Discussions By Condition: I cannot get a diagnosis.

How is this nothing????

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: sherylv
  • August 13, 2008
  • 02:49 AM

For the last year, since moving to the south, I've had a collection of symptoms that all appeared to come at once.
Fatigue,serious weight gain, bleeding gums, muscle and joint pain, and shortness of breath.
Until last year I had no problem with any of these things.
I moved to New Orleans and had asked my doctor if there was possibly an environmental factor, such as mold. He said no.
I do take several medications regularly and have for years....adderall XR, Protonix, Valtrex and asked if any of these medications could be causing the issue. He did not think so.
I've had an immunological study done and all was well with the exception of a somewhat low helper T8 count.
The study was not done because of these symptoms, but because he was concerned about a recurring herpes rash on my left leg and right inner arm. This has been happening for years and caused me no concern at all, but it was the ONLY symptom that concerned my doctor.
His final say is that there's nothing wrong with me but "normal aging"
I'm 44.
Does anyone have any idea what could cause such a collection of symptoms?
Everything I've looked up says it's either a leukemia, which it is not, as all of my bloodwork was fine and dandy, or lupus, which does seem to occurr in my family, but which my doctor says I do not have.
It all coincided with the move to new orleans and I can't help but think that that has something to do with it.
Any thoughts?

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9 Replies:

