Discussions By Condition: I cannot get a diagnosis.

Hypoglycemia?

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Anonymous
  • March 9, 2008
  • 05:56 PM

All my life I have had trouble in the mornings with feeling tired, sick, weak, and fatigued when I woke up. I passed out once in 3rd grade - I felt sick while eating lunch in the cafeteria and fainted on the way to see the nurse. I have often almost passed out in the shower and had to get out and lie down. I also get very shaky, dizzy, fatigued, angry, have outbursts of temper, and get headaches if I wait too long between meals. I have passed out a few times during my life (once in third grade, once in High School), but I can usually control it by lying down and maybe eating something. When I was younger (approx 13), I also once had severe abdominal pain and almost went to the hospital. When I was about 21 this abdominal pain returned and got increasingly worse over several months. I drank a lot from 18-23 so I'm not sure if that has anything to do with it.The painkept me up at night. I received an ultra sound, and the doctors saw nothing. I saw a chiropractor based on my OBGYN's recommendation which helped with the abdominal pain. It still comes back every now and then, but not as bad. Over the last 2 years my symptoms have gotten worse. I was having these hypoglycemic symptoms more often, and in public, especially right after meal time or if I drank alcohol. I would feel sick, like something was really wrong, I'd feel dizzy, and want to leave where I am to go lay down. I sometimes also had tingling in the fingers. The doctor said I was having panic attacks and put me on Lexapro and Xanax. Once I was put on Lexapro everything became terrible and unbearable. I woke up one night with extreme trembling and sweating and wanted to call the ER but my doctor convinced me it was a panic attack from panicking about the medicine. I then passed out a few days later on the floor after immediately waking up and getting out of bed. I ended up in the ER and they said I was fine, but took me off the Lexapro and Xanax and put me on Klonopin. A week later I passed out again, and went back to the ER. I also had shortness of breath, chest pain, chest discomfort, and increased heart rate and blood pressure. They said my EKG was slightly "tachy" and that I had a heart murmur, but that I was fine. They did put me on a beta blocker for 2 days for the heart rate/blood pressure. My question is, are these panic attacks? Should I be on the Klonopin? Can Lexapro increase panic attacks or make hypoglycemia worse? I am really at a loss for what is going on, and none of the doctors seem to be able to figure it out. However, I am prepared with research and am going back to the doctor tomorrow! I am also going to seek a second opinion. Thanks for any help you might be able to provide!
I also took the Glucose test about 2 years ago and my doctor said I was "borderline" - whatever that means - but that she couldn't diagnosis me with hypoglycemia. The hospital also tested my glucose level and said it was fine. I am worried about myself and my health, and do not want to continue to pass out or end up in the hospital again. I am becomming anxious on a daily basis because I don't know what is going on with my body!

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  • I strongly believe that you could have porphyria. In your case more than likely it is genetic. It sounds scary, but you can manage the painful symptoms by avoiding the things that trigger the "attacks" for you. BTW porphyria is linked to other auto immune diseases such as RH arthritis, Thyroid diseases, IBDs etc. The story of your life sounds like what many other porphyria patients have been through.... read about what other porphyria patients have been through and see if you think your story is similar to theirs http://www.porphyriafoundation.com/pat_stories/railling.html OK take a deep breath. Porphyria is a horrible disease to have, lots of pain involved and no cure. BUT.... you are a tough person as you have been through much already. Knowing you could likely have this here is some things that may help you.... Info: On porphyria Avoiding triggers as much as possible: Drugs often can trigger attacks. So can alcohol. (AVOID ALCOHOL). So you need to find the safest and least porphyrgenic medications and choose them over the worst ones (avoid for example barbituates and choose morphine perhaps, works for many anyhow). There are databases to help you find which drugs are safer than others (usually, but everybody is different) . Hormones can trigger attacks... entering adult hood and child birth is a hard time for female porphyria folks. Also menopause. Avoid severe wt loss, fasting, crash dieting, illnesses that cause wt loss (infections), for most kinds of porphyria avoid high protein low carb