor short term memory, poor attention, problem absorbing new information34. Disorientation: getting lost, going to wrong places35. Difficulty with speech or writing; word or name block36. Mood swings, irritability, depression37. Disturbed sleep — too much, too little, fractionated, early awakening38. Exaggerated symptoms or worse hangover from alcohol
    PUNKYB33 7 Replies
    • December 11, 2008
    • 02:46 AM
    • 0
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  • Some of your symptoms sound like normal aspects of puberty, others are not normal, so let's break it down......."-Pain in my intestines... It starts to hurt when I begin to digest a meal. I can trace the path of food all the way down through my intestines because I can feel it so acutely. It's like when you eat too much junk food or something else like it that you can't digest very well, except it happens after almost every meal.-Nausea...I feel nauseaus about 90% of the time. I never actually throw up, but the constant nausea is horrible."-Occasionnal diarrhea-Chronic heartburn (which I think is causing my breathing issues)-Cramping and diarrhea after exercise.-Trouble adjusting to hot weather, (possibly fever)"These gastrointestinal (tummy and gut) symptoms are defiantly not normal. There could be a few things causing these symptoms......1. You may be having an allergic reaction to something you are eating.......to test this, ask your GP (your regular doctor) to do a blood test for major allergies (gluten, lactose etc.). The blood test however is not always going to show up if you have an allergy........ so another test that you can do yourself is keep a food diary. Every time you eat something, use the toilet or have pain, write it down along with the time and the date. After a week you may see a pattern emerging. For example you may find you get sick after eating a particular meal........if you cannot find a pattern, try changing the types of food you eat, for example for two days only eat fruits and vegetables, for two days only eat cereals and dairy products. Note when you feel the best and what you ate that day.2. You may have something wrong with the lining of your stomach or intestines, such as an ulcer.......to test this you will need to ask your GP for an endoscopy and colonoscopy. (In your case you may only need the endoscopy as most of your symptoms seem to be to do with your stomach and not your intestines.) In this test the doctor will give you some anesthetic to make you sleep. Then the doctor inserts a long thin flexible tube with a tiny camera on it down through your throat (endosocpy) or up through your bottom (colonoscopy) to have a look at the lining of your stomach and intestines......I know it sounds pretty nasty, but I've had both tests done myself and it's really not that bad. It dosen't hurt and your unconscious so you don't remember much. The worst part is having to drink some nasty tasting liquid that they use to prepare your stomach.......This test will also show if you have Celiac disease (which is different to a wheat allergy).3. You may be getting Appendicitis. This can be tricky to diagnose at the early stages as different people get different symptoms.....to test this, you will need a blood test to see if your body is making lots of white blood cells (these are the cells your body makes to fight infections when you get sick).......if you do have Appendicitis you may find that alternate between having diarrhea and being constipated. You may also have pain in the middle of your stomach, or on the right hand side of your stomach, or in your right groin area. Another symptom is that you may have a fever.4. You may have another type of bacterial or viral infection, of which the vomiting is a symptom. If your GP can't work it out try another GP.5. You may be experiencing some type of poisoning. Think about when your symptoms started, has anything in your environment changed since then? Or have you been spending time in places you don't normally? Have you moved house? Have you repainted your bedroom? Have you been working with plants in the garden? Have you been using pesticides or cleaning products? Have you changed detergents?..........Poisoning is usually pretty unlikely, but nothing is impossible.Lastly on this topic, make sure you eat regular small meals and eat plenty of fruit and vegtables. Drink 8 glasses of water a day. You may find for nausea that snacks like dried ginger or apples can help to settle your tummy. Avoid fatty foods like (such as chips) and foods that have a lot of sugar added to them. If you get diarrhea try eating bananas they will help slow down your digestion and drink plenty of water. The treatment your doctor has given you for your acne is a topical antibacterial plus vitamin A, which is fine and will not have any effect on your digestion.Ok next set of symptoms......."-Fatigue-Difficulty sleeping-Headaches...I get every type of headache possible it seems. Sometimes it is shooting pain over my right eye and back into my head, other times it can be just a headache in the front part of my head. It varies.-Occasional dizziness-Occasional weakness-Occasional muscle cramps"With your tummy problems no wonder your having these other symptoms. If your not eating much that will make you feel fatigued. Tummy pain and cramps will also stop you from sleeping well. If you have been having diarrhea your probably a bit dehydrated as well and this will make you feel weak and give you headaches. However there are a few things you can check for......1. If you really are getting big dizzy spells, (not the little ones every body has that may last 20 seconds) and your feeling tired a lot, ask your GP to test your blood pressure.2. Do you wear glasses? Sometimes headaches can be a sign that you are having eye strain. So get your eyes tested. Also try not to spend more than an 30mins staring at a screen or reading a book, look away into the distance from time to time.......If you do get a headache drink some water and find a quiet softly lit place to sit.3.electrolyte imbalance can cause cramping and fatigue. If you have been sweating a lot, maybe because you have been running around a lot or it's a very hot day, try drinking some water and eating something a little bit salty like a hand full of corn chips. (avoid sports drinks though they have way too much sugar).last set of symptoms......."-Cold hands and feet-Fatigue-I have acne on my face, back, and chest (i don't know if this is related or not)-medication I am on is Stievamycin for my acne.