Discussions By Condition: I cannot get a diagnosis.

hoping someone has the answer

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • January 10, 2011
  • 06:07 AM

I'm been seeing a few different specialist and it just seems as though certain symptoms are written off and the rest that pertain to them is assigned a diagnosis. I'm frustrated since I've had some issues for a few years now and have yet to find any relief. I generally feel aweful all the time. I'm fatigued and don't have very much energy. If I do exert a lot of energy, I end up feeling worst. I had mulitple issues that couldn't really be explained which usually ended in getting perscribed steroids that made the problem go away. Example, I had severe pain and what they referred to as idiopathic swelling in one arm. The steroids were given to me and at the end of treatment, it was fine. And on that list was also protein and blood in my urine. In the last few years I was diagnosed with: hashimotos, sleep apnea, a heart murmur, vitamin d deficiency, alopecia, folic acid deficiency, pcos, metabolic syndrome x, chest pain syndrome, insulin resistance and arthritis. I also have a select area on both of my hands that is so dry, anytime I move it cracks open and bleeds but the rest of my body if fine. I pretty much have no short term memory at all to the point that I'm really getting freaked out. I don't know if it matters or not but I also get the feeling that I'm physically on fire and my husband will tell me that I feel like an ice cube. I'm taking medication for everything and using the machine for the apnea. New blood work noted abnormal levels in gamma globulin, ssdna, histone, ana nucleo with a titer of 1:80, my vitamin d level was at 9, and it said that I have polyclonal hyperammaglobulinemia. The ana for rnp,sm,scl 70, and ccp were negative.

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