Discussions By Condition: I cannot get a diagnosis.

hypothyroid - absent antibodies

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: hjagasia
  • November 15, 2007
  • 11:59 PM

I was diagnosed with hypothyroidism 4 months ago and have been on synthroid for 6 weeks. I have had diarreoha for the last 4 months. I also have pain in my knees and I can not put any weight on my knees (when climbing stairs or when squatting). I have also had severe pain in my chest which appears to come from a muscle or catriledge in my rib cage.

Dr's have not been able to find any antibodies to thyroid or any antibodies that would indicate a rheumetoid illness.

What is wrong with me? Please help.

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  • You just explained exactly how I felt about 2 years ago. You need to have a colonscopy. Most likely you have some condition going on in your gut. There are many kind of diseases and most of them cause joint pain. Celiac (gluten intolerance, Ulcerative colitis, Crohns, microscopic colitis being the most comon) Tho it can be the other way around as well. You can have joint pain for years and then find out you have a problem with your intestines years later. Your thyroid problems are also connected to this inflammatory process. Meaning that it is inflammed and therefor not able to produce the hormones you need. I have a mild type of crohns disease (2-5 bowel movements a day). I started having joint pain 5 years before my stomach started, but I never went to see a doctor because I kept telling myself that it was just the regular minor pains everyone gets. It turns out that I have spodolyitis (an inflammatory arthritis), Crohns disease (bowel disease), high blood pressure and hypothyroidism (without antibodies). You can read more here: http://www.spondylitis.org/about/ibd.aspx (most likely what you have) http://www.spondylitis.org/about/as.aspx (could be this as well) Ask to see a joint specialist as well. Hope this helps. Kiera
    Anonymous 42789 Replies
    • November 16, 2007
    • 03:13 PM
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  • Hi,I never thought anyone would reply to my thread, I felt as though I was the only one having such bizzare conditions, so thanks for replying. I am just having a really bad day with my stomach for the last 2 days and it is very hard to be strong. I have been considering all kinds of diseases that could have been causing this. Whipples disease, Amylodosis, evrything that scared me to death. Cant say ulcerative colitis sounds any better :). But I will read as much as I can. From what little I have read it sure does sound like me. Does this get better at all? What can I do, apart from what a Dr can do after a diagnosis, to control it? How hard is it to manage?
    hjagasia 4 Replies
    • November 16, 2007
    • 05:05 PM
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  • IBD problems come in flares. Like arthritis. It is impossible to tell how long a flare will last some people get them all the time and others can have years between. There are even some people who only ever have the one flare. Most cases are kept under control with meds and there are many people who turn out to have very mild cases that live a perfectly normal life. They have pretty good meds (non steroid) that are used to treat mild cases. If you have a very bad case, steroids are the main drug. They give high doses to get the flare under control and then you taper off to maintain remission. You might not have IBD, but you sure do need to have this looked into. I was sure I didn't have it myself, but I turned out to have it, so things aren't always as they seem. The only way you will know for sure is to have the colonscopy done. Are you using the bathroom many times pr day, and are the joint pains worse when the diarreah is bad? Try not to worry to much until you have been tested. And remember that most people have a normal life... Kiera
    Anonymous 42789 Replies
    • November 16, 2007
    • 10:22 PM
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  • I mostly use the bathroom only once a day. But sometimes its 3 times. Also I dont have any blood. But the stool keeps changing color and goes from really loose to being constipated several times. And its just not normal since its started. Lots of times like today, my tummy above the navel just burns really bad all day long. I cant say if the joint pain gets worse with the diareoha. I do have muscle pain behind the knee. I get pain in the knee itself if I sit for long hrs. Also I hear loud popping noises in the knees and sometimes even in the shoulders when walking. I also cant open my mouth wide, it pains in the right side of the jaw. Thankfully, my wrsits and the tendons in the behind of hands have stopped hurting. I also suddenly developed dry eyes, and I forgot to mention that my right eye was hurting and inflammed for a long time, more than a a yr. I had a corneal abrasion last which just wasnt getting better until I got some treatment for severe dry eyes. Now all I need is ointment in the eye to lubricate it at night. I had pain in my throat when this started. Now I dont have any. But I somewhat loose my voice still sometimes while talking. My dry mouth's gone after synthroid. But I have hardly any hair left on my head and its still falling. Thats the sad list of all my symptoms. Oh btw, I also have PCOS, so I cant have children easily and god only knows if I will have any with this now. So this is a double damm. I am surprised though because both my parents are relatively healthy, neither of them have any gut problems. From what I read of the medications, they seem to be pretty scary, some with bad side effects. Also it seems very hard to know which colitis a person has. My last visit to my gastro was my first. He said he is going to look into IBD, bile issues and any malabsortion disorders. I guess Chron's, colitis comes under malabsorption. I was going crazy though, not having specifics. The first thing he wants is stool tests. My GP has just been ignoring my joint pain. Now finally he thinks I need to go to a rhumetologist. Why did some Dr not just tell me earlier that this could all be related to the gastro health? It makes me mad... My endo seems to be unaware that any gut problems could cause my thyroid problem. How does one handle the malabsorption? If I am diagnosed with it, will I need injections of B12, tests for vitamin deficienies? Sorry for asking too many questions, but I hope you can help.
