Discussions By Condition: I cannot get a diagnosis.

Hyperacusis with muscle spasms, grimacing, etc for 18 years?

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Anonymous
  • July 22, 2007
  • 09:23 PM

I'm unable to attend concerts, church, etc. because I have severe hyperacusis. This is NOT the same thing as being bothered by people chewing loudly, and earplugs do not help. It's like the sound vibrations at lower and higher pitches go straight to my spine and cause the hideous involuntary spasms. I also get stressed around loud noises and have a hard time breathing because I feel suffocated and sometimes like I'm going down a big hill on a roller coaster-- out of control. This is not psychological-- I've had it since birth or a young age and it's getting worse with time. I can also be enjoying music that I like a lot and it will hit a 'wrong' note that makes me spasm.

I had a lot of ear infections as a baby, have a very high IQ, and autism/asperger's/sensory issues all run in my family. I share a few mild tendencies with asperger's, but I have been diagnosed as NOT having any form of it. Any insight? I know I'm not the only one out there.

Reply Flag this Discussion

1 Replies:

  • I can't blame anyone for not replying... apparently I have a relatively uncommon form of hyperacusis called vestibular hyperacusis. It makes me feel like my stomach is dropping when I hear a loud sound. I hope my finding out this information helps someone else.
    Anonymous 42789 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.