Discussions By Condition: I cannot get a diagnosis.

hypokalcemia partial paralysis (andersen tawil syndrome)

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: kattsqueen
  • July 26, 2009
  • 04:20 AM

I have previously been diagnosed with
chronic fatique
attention deficit disorder
chronic cervical strain
bilateral shoulder impingement
panic attacks
bulging disk oh yes and carpal tunnel syndrome!! I have been xrayed and ekgd and emg and cat scanned.. after 25 years of pain and not one doctor wanting to spend more than 15 minutes with me to look at the whole picture with some luck and persistence i diagnosed my self with andersen tawel syndrome.. this supposedly very rare and not many doctors are really aware of it... i have found a lot of information to show my doctor but i dont know if shell be comfortable treating me..andersen tawil is a Potassium Ion Channelopathy that affects muscles preventing them from relaxing and also causing cardiac arrythmias..and sometimes sudden death syndrome... good news started taking potassium supplements but dont know where to go from here!! Should i wait a month for my regularly scheduled annual or just call my doctor and see what she wants me to do? She should be back from her vacation this week///
thanks for any suggestions


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