  • I believe you need to find someone who specialises in Fibromyalgia as that is what i think your problem could be. www.immunesupport.com is a good site for info on it.
    taniaaust1 2267 Replies
    • August 13, 2008
    • 03:09 AM
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  • That would cover the joint pain and fatigue, but not the weight gain, shortness of breath ( i can breathe....but i feel like i cant get a nice full breath, if that makes sense), and bleeding gums. I wonder, too, if all the symptoms have to be related? I mean it's probably possible that say, something in the water is making my gums bleed, and the change in climate is causing fatigue, and whatever else....but it seems strange to be falling apart so suddenly and completely.
    sherylv 5 Replies
    • August 13, 2008
    • 03:17 AM
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  • seems like you are right on with the mold that you are being exposed to; it could cause all of the problems. You've had an HIV test; your blood work is okay??? Can you move? Try a stress test. You might want to get lauricidin for the herpes; it can control it:www.lauricidin.com
    Monsterlove 2921 Replies
    • August 13, 2008
    • 03:31 AM
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  • seems like you are right on with the mold that you are being exposed to; it could cause all of the problems. You've had an HIV test; your blood work is okay??? Can you move? Try a stress test. You might want to get lauricidin for the herpes; it can control it:www.lauricidin.comMy blood work was ok. No HIV, but I have low T8 helper cells,which I'm told has something to do with the ability to fight off viral infections. I'm never sick though, so I have no idea. I could move but I just moved here to new orleansand I love it too much to even think about living anywhere else! My health would have to deteriorate a lot more than this for me to consider moving out of the city entirely.I am concerned about it being mold, though, and wondering if a change of neighborhood might do the trick. I'm on the high ground here, but I'm also right on the river and the thought of allergy or something from the river has also crossed my mind.Thanks for the link, I'm going to look into it. I'm not too troubled with the herpes...it seems to appear with my monthly cycle just like clockwork, and also if there's a viral illness going around, rather than get sick, i get an outbreak either on my leg or my arm. It almost seems a good deal when everyone around me has the stomach flu,and I have an itchy rash!
    sherylv 5 Replies
    • August 13, 2008
    • 04:09 AM
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  • Ive been thinking further about your post as thou i believe it is Fibromyalgia causing your muscle and joint pain.. along with possibly your tiredness.. a couple of your symptoms arent Fibromyalgia symptoms so im wondering if you could actually be in the beginnings of chronic fatigue syndrome (CFS) thou you dont currently have enough symptoms to meet the best CFS diagnostic guidelines. CFS and Fibro are over lapping disorders. one quarter of those with Fibro do end up with CFS.. and up to 80% with CFS do have Fibro. Bleeding gums can be caused by CFS and low T8 is a well known factor in CFS Some other illnesses which can also have low T8 too... "anemia" comes to mind as that also can have bleeding gums. Make sure your doctor has tested you for anemia!!! That can cause tiredness too.. i dont know about if anemia can cause muscle and joint pain thou??. Specific tests that support (but do not necessarily confirm) a diagnosis of chronic fatigue include (Verillo et al. 1997): Tests for viral infections, such as cytomegalovirus, Epstein-Barr virus, human herpes virus 6, and coxsackievirus Immune system tests, including low natural killer (NK) cell counts, elevated interferon alpha, tumor necrosis-alpha, interleukins 1 and 2, T-cell activation, altered T4/T8 cell ratios, low T-cell suppressor cell (T8) count, fluctuating B- and T-cell counts, antinuclear antibodies, immunoglobin deficiency, antithyroid antibodies Exercise testing may show decreased cortisol levels after exercise, decreased cerebral blood flow after exercise, inefficient glucose utilization, and erratic breathing patterns the above is from http://www.chronicfatiguesupport.com/library/cfsdiagnosis.cfm/id/2817 (how do you know if you have CFS)... thou'd i'd cut and paste it as it's one of the many articles online which talk about low T8 and CFS. ........ oh i forgot to add. Moving.. or a change in enviroment or certain environments can trigger both FM and CFS. So yes.. the illness may be related to your move.
    taniaaust1 2267 Replies
    • August 13, 2008
    • 04:15 AM
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  • That would cover the joint pain and fatigue, but not the weight gain, shortness of breath ( i can breathe....but i feel like i cant get a nice full breath, if that makes sense), and bleeding gums. I wonder, too, if all the symptoms have to be related? I mean it's probably possible that say, something in the water is making my gums bleed, and the change in climate is causing fatigue, and whatever else....but it seems strange to be falling apart so suddenly and completely. CFS is also called chronic fatigue immunity dysfunction syndrome.. for a good list of it's symptoms (based on studies done by well known doctors etc) check out http://wwcoco.com/cfids/bernesx.html .. from that you can see how common some of your symptoms are in CFS ... Weight gain: 50-70% , Muscle and/or joint pain, neck pain: 65-95% , Shortness of breath: 30-70% and even the gum issue (periodontal disease) "Other general symptoms reported: Endometriosis; dryness of mouth, eyes; pressure sensation behind eyes; frequent canker sores; periodontal disease; pain in teeth, loose teeth, and endodontal problems; " Or maybe your breathing problems are due to the extra weight you are carrying???? To distingish FM and CFS not only can it be done by certain different symptoms coming in (FM can carry a lot of different symptoms too) .. but one way to differentiate is if the tiredness is made worst by exertion??? Exercise often helps ones with just FM.. thou if ones FM has gone into being CFS .. exercise can at that point, often make a persons symptoms worst. (I guess basically im trying to say.. that i think you are currently somewhere between these two overlapping illnesses.. You could probably get a FM diagnoses (diagnoses can be made on the FM tender points) but i think your FM may be heading towards the CFS spectrum of the illness.
    taniaaust1 2267 Replies
    • August 13, 2008
    • 04:28 AM
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  • I've read those links and yes, that all does sound an awful lot like me. I'm not sure if exercise makes it worse....cumulatively it seems to. It's normal to be tired at the end of a busy day, but recently I'm so exhausted at the end of an active day that I can barely drag myself along. I'm good for a couple of hours or normal activity and then I'm TIRED. If my work day is more strenuous than usual I don't even make it halfway through before I'm completely exhausted.I'm going to mention this to my doctor. That's another problem though. I'm new with him and I don't know what type he is....he got all cranked up over my herpes and was convinced I had HIV...even though I told him knew absolutely that I didnt...and he made me have a complete immunological workup. But when I told him "These are the medications I take" he didn't even ask me why, just wrote me prescriptions. I feel like I could have told him anything and he'd have gone with it. So honestly I'm not sure about him. My bloodwork here showed my cholesteral was fine, but for the last 15 years it's been borderline high. Getting another doctor....tricky here in NOLA. Hopefully he'll turn out to be ok, but I don't want him to just go along with what I suggest might be wrong with me. I also dont want him to poopoo the idea on general principles either. Egad.Thank's for the info......it really does fit.
    sherylv 5 Replies
    • August 13, 2008
    • 04:42 AM
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  • It could be hypothyroidism. You would need a TSH test. http://thyroid.about.com/cs/basics_starthere/a/hypochecklist.htm
    Anonymous 42789 Replies
    • August 13, 2008
    • 01:23 PM
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  • Visit www.cushing-help.com Kiera
    Anonymous 42789 Replies
    • August 13, 2008
    • 04:31 PM
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