Discussions By Condition: I cannot get a diagnosis.

Huge List Of Symptoms...What Could It Be?

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: Thursdaysmagic
  • November 4, 2009
  • 03:08 AM

Hello everyone,
I will first start with the fact that I am only 22 years old and up until my late teenage years I considered myself very healthy despite the fact that I had previous health problems they all seemed minor and I was basically invincible.

I'll list my current symptoms and below that I'll note my medical history for those who enjoy reading.
My current set of symptoms began in late August of 2009, so just a couple months ago. I am experiencing a burning pain in my stomach, sometimes just below my left rib, sometimes between my ribs but always located very closely to my stomach. Digestive problems, since I typically feel worse after eating, gas, bloating, hiccups, burping, abnormal bathroom habits as opposed to before August. Low grade fever almost constantly, nausea, motion sickness, blurred vision... This has actually led me to be curious about my eyesight however I have always had better than perfect vision.
Ringing in the ears which I have had for years but I'll include it in my current symptoms since I still have it. Headaches, hot flashes, chills, sweating, weakness, fatigue, occasional shaking.
Also noteworthy is the fact that I used to love dairy products, I was a milk and ice cream addict but I haven't been able to eat dairy since early August. I also haven't been able to tolerate regular sugar, it gives me headaches, dizzy spells, I get nervous and anxious after eating it and always feel really ill when I have some, in all honesty it seems like it affects my brain more than my body. Though I also would tremble, shake and appear to have massive sugar crashes after consuming sugar, I'd get very cold and weak and feel like passing out.
I also have tachycardia, weight loss, abdominal pain, shallow, difficult breathing. Also Joint pain particularly in my right arm but also in my hips, shoulders, right elbow, hand and wrist (wrist most likely because I broke it when I was four) knees ankles but particularly my left ankle.
Wow, more than likely I am forgetting something but I'll add anything else if I remember it.

Medical History:
At 4 yrs old I fell out a two story window, landed on straight asphalt, broke my wrist, bruised my hip and face as well as did some spinal damage, I have back pain pretty severe and regularly.

At 4 yrs old I also suffered an appendicitis and needed to have my appendix removed, I was sick for a while before I was taken to the hospital since my parents thought it was the flu. They preformed the operation and realized they made a mistake so I had to be re-opened so they could fix it and then I developed a severe infection and had to be opened for a third time in the exact same location, so I probably have pretty severe scarring in my abdomen. I also developed a pretty bad intenstinal blockage during all that.

Also very young, younger than 7 yrs I'd say...I had a pretty bad infection and was urinating blood, my mother cannot remember if it was a urinary tract infection or a bladder infection, I was treated with antibiotics though I have no idea which kind.

At 12 I had my first and only ear infection and was again put on antibiotics though I also have no clue which kind.

At 13 I developed some sort of fungal infection on my toes and was given anitbiotics on two or three occasions for that. ultimately it took three surgeries to completely rid myself of it, those took place at various times and the latest one was when I was 17.

At 17 I hit my head and had severe headaches for several weeks after but never seen a doctor for it.

I had just turned 18 and was less than a week into my first year as an adult when I was in the bathroom brushing my teeth before bed, I was just standing at the sink and all of a sudden my vision went grey on the outer edges and I felt weak, my ears rang so loud that I quite literally couldn't hear anything but a rushing sound in my ears. I braced myself on the sink but ended up passing out anyways, I fell backwards into a wall, hit my head and then fell over into the shelf beside, hitting my head again. I came to within a few seconds and stood up, brushed myself off, felt fine and went right to bed.

