I'm a 43 year old woman. In August of 2006 I had a hysterectomy after hemorrhaging (sp). Six weeks later, I noticed I was getting a rash on my lower leg. Then I started having really bad bowel problems- if it wasn't one, it was the other. My hair started falling out. I was so fatiqued that I would fall asleep sitting up in the middle of the day.
I was diagnosed with lupus and then told I didn't have it.
I was diagnosed with RA and then told I didn't have it.
I was diagnosed with PBC (primary biliary cirrohsis), barely perceptable, through a liver biopsy.
The rash went away on it's own after 2 YEARS and 20 medications for it (antibiotics, antifungals, corticosteriods, etc). Went away when I stopped going to doctors.
I am taking Ursodiol for the PBC and Nexium for GERD (which I have developed since the surgery). I also have a serving of Activia.
I still feel like crap. I have no energy, am afraid to be too far from a bathroom (when I gotta go- I gotta go now. It is usually pure liquid and sometimes bloody). My hair is so thin. My docs (gp and gastro) say they don't know what is wrong- but something is. I asked about an IBD, and was told that since I am overweight (also gained about 40 pounds since everything started) that is highly unlikely.
Today I noticed that I have 2 patches of the rash back.
I need help!