-Irritability-Irregular periods-depression and anxiety"This is all very normal for a teenager, at 15 your body is still growing and getting used to producing new types of hormones. Remember to get plenty of sleep, the average teenager 12-18 technically needs about 9hr of sleep a night due to the massive amount of growth that is happening. Cold hands and feet are a common female complaint and usually due to poor circulation. As long as your hands and feet are not going numb you have nothing to worry about....... Irregular periods often happen in younger women and usually get more regular as they get older. Irritability and anxiety can be connected with your hormones and are also something that will get better as you get older.......Acne is normal and also hormone related. When you are 15 your body is producing large amounts hormones (estrogen and progesterone) these hormones will not only give you mood swings but will also make your skin more oily and prone to breakouts. Your skin will get better as you get older and your hormones settle down. However there are a few things you can consider......1. Acne, even in adults, can be triggered by a variety of factors and can appear on any part of the body. Heat will make you sweat more, making your skin more oily and prone to breakouts. Sugar will sometimes be a contributing factor to break outs, particularly just before you have your period.....two things you can do is avoid sugar and have two showers a day. Also find a make-up artist to teach you how to use makeup properly, a good foundation can conceal a lot of acne and give you a bit more confidence. The treatment your doctor has given you is Ok and works by killing the bacteria that cause Acne, it won't however stop you from getting oily skin, that's something you will just have to grow out of.......(I'm 25 and I still get the occasional break outs before my period)2. If your periods are really irregular or you have spotting (spots of blood in-between periods) I advise you get your GP to send you for an ultrasound. If you still have symptoms you may need to go back for a couple of ultrasounds as they don't always find what they are looking for first time.3. Depression is different from normal sadness or anxiety. Depression is when your brain is not producing and dosen't have, the correct chemicals to function properly. You can tell if you have depression if you have a combination of the following....-You feel like your thinking has been slowed down-You feel sluggish and have low energy-You are unable to feel excited about things-Your normal behavior has changed (for example you sleep all day, you don't feel like laughing at things that used to seem funny, your grades drop at school etc.).....If you think you have depression talk to your GP.....Mild-depression can be treated with a combination of exercise, counseling, good diet, regular sleep patterns and meditation. If you have depression it's a good idea to avoid caffeine and alcohol (as stimulants and depressants can effect your brain chemistry)....Some people need medication to treat depression and get their brain chemistry right, but usually only in very sever cases where the person is having trouble coping with day-to-day activities. Anti-depressants are fine, but it's important to work out if you really do need them before you start taking them, as they can become addictive.......I hope this information helps and gives you a few ideas. Don't worry too much, life has it's ups and downs. Sometimes one year is not very good and then the next year is really good. Getting through the bad years, makes the good years even better ;)
    Anonymous 42789 Replies
    • February 6, 2009
    • 11:07 AM
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  • Go to a new doctor and mention nothing about your previous anxiety symptoms/diagnosis only talk about exactly your stomach issues. I say this because I have been tagged before as a person with anxiety. You have to be your own advocate and when your doctor is no longer listening to you go to a new one.
    lucy123 1 Replies
    • February 7, 2009
    • 06:38 AM
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  • Have you had urself checked for Celiac disease? it goes underdiagnosed most of the time. It is basically like allergy to gluten which is found in wheat. I read that it causes alot of similar symptoms. do u eat alot of bread or wheat in ur diet ? try going gluten free for a while and see what happens. google gluten free diet and see the stuff u can or can't eat. it might help. g'luck!
    rmk_1987 20 Replies
    • February 7, 2009
    • 10:43 AM
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  • Some of your symptoms sound like they could be from being 15 years old!
    richard wayne2b 1232 Replies
    • February 7, 2009
    • 02:32 PM
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  • I hope, by this time, you are starting to feel better. Celiac disease sounds like a possibility and I would definitely have it checked. I would also like to suggest researching a disease called gastroparesis. It closely matches your symptoms, but it is a condition that's difficult to diagnosis. It is often caused by a viral infection; or after a stomach surgery where the vagus nerve is cut or damaged; or as a result of being diabetic, i.e., diabetic gastroparesis. It might also be deemed idiopathic; some people think it's related to hormonal changes.With this condition, your stomach muscles do not move the food properly through your digestive system (too slowly). Some major symptoms are a feeling of fullness, afraid to eat, bloating, nausea, vomiting, constipation, diarrhea, heartburn, weight loss, weight gain, headache, fatigue, difficulty sleeping, stomach cramps/pain, etc., etc. It certainly is not pleasant. A low-fat, low-fiber diet is a place to start; and it's also recommended that a liquid diet be tried for a few weeks first to rest the stomach.I hope you have a strong family support system. You sound like a strong, young woman -- don't let the doctors discount your feelings; take charge and insist on getting answers. Good luck!
    msalex 2 Replies
    • February 8, 2009
    • 07:35 AM
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  • Hi. How about your relatives. have your mother or grandmother or other relatives had any complaint or severe illnesses what so ever?
    Anonymous 42789 Replies
    • February 11, 2009
    • 10:01 AM
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  • is anyone in your family affected or sick in any way, do you have any rashes
    Annica 13 Replies
    • February 11, 2009
    • 08:03 PM
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