At 18 I started developing horrible dizzy spells that kept me in bed for sometimes a week at a time, I was only able to get up to go to the bathroom because I couldn't walk straight or stand still. The room would literally swirl around me and it was like a vicious hangover 24/7 without having drank anything to bring it on.
This in itself was a huge mystery, I seen the doctor several times about it and had a ton of tests ran but in the end they couldn't figure out anything. They suggested I have a cat scan because they thought maybe I had a tumor but the cat scan was too expensive and I refused. I never had it done.
My symptoms for that were horrible dizzy spells, blurred vision, headaches, etc. and the doctors had no clue so I went online to self diagnose and discovered that many of my symptoms were related to Aspartame Toxicity which was possible because it all started a few months after becoming a diet coke addict.
I removed all Aspartame from my diet and within six months I was feeling better, after a year I was almost totally recovered and by 21 I was able to lay down flat again! Which is something I forgot to mention, I was unable to lay down flat without my head elevated as this brought on horrible dizzy spells even when I was feeling fine.

However I made the mistake of unknowingly consuming some products with aspartame earlier this summer around June-July and started getting my symptoms back. Within five minutes of consuming aspartame I had a horrible headache, slurred speech, couldn't walk a straight line and lost almost all my depth perception. Give me a stick of Elixer Flavored 5 Gum and you'd swear I was drunk.

Summary:
My list of foods that I cannot eat has grown as now I cannot eat Aspartame, Sugar Substitutes, Sugar and Dairy.
I have been told maybe Diabetes, maybe Pancreatits, maybe Gallstones or something wrong with my Gallbladder as well as many other possibilities. My latest doctors appointment is tomorrow at 1pm and I will post my results from that.

Also two weeks ago I had an abnormal pap test and I was told that I had abnormal cell growth in my cervix, they want me to have a Colposcopy which I haven't done yet, but will soon.

Family Medical History:
My mother and sister both had Gallstones at an early age, Mom was 19 and my sister was 18. My grandfather and great grandmother had Diabetes and my grandmother had Cervical Cancer. I am sure there is more and I will add anything else if I get questions or I believe it to be relevant.

Any help or suggestions, questions or comments are more than welcome!
Thank you so much.
Samantha

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9 Replies:

