My sister was recently diagnosed with hyperPARAthyroidism, had a sestimibi scan which showed an adenoma (benign tumor) on one of four glands. She is planning to have MIRP surgery to have the tumor removed. I have also been undergoing tests for similar symptoms - PTH was high (80), and blood calcium was high-normal (9.1); bone density test showed osteopenia in spine (T=-1.3). My question is, can one tumor on the scan rule out MEN1? Or could this one tumor just be a symptom of MEN1? If the one tumor is removed, would the MEN1 continue to cause problems if MEN1 is present? I am concerned that if my sister has this procedure done prematurely, it may do more harm than good. If anyone is knowledgeable about parathyroid disorders or MEN1, please share. I also am undergoing tests for autoimmune disorders, have hypoglycemia, have some arrythimias, Raynaud's Phenomenon (fingers turn white in cold weather), have microscopic colitis (lymphocytic), and frequent headachs and possible migraines with aura. Finding a doctor who can diagnose my problems with all these issues has been impossible - not sure which specialists to consult anymore. Please help... if this is a genetic disorder, I would like to help my family and prevent my child from going through same problems. He is often tired and complains of frequent "aching legs/knees" even though X-Rays did not show any problems.Reply Follow This Thread Stop Following This Thread Flag this Discussion
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