Discussions By Condition: I cannot get a diagnosis.

Hypoglycemia and Fibromyalgia

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: venustar
  • June 29, 2010
  • 08:43 PM

Hello. I was wondering if I could get some straight answers, as my problems have been going on for years and no one seems to be able to tell me why.

I started having hypoglycemia when I was a teenager. My blood sugar would drop suddenly and I would need to eat something right away. Then as the years progressed, I came to find myself with a variety of different symptoms- frequent headaches, frequent urination and thirst, irritability, depression, chronic pain, fogginess and cognitive problems, tiredness, major weight fluctuations (both up and down), menstrual problems, stomach problems, etc, etc.

I was diagnosed a couple of years ago with Fibromyalgia, when I went to the doctor regarding a reoccurring pain in my wrists. After receiving the diagnosis, I did some research and yeah... I see a lot of those symptoms in myself. However, does that really account for the major problem with my blood sugar?

I've had my thyroid checked twice and told I was fine. I was blood tested for arthritis, and those levels came back "borderline". I've been diagnosed with bipolar disorder, PMDD, and major anxiety disorder. Yet nothing really explains the Hypoglycemia, which bothers me more than most of the other things.

I have a huge family history of diabetes. In fact, my daughter was just diagnosed Type 1, back in December. My sister has Type 2, my grandmother and a couple of aunts had Type 1. And of course, I'm thinking that this may be the root cause of everything. BUT, I've tested my blood with my daughter's kit a few times, and while I see plenty of low results, I hardly see any numbers higher than 140. Does hypoglycemia occur in diabetes, unrelated to insulin dosage? Is diabetes only diagnosed when the sufferer has high blood sugar?

I have a checkup scheduled early next month, and I'm going to ask for a complete blood work, but I want to know- out of all of the symptoms that I have, what can I be looking at?

Thanks for your time.

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7 Replies:

  • I was diagnosed a couple of years ago with Fibromyalgia, when I went to the doctor regarding a reoccurring pain in my wrists. Bad, bad, bad doctor!! That isnt how fibromyaliga is diagnosed. http://www.prohealth.com/fibromyalgia/basics.cfm?anchorid=24&#-24 check out the diagnoses of fibro. The wrists arent even a fibro tender point in which help diagnose it........... You could have CFS/CFIDS. http://www.cdc.gov/cfs/cfssymptomsHCP.htmhttp://wwcoco.com/cfids/bernesx.html (note that hypoglycemia is mentioned.. many of us with it do have hypoglycemia. CFIDS also causes thirst and frequent urination). ........... Another issue you could have in regards to your hypoglycemia and menstrual issues, mood swings and weight fluctuations (you havent got PCOS have you?!! You dont say what your menstrual issues are exactly) is insulin resistance. Ones body can be giving out too much insulin and hence then hypoglycemia. Insulin resistance is a precuser to diabetes!!! I get terrible PMDD and my specialist thinks it may be due to insulin resistance (I get hypoglycemia and have PCOS and other issues) .. as he thinks i have too much insulin and that is like a poison. (im just currently waiting on my blood test results) I suggest you get a 2 hr insulin response blood tests done. (in these you have to fast for 12 hrs. then blood is taken, then you are given a glucose drink then blood taken at the one hr point and at the two hr point). http://www.agale.com.au/PANDORA.htmhttp://www.agale.com.au/CFS.htm best luck
    taniaaust1 2267 Replies Flag this Response
  • Thanks for the reply, taniaaust1.My Fibro test was actually done correctly, with a 100% reaction rate to all of the tender points. I'm not sure why exactly the doctor decided to check for it though, as the wrist pain is more indicative of arthritic-type pain. In any case, she gave me Lyrica and I refused to take it when, after a week, I realized I had gained 10 pounds. Adding more weight to my tiny frame would surely make the pain worse. So I'm dealing with the pain flares that I have continued to experience with ibuprofen and heat.My menstrual issues include going months and months with no period, then having two in a month, becoming debilitated by the cramps and the heavy flow (TMI, sorry). I'm not sure if I have PCOS. It isn't anything anyone has ever mentioned to me. But the issues have been ongoing for years, having become worse since I had children.I will definitely bring up these issues with my new doctor when I see her next month. I really, really appreciate it!!
    venustar 3 Replies Flag this Response
  • Thanks for the reply, taniaaust1.My Fibro test was actually done correctly, with a 100% reaction rate to all of the tender points. I'm not sure why exactly the doctor decided to check for it though, as the wrist pain is more indicative of arthritic-type pain. In any case, she gave me Lyrica and I refused to take it when, after a week, I realized I had gained 10 pounds. Adding more weight to my tiny frame would surely make the pain worse. So I'm dealing with the pain flares that I have continued to experience with ibuprofen and heat.My menstrual issues include going months and months with no period, then having two in a month, becoming debilitated by the cramps and the heavy flow (TMI, sorry). I'm not sure if I have PCOS. It isn't anything anyone has ever mentioned to me. But the issues have been ongoing for years, having become worse since I had children.I will definitely bring up these issues with my new doctor when I see her next month. I really, really appreciate it!!Ditch all artificial sweeteners- esp. Sucralose (splenda) but both are terrible so ditching both is best- THe latter is known for causing reactions like Fybromyalgiamany have gotten better by not eating it any more- hope this helps :) ALso stay away from Gardasil it is another POISON!
    founddog 188 Replies Flag this Response
  • Ditch all artificial sweeteners- esp. Sucralose (splenda) but both are terrible so ditching both is best- THe latter is known for causing reactions like Fybromyalgiamany have gotten better by not eating it any more- hope this helps :) ALso stay away from Gardasil it is another POISON!Thank you!
    venustar 3 Replies Flag this Response
  • Thank you!Hi, You sound like me. I missed school every month for years too. Weak, nauseated, memory issues, doubled over in pain. It wasn't till High School that my schedule changed & I had study hall mid morning & would eat a snack & stopped getting as sick. Dr finally figured out it was hypoglycemia. I have diabetes in my family, & the dr said I should get it under control so it doesn't change in later years into diabetes. I drasticaly changed my diet. I mostly quit starches. Ate more protien. Small meals more often. My "bread" became slices of cheese or leaves of lettuce, etc. I fill them with ham, tuna, chicken, fruit, etc. I make spaghetti, but put the sauce over cubed cheese & steamed zucchini, not noodles. Surprising what combos you come up with once you start thinking differently. It's tougher going out, but for example; at a hamburger joint, I order grilled chicken or hamburger and throw away the bun. Add salad, fruit & ice water or milk, & you can still go out. People will get used to your differences :) I felt so much better I didn't care what people thought!! For me, I also had a calcium problem. Liquid calcium from the health food store stopped the cramps faster than anything. Then I started using lots of antacid for reflux, but started getting kidney stones. Now I take a calcium with a higher magnesium to calcium ratio so that it assimilates better. No more stones. There's several out there but I take Country Life Nerve & Osteo Support. Because it helps with fibro too... The best thing I've found for fibro is stretching & moving. I was on vacation & pulled a muscle, so went to a kenesiologist who used A.R.T. Active Release Techneque. on me. Really rub, knead & dig in to the muscle where it connects to the bone, to get it to "release" or relax. I thought I was going to die for a couple of days... but then I started feeling better, & I actually felt human again for the first time in years!! My pain was nearly gone. Mostly it gave me hope that I "could" feel better again! Way better than all the drugs they throw at you for the symptoms. For me, a treatment lasts months. This is just what helps me. Be sure to ask your dr what might be right for you. Hope some of this helps. Good Luck! :)
    Anonymous 42789 Replies Flag this Response
  • Hi, You sound like me. I missed school every month for years too. Weak, nauseated, memory issues, doubled over in pain. It wasn't till High School that my schedule changed & I had study hall mid morning & would eat a snack & stopped getting as sick. Dr finally figured out it was hypoglycemia. I have diabetes in my family, & the dr said I should get it under control so it doesn't change in later years into diabetes. I drasticaly changed my diet. I mostly quit starches. Ate more protien. Small meals more often. My "bread" became slices of cheese or leaves of lettuce, etc. I fill them with ham, tuna, chicken, fruit, etc. I make spaghetti, but put the sauce over cubed cheese & steamed zucchini, not noodles. Surprising what combos you come up with once you start thinking differently. It's tougher going out, but for example; at a hamburger joint, I order grilled chicken or hamburger and throw away the bun. Add salad, fruit & ice water or milk, & you can still go out. People will get used to your differences :) I felt so much better I didn't care what people thought!! For me, I also had a calcium problem. Liquid calcium from the health food store stopped the cramps faster than anything. Then I started using lots of antacid for reflux, but started getting kidney stones. Now I take a calcium with a higher magnesium to calcium ratio so that it assimilates better. No more stones. There's several out there but I take Country Life Nerve & Osteo Support. Because it helps with fibro too... The best thing I've found for fibro is stretching & moving. I was on vacation & pulled a muscle, so went to a kenesiologist who used A.R.T. Active Release Techneque. on me. Really rub, knead & dig in to the muscle where it connects to the bone, to get it to "release" or relax. I thought I was going to die for a couple of days... but then I started feeling better, & I actually felt human again for the first time in years!! My pain was nearly gone. Mostly it gave me hope that I "could" feel better again! Way better than all the drugs they throw at you for the symptoms. For me, a treatment lasts months. This is just what helps me. Be sure to ask your dr what might be right for you. Hope some of this helps. Good Luck! :)I appreciate the insight! Sorry you've had so many problems. I'll definitely be playing around with my diet to see if it helps.
    venustar 3 Replies Flag this Response
  • Thanks for the reply, taniaaust1. My Fibro test was actually done correctly, with a 100% reaction rate to all of the tender points. I'm not sure why exactly the doctor decided to check for it though, as the wrist pain is more indicative of arthritic-type pain. In any case, she gave me Lyrica and I refused to take it when, after a week, I realized I had gained 10 pounds. Adding more weight to my tiny frame would surely make the pain worse. So I'm dealing with the pain flares that I have continued to experience with ibuprofen and heat. My menstrual issues include going months and months with no period, then having two in a month, becoming debilitated by the cramps and the heavy flow (TMI, sorry). I'm not sure if I have PCOS. It isn't anything anyone has ever mentioned to me. But the issues have been ongoing for years, having become worse since I had children. I will definitely bring up these issues with my new doctor when I see her next month. I really, really appreciate it!! Im glad to hear that your doctor diagnosed your fibromyaliga correctly and it wasnt just used as a waste basket diagnoses like many doctors tend to do when someone is in pain. Get your doctor to send you for an ultrasound to see if your ovaries are polycystic. PCOS is the top most cause of infertility in women as it causes missed periods. PCOS if you have it puts you at high risk for some other issues. Nearly all with PCOS will have diabetes or insulin issues. (extremely important that you get tested for insulin resistant now you've also mentioned missed periods). also you should have hormone blood tests done, I strongly recommend to go and see a gynocologist over the missed peroids as doctors arent always good at diagnosing this kind of issues. I also suggest to see if you can try a different fibromyalgia med. There are another two meds on top of Lyrica which have been approved for use for fibro.
    taniaaust1 2267 Replies Flag this Response
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