  • So I had a Doctors appointment yesterday and they ran a bunch of blood tests and a urinalysis, they say it all came back pretty normal. My Doctor gave me a brief physical exam, blood pressure normal, temp normal, pulse normal but did say my gallbladder is enlarged. Sadly my Doctor ordered me to see a specialist, a GI Dr. and he ordered two tests for me...an Endoscopy and a Colonscopy and I cannot find any thing that says those tests will check out my gallbladder at all. I have a family history of Gallstones at a young age...but he kept asking about IBS or Crones Disease and something Colitis... Any ideas anyone? Samantha
    Thursdaysmagic 22 Replies
    • November 6, 2009
    • 02:43 AM
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  • So I had a Doctors appointment yesterday and they ran a bunch of blood tests and a urinalysis, they say it all came back pretty normal. My Doctor gave me a brief physical exam, blood pressure normal, temp normal, pulse normal but did say my gallbladder is enlarged. Sadly my Doctor ordered me to see a specialist, a GI Dr. and he ordered two tests for me...an Endoscopy and a Colonscopy and I cannot find any thing that says those tests will check out my gallbladder at all. I have a family history of Gallstones at a young age...but he kept asking about IBS or Crones Disease and something Colitis... Any ideas anyone? After you have had the endoscopy and colonoscopy with the results, ask the doctor to explore the gallbladder issue. The doctors missed mine when I was 21 and turned into pancreatitis. I was one sick puppy. Be your own advocate and firmly insisit if you think it is your gall bladder. It is your body and you have to fight for your health. I wish I would have been more assertive, I went through ***l for 30 days before I could get anyone to listen to me. Hope you find an answer soon. Samantha After you have had the endoscopy and colonoscopy with the results, ask the doctor to explore the gallbladder issue. The doctors missed mine when I was 21 and turned into pancreatitis. I was one sick puppy. Be your own advocate and firmly insisit if you think it is your gall bladder. It is your body and you have to fight for your health. I wish I would have been more assertive, I went through ***l for 30 days before I could get anyone to listen to me. Hope you find an answer soon. Samantha After you have had the endoscopy and colonoscopy with the results, ask the doctor to explore the gallbladder issue. The doctors missed mine when I was 21 and turned into pancreatitis. I was one sick puppy. Be your own advocate and firmly insisit if you think it is your gall bladder. It is your body and you have to fight for your health. I wish I would have been more assertive, I went through ***l for 30 days before I could get anyone to listen to me. Hope you find an answer soon. Samantha After you have the endoscopy and colonoscopy with the inconclusive results, ask the doctor to explore the gallbladder issue. The doctors missed my gallbladder issues when I was 21 and turned into pancreatitis. I was one sick puppy. Be your own advocate and firmly insisit if you think it is your gall bladder. It is your body and you have to fight for your health. I wish I would have been more assertive, I went through ***l for 30 days before I could get anyone to listen to me. Hope you find an answer soon.
    cozynana 39 Replies
    • November 7, 2009
    • 04:43 AM
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  • Thank you for the response Cozy, I appreciate that. Yes my Doctor told me that my gallbladder was enlarged solely because I am thin, well I am not -that- thin! I am 4'11 and 103lbs. I think this guy must be a quack! I was doing some online research and I discovered I have many of the symptoms of Celiacs Disease, Candida and Vitamin B12 Deficiency, so I would like a decent doctor to look into those things. Still lactose intolerant as I tested earlier today, I drank about 3oz. of milk and became quite ill. I thought I would check since I eliminated dairy over a month ago but apparently no change there. Some of the symptoms have been more severe today, for instance the numbness and tingling in my limbs has came and gone more often today than usual. I also have a strange feeling of cold fire combined with pressure somewhere in the area of my diaphram. (sp?) The tingling sensations are getting on my nerves. How do doctors typically respond if someone requests special testing? I am hoping to find one that is open minded and cares enough to explore my concerns. My stomach has been a little extra upset today but without the burning, it seems to be just irritated as I have an unwell, upset tummy. However I am also having random abdominal and upper abdominal pains and occasional pain in the general area of my gallbladder. As well as a serious amount of fatigue, muscle aches, weakness, tiredness, etc. Feeling unwell is leaving me very unmotivated and sad. Samantha
    Thursdaysmagic 22 Replies
    • November 8, 2009
    • 06:39 AM