diets (you need high carb diet, anti atkins diet). Try to limit/avoid hypoglycemia attacks (night time snacks can help, sleep up in a chair if GERD or heartburn is a problem) . Eat 5-6 small meals (or more if you aren't sleeping) say every 2-3 hrs may help avoid the hypoglycemia attacks. http://www.porphyriafoundation.com/about_por/diet/index.html Staying hydrated is real important but be careful about the electrolytes balance by sipping on sports drinks, and pedialyte (try to avoid water intoxication). You need the right amounts of salts, potassium and such in the fluids you take in. (When my electrolytes get out of whack... I can have seizures, spasms, cramps, and more pain. Sugar helps the pain, but I don't overshoot it. I use simple sugars to get out of the hypoglycemia attacks... then eat complex carbs and a bit of protein afterwords to keep the sugar levels up. Salt intake helps me, some porphy folks need a higher salt intake, some must limit it) Other triggers: sunlight can be, stress, infections, certain foods. You can still live a long and full life. Knowing what is triggering your pain can help you learn to limit your attacks and treat them when they happen better. Learn about the 8 kinds of porphyria here:http://www.porphyriafoundation.com/about_por/index.html Drugs & Porphyria/ Safe/unsafe medshttp://www.porphyriafoundation.com/about_por/drugs/index.html Symptoms of porphyria:http://www.wrongdiagnosis.com/p/porphyria/symptoms.htm Yahoo support groups: You could use this to help you learn how to manage your symptoms and find kindred spiritshttp://health.dir.groups.yahoo.com/dir/Health___Wellness/Support/Diseases_and_Conditions/Porphyria I'll send you more links on another post. tdwi;) Hang in there. All my life I have had trouble in the mornings with feeling tired, sick, weak, and fatigued when I woke up. I passed out once in 3rd grade - I felt sick while eating lunch in the cafeteria and fainted on the way to see the nurse. I have often almost passed out in the shower and had to get out and lie down. I also get very shaky, dizzy, fatigued, angry, have outbursts of temper, and get headaches if I wait too long between meals. I have passed out a few times during my life (once in third grade, once in High School), but I can usually control it by lying down and maybe eating something. When I was younger (approx 13), I also once had severe abdominal pain and almost went to the hospital. When I was about 21 this abdominal pain returned and got increasingly worse over several months. I drank a lot from 18-23 so I'm not sure if that has anything to do with it.The painkept me up at night. I received an ultra sound, and the doctors saw nothing. I saw a chiropractor based on my OBGYN's recommendation which helped with the abdominal pain. It still comes back every now and then, but not as bad. Over the last 2 years my symptoms have gotten worse. I was having these hypoglycemic symptoms more often, and in public, especially right after meal time or if I drank alcohol. I would feel sick, like something was really wrong, I'd feel dizzy, and want to leave where I am to go lay down. I sometimes also had tingling in the fingers. The doctor said I was having panic attacks and put me on Lexapro and Xanax. Once I was put on Lexapro everything became terrible and unbearable. I woke up one night with extreme trembling and sweating and wanted to call the ER but my doctor convinced me it was a panic attack from panicking about the medicine. I then passed out a few days later on the floor after immediately waking up and getting out of bed. I ended up in the ER and they said I was fine, but took me off the Lexapro and Xanax and put me on Klonopin. A week later I passed out again, and went back to the ER. I also had shortness of breath, chest pain, chest discomfort, and increased heart rate and blood pressure. They said my EKG was slightly "tachy" and that I had a heart murmur, but that I was fine. They did put me on a beta blocker for 2 days for the heart rate/blood pressure. My question is, are these panic attacks? Should I be on the Klonopin? Can Lexapro increase panic attacks or make hypoglycemia worse? I am really at a loss for what is going on, and none of the doctors seem to be able to figure it out. However, I am prepared with research and am going back to the doctor tomorrow! I am also going to seek a second opinion. Thanks for any help you might be able to provide!I also took the Glucose test about 2 years ago and my doctor said I was "borderline" - whatever that means - but that she couldn't diagnosis me with hypoglycemia. The hospital also tested my glucose level and said it was fine. I am worried about myself and my health, and do not want to continue to pass out or end up in the hospital again. I am becomming anxious on a daily basis because I don't know what is going on with my body!