    hjagasia 4 Replies
    • November 16, 2007
    • 11:24 PM
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  • I also forgot to mention that lots of times my tummy hurts because the gas just wont come out. I feel as though something in my tummy just does not move right. And I had pain after eating several times when this started. I also get headaches in the evening mostly and it pains just above my brows or along my hairline. And a few weeks back, out of no where, I had fever for 2 days. Also my blood pressure is really low, sometimes the lower one is in the 50's. My heart rate is in the 60's. And Sometimes I feel my heart racing really bad when I am in bed. Also I sleep a lot, some/most days for 11 to 12 hrs straight. Have to remain positive....
    hjagasia 4 Replies
    • November 16, 2007
    • 11:34 PM
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  • We seem to have alot in common. I have PCOS too. Well at least that is what my endo said. I don't know if I belive that I do. I was diagnosed based on an elevated level of free testesterone and symptoms. The only problem is that I am 41 years old and have never had mentrual problems before last year, and even then they were just very light and only lasting one day, but it was right on time. I have also given birth twice and had no problems at all getting pregnant. I do not have any cysts on my ovaries either. I kinda feel that they stick that PCOS diagnose on you real quick. Anyhow, I can only tell you that it has taken me 2 years to find out most of the stuff I know now. Nobody ever told me anything. I have educated myself and learnt more then I will ever need to know about diseases that I have ruled out along the way. My doctors hate me... I ask to many questions and they hate patients that actually try to find out what the cause of their symptoms are. I think that is why I spend as much time as I do at these boards. I hope that I am able to spare someone the agony and worry that comes with not knowing. The dry eye thing is related to the joint pains. Everyone I have been in touch with has it, including me. It comes and goes with me, and I use eyedrops all the time. They help alot even tho it is only for a short while. Your gut problems arent the cause of the thyroid problems tho. The inflammation in your body is. The inflammation is in your thyroid gland causing it to fail. The meds for IBD can be bad, but they have milder ones like Asacol, but if you have a mild case like you say you do, you won't be put on any medication. If the joint pain gets real bad you might be put on some anyhow tho, since they mostly use the same meds for both. Like you I get the trapped gas pain. My theory here is that the inflammtion causes the intestine to swell and that is trapping air in the intestine. Unlike you tho.. I have high blood pressure. No idea why tho. The low heart rate is most likely caused by the thyroid problem. I had that too. My heart rate is up now from 55 to 72 after starting meds. Fatiuge goes with IBD, Arthritis and hypothyroidism, so that is something that is hard to get rid of, but I notice that it comes and goes alot with me. I also have another kind of fatigue. If I go for a short walk or do some light housework, my body feels like what you would expect it to feel like after running a marathon! My muscles feel like they are drained for all energy and then I get REAL tired. I get so tired that I am unable to fight it off and I end up stumbling into bed or on to the couch. This is one of my worst symptoms. I hate it!!! I hope you are able to find some positive answers soon. Nobody wants to be sick, but it is a relief to find out what is going on. Not knowing puts alot of strain on you. Keep me posted and if you have any more questions feel free to ask. I can't guarantee I know the answer, but I might.. :) Kiera
    Anonymous 42789 Replies
    • November 17, 2007
    • 00:27 AM
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  • Thanks for all the help. I will push my gastro at the next apptmt to give me details and a POA. Will keep you updated. Its a releif to know I am not alone.
    hjagasia 4 Replies
    • November 18, 2007
    • 10:55 PM
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  • Thanks for all the help. I will push my gastro at the next apptmt to give me details and a POA. Will keep you updated. Its a releif to know I am not alone.Hello. I was reading through your posts on this subject, and was wondering if you were ever diagnosed. I have had many of the same symptoms for nearly ten years, and was finally diagnosed around the time of your original posting here. I know it's a little late, but you are definitely not alone with these symptoms and problems. I would very much like to know what progress has been made with your treatment and share what I have learned and experienced over the duration of my treatment. I hope that you are feeling better and doing well.Regards,Louis
    lwames 1 Replies
    • September 10, 2010
    • 11:47 AM
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  • I also forgot to mention that lots of times my tummy hurts because the gas just wont come out. I feel as though something in my tummy just does not move right. And I had pain after eating several times when this started. I also get headaches in the evening mostly and it pains just above my brows or along my hairline. And a few weeks back, out of no where, I had fever for 2 days. Also my blood pressure is really low, sometimes the lower one is in the 50's. My heart rate is in the 60's. And Sometimes I feel my heart racing really bad when I am in bed. Also I sleep a lot, some/most days for 11 to 12 hrs straight. Have to remain positive.... Seeing you have PCOS, i think with your symptoms (if it isnt to do with the thyroid), I think you have an insulin issue called insulin resistance. Nearly all who have PCOS have this or diabetes by the time they are 40+ years. Insulin resistance can cause tons of symptoms .. getting wind is a very common on of it. You need to get a 2 hr glucose tolerance test (that also shows insulin)
    taniaaust1 2267 Replies
    • September 11, 2010
    • 05:03 PM
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