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  • The Colonoscopy will allow the doctor to visualise the lining of your digestive tract and if needed take biopsies. This will allow him to exclude or diagnose Ulcerative colitis or crohns disease (however for Crohn's you would expect a history of mouth ulcers and for both UC and crohns possibly rectal bleeding). The upper GI endoscopy will allow visualisation of the oesophagus and stomach and allow exclusion/diagnosis of reflux oesophagitis, gastric ulceration and other problems of the stomach lining. The scopes will also allow for a biopsy of the lining of the duodenum (part of the bowel) which will allow for exclusion/diagnosis of Caeliac disease which is an auto-immune condition caused by the environmental trigger of Gluten. However serology testing of your blood should highlight if you are a potential caeliac prior to biopsy for confirmation.An ultrasound scan of your abdomen would allow the doctor to look at your pancreas and gallbladder and visualise any stones. However it must be pointed out that many people have gallstones and never have problems with them, so the prescense of gallstones does not mean these are the cause of your problems. Cholecystitis (infection of the gall bladder) would cause you to be unwell, raised temp with right upper abdominal pain. Gall stone disease (without infection) would present with spasmodic pain in the right upper quadrant of your abdomen, usually triggered by eating fatty foods as this triggers the gall bladder to contract, pressing against any stones within the gall bladder. IBS is unfortunatlety a diagnosis of exclusion and there is no test that can be done to confirm this, just negative results for the other tests.It sounds like the doctor has done the correct thing arranging these scopes as these are the more pressing things to exclude.All the best in your hunt for a diagnosis.
    Anonymous 42789 Replies
    • November 8, 2009
    • 09:10 AM
    • 0
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  • Thank you for the response Cozy, I appreciate that. Yes my Doctor told me that my gallbladder was enlarged solely because I am thin, well I am not -that- thin! I am 4'11 and 103lbs. I think this guy must be a quack! I was doing some online research and I discovered I have many of the symptoms of Celiacs Disease, Candida and Vitamin B12 Deficiency, so I would like a decent doctor to look into those things. Still lactose intolerant as I tested earlier today, I drank about 3oz. of milk and became quite ill. I thought I would check since I eliminated dairy over a month ago but apparently no change there. Some of the symptoms have been more severe today, for instance the numbness and tingling in my limbs has came and gone more often today than usual. I also have a strange feeling of cold fire combined with pressure somewhere in the area of my diaphram. (sp?) The tingling sensations are getting on my nerves. How do doctors typically respond if someone requests special testing? I am hoping to find one that is open minded and cares enough to explore my concerns. My stomach has been a little extra upset today but without the burning, it seems to be just irritated as I have an unwell, upset tummy. However I am also having random abdominal and upper abdominal pains and occasional pain in the general area of my gallbladder. As well as a serious amount of fatigue, muscle aches, weakness, tiredness, etc. Feeling unwell is leaving me very unmotivated and sad. SamanthaSeveral months ago I started experiencing the same symptoms you are expect it hurt to eat anything i had to make myself take baby sips of something to keep from getting dehydrated. Had go to emergency room they immediately assumed it was my gallbladder but it wasnt so I went home in same condition until a Week later when I finally got up strength to go to a doctor he immediately said you have an ulcer and bacteria infection and prescribed an am and pm med pack which consist of prevacid biaxin and 2 amoxicillian, medicine taste nasty i would literally gag while taking them however, within 2 days of taking meds i felt better and I stopped taking them just looking at them made me gag luckily I havent gotten sick again but they do work so talk to your doc about trying it.
    Anonymous 42789 Replies
    • November 9, 2009
    • 00:55 PM
    • 0
