Discussions By Condition: I cannot get a diagnosis.

Hospital accommodations?

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: autisticcheshirecat
  • June 28, 2011
  • 01:00 AM

I am 22 years old and I am diagnosed with Asperger Syndrome. I also have ADHD, Auditory Processing Disorder and severe anxiety... as comorbid disorders. My issue is with hospitals. It's not so much having a card with all those things listed but them knowing how to treat me. I am the type who would literally scream as I run out of the hospital. I also can't feel pain... I can feel it, yes but its hard for me to react to the pain. I also don't like being with other patients in a waiting room where some are throwing up and whatever... I have trouble expressing myself also and usually my mom is with me to help explain but... sometimes they expect me to answer the questions... I function at an eleven year old level where my IQ stands... which is about 74 or 75. I am capable of written expression but who wants to spend hours writing something I wrote down in so much detail?

I've always denied the option of going to a hospital for anything and what's worse is that if I had a real medical emergency, going to the hospital would only worsen that to such an extreme. My mom has told the about my disabilities and they've decided that, "oh well she must be retarded" and ask if I can talk... my mom only knows so much about me and sometimes I feel like I want to get away. I have actually walked out of a hospital once because of the intense fear I have. I just hate being misunderstood.

Is there anything I can do to maybe have it in RECORD or some form of written expression they will actually try to read and understand? I mean this fear is so bad that one of these days I could be dead the next day because I refused to go to a hospital the following night. I can't even set foot in a hospital without being meltdown prone... and sometimes I actually do meltdown.

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  • I know some of how you feel (thou you are far worst with hospitals then me). I too have Asperger's and have been diagnosed with central auditory processing disorder.. and I really dislike hospitals and doctors too... and on top of that have a lot of other health issues as well. I have a hard time expressioning myself to others verbally due to the speed I have to answer and my brain which needs to think about things before I reply. I make a lot of mistakes when trying to answer. Where as in writing.. Im find and can express well. My psychologist has told me to keep a written card on me which I can use to give to people when I need them to back off to prevent a meltdown. So Im going to suggest to put all they need to know about how to treat you or whatever else they need to know into writing.. then have a simple card telling them to refer to what you've written about it all.. if they are being too much for you. Have you got a counsellor, avocate or psychologist who can contact the hospital in advance over the issues you are having with them? I have an issue with a certain police officer to the point of if i was in that town where he works and needed to call the police for something, I probably wouldnt out of fear of me and him coming in contact and the bad reaction of a meltdown that would give me. So she's contacted that police station about it.. so they know if I ever ring.. he's not to attend any call of mine. Im thinking you may need someone like like that to make sure the hospital has something in your notes and knows how to deal with you...... Unfortunately I do know only too well just how hard it is to make ourselves understood. (Im close to a meltdown today due to an issue I had yesterday with a librarian).
    taniaaust1 2,267 Replies Flag this Response
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