Discussions By Condition: I cannot get a diagnosis.

Hypertension, vertigo, imbalanced, heart palpitations.

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: RiskBeingHappy
  • September 1, 2010
  • 08:05 PM

My girlfriend has been sick for at least a month now. It came on almost immediately after she started using some birth control, but we're not sure if that is a coincidence or not.

When she stands, sits up or exerts herself in any way, the symptoms hit her like a sack of bricks. Dizziness, her heart pounds, she's short of breath, extremely dizzy. Some days she can barely walk on her own.

History:
She's had anxiety problems since she was a child, and shes taken medication for a long time, including nyquil and similar products to help her sleep almost every night. I couldn't tell you what medication she takes for anxiety, but I can ask her later if it's crucial to the investigation.

She typically has high blood pressure, but it skyrockets when she stands up. Despite this, the last doctor she visited thinks it's Neurally Mediated Hypotension. This doesn't add up, considering the opposite is happening.

I need to hear from someone that's suffered from this, or a doctor that know's what they're talking about! I care about this girl, I don't want her bedridden for the rest of her life.

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5 Replies:

  • My girlfriend has been sick for at least a month now. It came on almost immediately after she started using some birth control, but we're not sure if that is a coincidence or not. When she stands, sits up or exerts herself in any way, the symptoms hit her like a sack of bricks. Dizziness, her heart pounds, she's short of breath, extremely dizzy. Some days she can barely walk on her own. History:She's had anxiety problems since she was a child, and shes taken medication for a long time, including nyquil and similar products to help her sleep almost every night. I couldn't tell you what medication she takes for anxiety, but I can ask her later if it's crucial to the investigation. She typically has high blood pressure, but it skyrockets when she stands up. Despite this, the last doctor she visited thinks it's Neurally Mediated Hypotension. This doesn't add up, considering the opposite is happening. I need to hear from someone that's suffered from this, or a doctor that know's what they're talking about! I care about this girl, I don't want her bedridden for the rest of her life.Tell her to go off the birth control. In my observation with myself estrogen fends off high blood pressure and she apparently needs it. IMHO this is a preview of what will hit her when she goes into menopause. She may have genes that destine her for hypertension (I do) or she may be eating too high salt (salt is in everything, you'd need a book to check the salt content of everything she eats for 2 weeks to learn how to limit salt to 1700 mg / day (500/meal plus a snack)). Interestingly, I found this post in another conference: ---------Re: BH4 informationi should also say that i have found i can control my blood pressure simply with folic acid supplementation. with no folic acid i have high bp, with 200ug i experience some lowering, but at 300ug i hit an optimum level and have good bp and improved brain circulation, and with 400ug my bp goes too low. i experience these bp changes over 24-48hrs.i used to think folic acid affected my bp only by boosting 5-methyl-THF, then BH4, and finally NO. but now i think it may be that as well as by stimulating DHFR.Genomics: MTHFR C667T -/-, MTRR A66G +/+, ACE 16 +/-, ecNOS 4/5 +/- CYP1A2 +/+ (upreg), NAT-2 +/+, GSTT1 0/0 +/+, GSTP1 +/-, GPX1 (possible snp)---------- I use hormone replacement and it is the only thing I've found (and I've tried all the remedies that work for others) that will stabilize my blood pressure. Calcium willlower my blood pressure 30 points, but it will creep right back up as the day goes on w/o hormone supplements. Plus, before I went high blood pressure all the time, I had it only during PMS (low estrogen). There IS a tie. Good luck
    madanthony 1087 Replies
    • September 1, 2010
    • 10:24 PM
    • 0
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  • I'm sorry - I should not have posted that as is w/o doctoring it up. Many people cannot metabolize folic acid, such as myself, and we supplement with methylfolate, the active form used by the body. Some recent studies have shown negative effects of taking too much folic acid, but no bad studies are out on methylfolate. I would not supplement with anything but methylfolate.
    madanthony 1087 Replies
    • September 1, 2010
    • 10:27 PM
    • 0
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  • Tell her to go off the birth control. In my observation with myself estrogen fends off high blood pressure and she apparently needs it. IMHO this is a preview of what will hit her when she goes into menopause. She may have genes that destine her for hypertension (I do) or she may be eating too high salt (salt is in everything, you'd need a book to check the salt content of everything she eats for 2 weeks to learn how to limit salt to 1700 mg / day (500/meal plus a snack)). Interestingly, I found this post in another conference: ---------Re: BH4 informationi should also say that i have found i can control my blood pressure simply with folic acid supplementation. with no folic acid i have high bp, with 200ug i experience some lowering, but at 300ug i hit an optimum level and have good bp and improved brain circulation, and with 400ug my bp goes too low. i experience these bp changes over 24-48hrs.i used to think folic acid affected my bp only by boosting 5-methyl-THF, then BH4, and finally NO. but now i think it may be that as well as by stimulating DHFR.Genomics: MTHFR C667T -/-, MTRR A66G +/+, ACE 16 +/-, ecNOS 4/5 +/- CYP1A2 +/+ (upreg), NAT-2 +/+, GSTT1 0/0 +/+, GSTP1 +/-, GPX1 (possible snp)---------- I use hormone replacement and it is the only thing I've found (and I've tried all the remedies that work for others) that will stabilize my blood pressure. Calcium willlower my blood pressure 30 points, but it will creep right back up as the day goes on w/o hormone supplements. Plus, before I went high blood pressure all the time, I had it only during PMS (low estrogen). There IS a tie. Good luckOh, she stopped taking it about 2 weeks after, but she still feels terrible. And it is genetic. her sister has the same problem, but it improved over time and she neglected to look into it.
    RiskBeingHappy 1 Replies
    • September 1, 2010
    • 10:53 PM
    • 0
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  • She typically has high blood pressure, but it skyrockets when she stands up When she stands, sits up or exerts herself in any way, the symptoms hit her like a sack of bricks. Her issue is "Orthostatic Hypertension". http://www.nature.com/nrneph/journal/v2/n8/full/ncpneph0228.html This is thought to be rare but I myself have a form of it (dystolic orthostatic hypertension) .. and Ive come across quite a few others with it. It isnt uncommon to be searching for years before we come across what is going wrong with our BP. Best luck finding a doctor for this kind of thing.. my own BP is quite severe with what its doing (my BP goes well over 160/130 when im upright and standing (and can be very low when laying).. but I havent been able to find a doctor to treat it. I dont even know if there is a kind of specialist out there who deals with these kinds of BP dysfunctions!!! The medical profession hasnt studied this kind of thing much at all so know very little but these kinds of issues. All ive been able to find out that with my severe BP flutuation raises with standing.. im what is called a "big dipper" which puts me at a higher risk of heart attack). I think this issue is a form of dysautonomia. Dysautonomia i think Ive read can be triggered off by certain medications
    taniaaust1 2267 Replies
    • September 2, 2010
    • 02:58 AM
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  • I missed seeing the palpitations in the heading. If these are related to standing (or made far worst by standing)... it could be postural orthostatic tachycardia syndrome (POTS). Which is another issue dysautonomia can cause. Those with POTS usually have a BP issue with it of some kind.. most commonly NMH but some (like myself), have issues with orthostatic hypertension with it instead! http://www.dinet.org/
    taniaaust1 2267 Replies
    • September 2, 2010
    • 03:19 AM
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