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  • I got all my blood test results back. Here are the blood test results from November 4th 2009. Helicobactaer Pylori Abs: Negative. Thyroid Stim. Hormone:Value: 0.55 Units: uIU/ml Normal: 0.35-4.5 Lipase:Value: 252 Units: U/L Normal: 150-286Amylase:Value: 64 Units: U/L Normal: 25-100Automated Chemistry:Result: Value: Units: Normal:TP 7.7 g/dL 6.2-8.2Albumin 4.4 g/dL 3.3-5.0T-bili 0.4 mg/dL 0.4-1.4AST 19 U/L 14-41T-Alkp 67 U/L 40-125Na 139 mmol/L 133-144K 3.9 mmol/L 3.4-5.1Cl 102 mmol/L 96-109CO2 28 mmol/L 21-33A-Gap 9 mmol/L 2-16UREA N 9 mg/dL 6-24Creat 0.94 mg/dL 0.6-1.4Gluc 89 mg/dL 70-100Ca 9.0 mg/dL 8.5-10.3A/G RA 1.3ALT 28 U/L 20-60eGFR > 60 mL/min > 60RBC 4.53 x10^6/uL 3.9-5.4Hgb 14.2 g/dL 11.7-15.5Hct 40.3 % 35-46MCV 89.0 fL 82-99MCH 31.5 pg 27-34Plt 247 x10^3/uL 150-450MPV 8.2 fL 7.4-10.4Neut 54.4 % IANC# 2.0 x10^3/uL 1.9-8.1Lymph 33.7 % Lymph# 1.2 x10^3/uL 1.0-3.9Mono 10.1 % Mono# 0.3 x10^3/uL 0.1-0.9Eos 0.9 %Eos# 0.0 x10^3/uL 0.0-0.5Baso 0.9 %Baso# 0.0 x10^3/uL 0.0-0.2 LOW:WBC 3.5 x10^3/uL 4.1-10.9RDW 12.2 % 12.5-16.5 Urine, Dipstick Reflex Micro:Result: Value: Units: Normal:Sp-Ty CleanCtchColor YellowTurb ClearSp-Gr 1.020 1.005-1.030pH 7.0 4.5-8.0Prot NEG mg/dL Neg-30Gluc NEG mg/dL Neg-100Keto NEG NegativeBili NEG NegativeBld NEG NegativeUro Normal NormalEster NEG NegativeNitr NEG Negative Tests on November 16th 2009 Sedimentation Rate-Erythrocyte:Result: ESR Value: 8 Units: mm/hr Normal: 0-15 B-12, Vitamin:Result: B12 Value:1047 Units: pg/mL Normal: 254-1320 Ferritin:Result: Ferrit Value:18 Units: ng/mL Normal: 14-350 C-Reactive Protein:Result: C-Reac-Prot Value: Iron-Only:Result: Iron Value: 138 Units: ug/dL Normal: 40-160 All Above blood tests were NON-fasting. Today I had a fasting ultrasound done on my stomach area, I didn't eat or drink anything at all, not even water for 12 hours before my ultrasound. Doctor Potter told me the ultrasound went well, he said my Gallbladder looks fine. He is leaning more towards this being a food allergy/intolerance now and is considering setting me up with an Allergist. He suggested I start taking a multivitamin everyday forever, Psyllium capsules, 2-3 of them every night before bed with a large glass of water, forever and Prilosec OTC for an 8 day trial. He also wants me to keep a notebook of everything I eat and how I feel to see if I can figure out what I could be eating that would bother me. He also would like me to switch to as much organic food as possible. What does everyone else think? Personally I am against the Prilosec OTC even for an 8 day trial, so I am not sure whether or not I will do that. Also I noticed that while yes...most of my test results are within the normal range, quite a few of them are on the lowest end of the normal range. Any suggestions? Samantha
    Thursdaysmagic 22 Replies
    • November 18, 2009
    • 09:38 PM
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  • Hello everyone,Okay so I started changing my diet drastically to see if that helped, I no longer eat anything that I one ate...with the exception of a little bit of butter, sea salt and canola oil. My diet now consists of Brown Rice Stir Fries, Zucchini Squash, Yellow Squash, Broccoli, Onions, Celery, Grapefruit, Pears, Lemons, Limes, Rice Chips, Organic Hypoallergenic Oatless Oatmeal Cookies, Granola and Rice Milk.I've been on the diet for four days now, today is day four and in all honesty, I felt better yesterday and the day before, well I felt better for the first two days of this diet. The first day I actually didn't consume anything but water, the second day I was mildly sick in the morning which I assumed to be from not eating and I felt better after my food settled. Day three was great with the exception of a two hour period of stress and now on day four I am doing worse yet! Earlier today was fine, honestly slipped by so fast I am not sure where it went, it was strange...it seemed like it was just noon and then I realized all of a sudden it was 5pm! It all started when I was on the phone about three hours ago I moved my head and then my vision went weird, I got very dizzy and disoriented and then I felt like I was gonna pass out but it passed and I have been getting worse ever since then.Now I have a wicked headache, blurry vision, disorientation, a spacey feeling. If I move my head even a fraction of an inch there is a strange ticking in both my ears.The vast majority of the pain from my headache feels like it is at the base of my skull/back of my neck and a pressure squeezing my head.Just to mention I seem to have neurological symptoms like tingling & numbness in my limbs, tingling in my face and neck...the strangest is the tingling and dripping feeling at the back of my head and neck. Any suggestions, questions, comments or replies would be greatly appreciated, anything at all, please!Samantha
    Thursdaysmagic 22 Replies
    • November 25, 2009
    • 03:12 AM
    • 0
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  • Hello one and all,Wow, a lot has happened since my last post, I have had many, many various tests and the doctors are really stumped!So far they say it doesn't appear to be anything diabetic related, tested negative for two tick born diseases, no iron deficiency or anemia. I am still getting my headaches, some things have improved or changed but I am still not quite right. I am trying to keep positive and upbeat so that I maintain a good outlook. I am still having off and on stomach troubles but mostly just a slight burning that seems to be almost constant but worse at times. I am coping better with everything now than I was before, I am trying to be as normal as possible. I was put on this very strict diet in late November and