    TaylorDeelwithit 382 Replies Flag this Response
  • A few more links to get your started:http://www.wrongdiagnosis.com/p/porphyria/symptoms.htm http://www.cureresearch.com/p/porphyria/symptoms.htm http://ghr.nlm.nih.gov/condition=porphyria http://www.porphyria.org.uk/acute_facts.htm http://porphyria.blogspot.com/2007/07/porphyria-symptoms.html http://www.mayoclinic.com/health/porphyria/DS00955/DSECTION=2
    TaylorDeelwithit 382 Replies Flag this Response
  • answers in red below All my life I have had trouble in the mornings with feeling tired, sick, weak, and fatigued when I woke up. I passed out once in 3rd grade - I felt sick while eating lunch in the cafeteria and fainted on the way to see the nurse. I have often almost passed out in the shower and had to get out and lie down. I also get very shaky, dizzy, fatigued, angry, have outbursts of temper, and get headaches if I wait too long between meals. (suggestion: best to not wait too long before meals l; every 2-3 hrs. And even late night snacks if you get hypoglycemia attacks. I think you should try adding a night snack & sleep up in a recliner if you get heartburn) I have passed out a few times during my life (once in third grade, once in High School), but I can usually control it by lying down and maybe eating something (eating carbs can even stop it). When I was younger (approx 13), I also once had severe abdominal pain and almost went to the hospital. When I was about 21 this abdominal pain returned This is an age where porphyria folks (especially woman) get more attacks; has to do with the hormonal chages probably and got increasingly worse over several months. I drank a lot from 18-23 (drinking alcohal triggers attacks many times) so I'm not sure if that has anything to do with it.The painkept me up at night. I received an ultra sound, and the doctors saw nothing. (typical, porphyria folks get a lot of testing and little is found so often)I saw a chiropractor based on my OBGYN's recommendation which helped with the abdominal pain. It still comes back every now and then, but not as bad. Over the last 2 years my symptoms have gotten worse. (What meds are you on that you added during this time? Birth control? Hormones? More drinking? How is your diet? More infections?) I was having these hypoglycemic symptoms more often, and in public, especially right after meal time or if I drank alcohol. AVOID ALCOHOL I would feel sick, like something was really wrong, I'd feel dizzy, and want to leave where I am to go lay down. I sometimes also had tingling in the fingers. The doctor said I was having panic attacks and put me on Lexapro and Xanax. Once I was put on Lexapro everything became terrible and unbearable. (LEXAPRO could be a trigger for you, or it could be you ate less or digested foods less well on the drug and then got sick from not eating enough or not digesting food as well) I woke up one night with extreme trembling and sweating and wanted to call the ER but my doctor convinced me it was a panic attack from panicking about the medicine. I then passed out a few days later on the floor after immediately waking up and getting out of bed. I ended up in the ER and they said I was fine, but took me off the Lexapro and Xanax and put me on Klonopin (need to look it up, some seizure meds are bad for porphyria). A week later I passed out again, and went back to the ER. I also had shortness of breath, chest pain, chest discomfort, and increased heart rate and blood pressure. They said my EKG was slightly "tachy" and that I had a heart murmur, but that I was fine. They did put me on a beta blocker for 2 days for the heart rate/blood pressure. My question is, are these panic attacks? Should I be on the Klonopin? Can Lexapro increase panic attacks or make hypoglycemia worse? I am really at a loss for what is going on, and none of the doctors seem to be able to figure it out. Check them on the databases for porphyria drugs However, I am prepared with research and am going back to the doctor tomorrow! I am also going to seek a second opinion. Thanks for any help you might be able to provide! unfortunately many drs know little about this rare disease called porphyria I also took the Glucose test about 2 years ago and my doctor said I was "borderline" - whatever that means - but that she couldn't diagnosis me with hypoglycemia. The hospital also tested my glucose level and said it was fine. BS changes from moment to moment ; it s just a snap shot I am worried about myself and my health, and do not want to continue to pass out or end up in the hospital again. I am becomming anxious on a daily basis because I don't know what is going on with my body!I felt the same way before I knew what the heck was giving me so much pain.
