Discussions By Condition: I cannot get a diagnosis.

Hurting, Scared and Alone w/It All - Help?

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: long2bnormalagain
  • August 24, 2008
  • 01:31 PM

Hi all. Any thoughts or suggestions are appreciated...

Prior medical conditions: 44 y.o. female with TAH/BSO (hysterectomy); Hashimoto's Thyroiditis

The progression of symptoms followed a few stressful events in my life and went like this:

Anxiety, Pain in right shoulder blade, insomnia...
(Doc started Cymbalta)
More insomnia, Nausea, tingling in hands and feet
(bloodwork ordered, discontinued Cymbalta after 3 wks.)
Tingling continues, numbness & weakness in legs, severe fatigue, pain in middle back, and digestive issues (nausea & constipation).

Thyroid okay, low white cell count w/neutrophils doubling a month later, positive Rheumatoid Factor, Sed rate normal, ANA negative, negative to Lyme's and Porphyrins, b-6 and b-12 okay, anti-CCP positive;

Brain MRI, Chest x-ray and Cervical and Thoracic MRI's ordered - notable: Small right paracentral disc herniation at T8-T9 (T-8 - T -9 are where the pain is), Chiari I malformation and some disc degeneration. Brain okay.

My legs and back bother me all night but when I first wake up in the morning, it's as if a switch has been turned off, until I get up and start moving around. Pain/numbness/weakness progress as the day does.

I feel "funny" when I eat and sometimes my heart races which triggers an anxiety attack.

I have a visit to the Rheumatologist scheduled, a NCS and a colonoscopy scheduled this week.

Question 1: is it possible the herniated disc seen on the Thoracic MRI is really a tumor?
Question 2: What should we investigate next?

Thanks all!

Reply Flag this Discussion

3 Replies:

  • Hi all. Any thoughts or suggestions are appreciated... Prior medical conditions: 44 y.o. female with TAH/BSO (hysterectomy); Hashimoto's Thyroiditis The progression of symptoms followed a few stressful events in my life and went like this: Anxiety, Pain in right shoulder blade, insomnia...(Doc started Cymbalta)More insomnia, Nausea, tingling in hands and feet(bloodwork ordered, discontinued Cymbalta after 3 wks.)Tingling continues, numbness & weakness in legs, severe fatigue, pain in middle back, and digestive issues (nausea & constipation). Thyroid okay, low white cell count w/neutrophils doubling a month later, positive Rheumatoid Factor, Sed rate normal, ANA negative, negative to Lyme's and Porphyrins, b-6 and b-12 okay, anti-CCP positive; Brain MRI, Chest x-ray and Cervical and Thoracic MRI's ordered - notable: Small right paracentral disc herniation at T8-T9 (T-8 - T -9 are where the pain is), Chiari I malformation and some disc degeneration. Brain okay. My legs and back bother me all night but when I first wake up in the morning, it's as if a switch has been turned off, until I get up and start moving around. Pain/numbness/weakness progress as the day does. I feel "funny" when I eat and sometimes my heart races which triggers an anxiety attack. I have a visit to the Rheumatologist scheduled, a NCS and a colonoscopy scheduled this week. Question 1: is it possible the herniated disc seen on the Thoracic MRI is really a tumor?Question 2: What should we investigate next? Thanks all!I have had 3 surgeries for arnold chiari malformatin and now am suffering from food sensitivities from the immune system shutting down. I feel flushed when i eat certain foods and then get a migrane. The brain looks fine but i have discovered these attacks are triggered by certain chemicals in food that the gut doesn't understand. My Doctor just gave me zanex for the panick attacks that come right after these attacks and steroids to fight the food triggers attacks. You may want to see a see a allergist (food) and get tested and write everything down that you have eaten when these attacks occur. My triggers are maltodextrin, msg, barley malt, cheese's, and a slew of other chemicals, when i eleminate these foods and chemicals things are much better. I also have had hysterectomy (full) and have been taking black cohosh at bedtime as hormones are bad for you. You can email me at Jknee59@msn.com if you want to chat.Jane in Texas
    Anonymous 42789 Replies
    • August 24, 2008
    • 08:12 PM
    • 0
    Flag this Response
  • Maybe celiac disease. Try here: http://digestive.niddk.nih.gov/ddiseases/pubs/celiac/
    aquila 1263 Replies
    • August 26, 2008
    • 07:24 PM
    • 0
    Flag this Response
  • When you say positive Rheumatoid Factor, how high was it?Also have you had an EKG and ECG? Perhaps a holter monitor with a journal will help them figure out what's going on with your heart racing.
    dizzy lizzie 192 Replies
    • August 26, 2008
    • 09:15 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.