that solved almost all the GI issues. I am starting to wonder whether or not food allergies play a role in any of this because today I had 11 regular cookies and a slice of pizza and between those things I managed to consume dairy, sugar, gluten, wheat, yeast, etc. all of which are not allowed on my diet.I am feeling fine but I do have a slightly more severe burning sensation in my stomach. On the other side I do have a strange tingling in the top left side of my head as well, not sure if that has anything to do with any of this but man I would love to feel normal again!They are going to be running some blood tests for hormonal imbalances and testing my cortisol levels as well as testing for toxic substances such as lead. They instructed me to buy a radon detector, get my water tested and see about mold testing for my house.Honestly... I'll try just about anything but some of this seems like grasping at straws, I did a lot of research into the Radon issue and all I could find was that it causes symptoms similar to lung cancer, how does that fit me?As of currently my most recent symptoms and issues are...Facial Flushing, Hot Flashes, Heat/Cold/Temperature Change Intolerance, Jitteriness, spaciness, Not feeling quite "There", Headaches, Anxiety, Weight Loss, Fogginess, Problems with loud sounds, Strange Sensations in my face and limbs, such as tingling, hot/cold, numbness, etc. Sinus problems, Stuffy ears, Itchy ears, Watery/itchy eyes, random rashes and probably more that I am forgetting.My fingernails are brittle, peeling, cracking, covered in ridges and developing white fluffy clouds on them.Most recently a piece of my tooth fell apart when I was brushing my teeth the other day and that is bizarre. Right now I have the stomach burning and a burning sensation in my chest, near my sternum/breastbone and Indigestion which I assume to be from the cookies and pizza that I ate. Somewhat difficulty breathing.As always, any suggestions, questions, replies or comments are welcome!Thanks again,Samantha
    Thursdaysmagic 22 Replies
    • December 28, 2009
    • 03:13 AM
    • 0
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  • Hi Thursdaysmagic,We are all here because the medical profession cannot cover all the grey areas where symptoms and tests results always are "normal" while we suffer on quietly & helplessly. But I can help you maybe by talking about other angles you seem to have omitted and would prefer to communicate with you directly for privacy & security reasons of the internet nowadays. What got me here are the search keywords - "temperature change intolerance" - which in my case leads to an endless running nose in warmer to colder temperature changes and endless long term bouts with sore throats, fever, colds, flu, coughing that usually last from one week to 2 months. This incurable minor disease has ruined my working career.I am astounded at the number of symptoms you are having that I also have had but your symptoms seem to be far worst than mine.- 53 years old, male but have had many of my health problems since childbirth- hostpitalized with pneumonia at age 7 for 2 weeks- hernia operation at age 5 from lifting heavy objects- Irritable bowel syndrome, abdominal pain, difficulty breathing due to gas bloating, milk lactose intolerance, episodes on both extremes between diarrhea & constipation, sensitivity to oily food, burping & the other one LOL, etc. Had to stop drinking carbonated drinks at the age of 15.- fatigue, excessive sweathing, problems with my vision & eye pain, possible Chronic Fatigue Syndrome- Respiratory - Asthma & severe dust mite allergies, shallow breathing, the previously mentioned endless running nose- fungal nail infection on my right foot since 15 years ago- Physical - countless clumsy accidents as a young child like getting hit with a golf club accidentally on the head, falling off horses several times once head first & nearly passed out. A teenage fist fight that cracked my nose & dislocated my left shoulder.- Aspartarme - I consume up to 800 packets of Equal sweetener for the last 15 years but cannot say if it has affected me at all. Have stopped taking it months at a time with no improvement in my condition. - Genetic - severe Gallstone problems affecting my dad and older brother. Myself 2 operations from so-called urinary tract blockages with pain symptoms exactly like gallstones but no gallstones were ever found, no infections.- at the age of 22 & 6 ft 3 inches in height, I was really thin like you and had difficulty maintaining my weight- ear ache that cannot be cured and is in constant pain especially when the constant sore throat gets worst- fingernails sometimes crack- many other symptoms you don't have but still add up to a "Huge Number of Symptoms with no diagnosis" after countless tests If you still check this post, pls. respond by emailing me at - scifitechgeek@gmail.comHope you are feeling better today, April 21, 2010
    Anonymous 42789 Replies Flag this Response
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