    TaylorDeelwithit 382 Replies Flag this Response
  • Here is info from the porphyria drug database on Klonipin dated 3/11/08 CENTRAL NERVOUS SYSTEM AGENTSANTICONVULSANTS ClonazepamKlonopinBAD!www.drugs-porphyria.org: Probably Not Porphyrinogenic www.porphyria-europe.com: safe web.uct.ac.za/depts/porphyria/: Use with Caution www.uq.edu.au/porphyria/: Probably unsafe www.porphyriafoundation.com: unsafe Epilepsia 1992;33:108. porphyrogenic but safe in lose dosages Neurology 1982;32:1409. safe in low dosages Drug Metab Dispos 1997;25:750. greatly induces CYP2B, not CYP3A or 2C9 Williams DA. Drug metabolism. In: Foye’s Principles of Medicinal Chemistry, ed. Lemke T and Williams DA. Baltimore, Williams & Wilkins, 6th ed., 2007. substrate of CYP3A4 Lexapro: PSYCHIATRIC MEDICATIONSSELECTIVE SEROTONIN REUPTAKE INHIBITORS (SSRIs) EscitalopramLexaproNO INFO XanaxCENTRAL NERVOUS SYSTEM AGENTSBENZODIAZEPINES AlprazolamXanaxOK?www.drugs-porphyria.org: Probably Not Porphyrinogenic web.uct.ac.za/depts/porphyria/: Use with Caution www.uq.edu.au/porphyria/: Unsafe in cell culture USP DI® Drug Info. for the Health Care Pro. - 26th Ed: Primarily metabolized by CYP3A4 Williams DA. Drug metabolism. In: Foye’s Principles of Medicinal Chemistry, ed. Lemke T and Williams DA. Baltimore, Williams & Wilkins, 6th ed., 2007. Substrate of CYP3A4 Patient report: Safe All my life I have had trouble in the mornings with feeling tired, sick, weak, and fatigued when I woke up. I passed out once in 3rd grade - I felt sick while eating lunch in the cafeteria and fainted on the way to see the nurse. I have often almost passed out in the shower and had to get out and lie down. I also get very shaky, dizzy, fatigued, angry, have outbursts of temper, and get headaches if I wait too long between meals. I have passed out a few times during my life (once in third grade, once in High School), but I can usually control it by lying down and maybe eating something. When I was younger (approx 13), I also once had severe abdominal pain and almost went to the hospital. When I was about 21 this abdominal pain returned and got increasingly worse over several months. I drank a lot from 18-23 so I'm not sure if that has anything to do with it.The painkept me up at night. I received an ultra sound, and the doctors saw nothing. I saw a chiropractor based on my OBGYN's recommendation which helped with the abdominal pain. It still comes back every now and then, but not as bad. Over the last 2 years my symptoms have gotten worse. I was having these hypoglycemic symptoms more often, and in public, especially right after meal time or if I drank alcohol. I would feel sick, like something was really wrong, I'd feel dizzy, and want to leave where I am to go lay down. I sometimes also had tingling in the fingers. The doctor said I was having panic attacks and put me on Lexapro and Xanax. Once I was put on Lexapro everything became terrible and unbearable. I woke up one night with extreme trembling and sweating and wanted to call the ER but my doctor convinced me it was a panic attack from panicking about the medicine. I then passed out a few days later on the floor after immediately waking up and getting out of bed. I ended up in the ER and they said I was fine, but took me off the Lexapro and Xanax and put me on Klonopin. A week later I passed out again, and went back to the ER. I also had shortness of breath, chest pain, chest discomfort, and increased heart rate and blood pressure. They said my EKG was slightly "tachy" and that I had a heart murmur, but that I was fine. They did put me on a beta blocker for 2 days for the heart rate/blood pressure. My question is, are these panic attacks? Should I be on the Klonopin? Can Lexapro increase panic attacks or make hypoglycemia worse? I am really at a loss for what is going on, and none of the doctors seem to be able to figure it out. However, I am prepared with research and am going back to the doctor tomorrow! I am also going to seek a second opinion. Thanks for any help you might be able to provide!I also took the Glucose test about 2 years ago and my doctor said I was "borderline" - whatever that means - but that she couldn't diagnosis me with hypoglycemia. The hospital also tested my glucose level and said it was fine. I am worried about myself and my health, and do not want to continue to pass out or end up in the hospital again. I am becomming anxious on a daily basis because I don't know what is going on with my body!
    TaylorDeelwithit 382 Replies Flag this Response
  • Heres some ... A few more links to get your started: http://www.wrongdiagnosis.com/p/porphyria/symptoms.htmhttp://www.cureresearch.com/p/porphyria/symptoms.htmhttp://ghr.nlm.nih.gov/condition=porphyriahttp://www.porphyria.org.uk/acute_facts.htmhttp://porphyria.blogspot.com/2007/07/porphyria-symptoms.html http://www.mayoclinic.com/health/porphyria/DS00955/DSECTION=2http://www.bbc.co.uk/health/conditions/porphyria1.shtm
    TaylorDeelwithit 382 Replies Flag this Response
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